| | Joined: Aug 2012 Posts: 71 Supporting Member (50+ posts) | OP  Supporting Member (50+ posts)
Joined: Aug 2012 Posts: 71 | Well I have been off the peg for about a month. I can eat, slowly and most times with liquids, just about anything. I still can't eat potato chips and dry stuff like that (and bread)...
I had a hankerin' for some apple pie, so I started eating it and it tasted pretty good, but about half-way through finishing it, my taste buds gave out and it had almost no taste. I finished it anyway (with lots of Milk).
Some things taste good, some things have no taste, or at least not like it should.
But Hey I am Eating!! ( I even ate 1/2 of a steak, but it took a while to chew and I did have to have it pretty rare, which is how I like them anyway).
Still trying different foods, I peeled a red apple and still could barely eat it because the bites just turned to dry pulp in my mouth, apple sauce, no problem.
By the by, Jan 19 will by my 3 month wait, and I hope to get the insurance to authorize my PET scan.
Please keep me in your prayers.
And, don't give up, those that are starting or in treatment, keep swallowing at least one drink of water every day.
large lymph node Left Neck around May 22 2012
ENT June 6, did needle Biopsy - Negative
ENT CT scan July 9 - Negative
Remove lymph node July 26, DX - SSC - T1N2aM0
PET Aug 7, BOT
Aug 14, endoscopy, 1cm - clear margin HPV+
TX 33 IMRT - 6 Chemo - Taxol/Carboplatin
TX chemo 09/04/12 RAD 09/05/12
| | | | | Joined: Sep 2012 Posts: 145 "OCF Down Under" Senior Member (100+ posts) | | "OCF Down Under" Senior Member (100+ posts)
Joined: Sep 2012 Posts: 145 | Great to see you recovering so well! I am sure that the PET scan will just be a formality and nothing to be concerned about 
6/8/12: Wife 33y/o with no risk dx with Stage IVa SCC L of Tongue(T4aN2bM0)
3/9/12: Induced birth @ 36 weeks - Baby Hunter!
11/9/12: OP - 3/4 Partial Gloss, Radical ND & Tongue Rec.
24/10/12: 33xRad + 7xChemo
7/12/12: Tx complete
21/3/13 & 21/6/13: NED
24/7/13: SCC in Lungs - OP: Lobectomy (VATS)
29/1/14 passed away
| | | | | Joined: Jul 2012 Posts: 3,267 Likes: 4 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Jul 2012 Posts: 3,267 Likes: 4 | It happens to me too. I eat to a point, and then my taste buds just go flat, I guess from being overloaded. Glad you are eating a variety of foods, and good luck with the PET.
10/09 T1N2bM0 Tonsil
11/09 Taxo Cisp 5-FU, 6 Months Hosp
01/11 35 IMRT 70Gy 7 Wks
06/11 30 HBO
08/11 RND PNI
06/12 SND PNI LVI
08/12 RND Pec Flap IORT 12 Gy
10/12 25 IMRT 50Gy 6 Wks Taxo Erbitux
10/13 SND
10/13 TBO/Angiograph
10/13 RND Carotid Remove IORT 10Gy PNI
12/13 25 Protons 50Gy 6 Wks Carbo
11/14 All Teeth Extract 30 HBO
03/15 Sequestromy Buccal Flap ORN
09/16 Mandibulectomy Fib Flap Sternotomy
04/17 Regraft hypergranulation Donor Site
06/17 Heart Attack Stent
02/19 Finally Cancer Free Took 10 yrs
| | | | | Joined: Nov 2006 Posts: 2,671 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Nov 2006 Posts: 2,671 | Mickey - it's great to see how well you are doing and how positive and courageous you are about trying different foods and textures! Keep up the good progress!
Anne-Marie
CG to son, Paul (age 33, non-smoker) SCC Stage 2, Surgery 9/21/06, 1/6 tongue Rt.side removed, +48 lymph nodes neck. IMRTx28 completed 12/19/06. CT scan 7/8/10 Cancer-free! ("spot" on lung from scar tissue related to Pneumonia.)
| | | | | Joined: Jan 2013 Posts: 2 Member | | Member
Joined: Jan 2013 Posts: 2 | Mickey, I ve been cancer free for 15 yrs now , I had stage 1 tonsil 12 weeks of radation back when cobalt was the method . Today i still only have about 60% of my saliva production. If i eat anything cold i immediatly lose all taste, spicy things are still pretty hard to handell, but itis a whole lot better than at first! It seemed the 1st 6months were the worst but constantly improved from that point on, i still have some trouuble swallowing but so much better than before. The way i got through the tough times was to think about the good things that came out of it. At start i weighed 260 bs got down to 160 by the end of treatment, No longer had to shave for first 4-5 yrs,now only have to trim around a natural gotee. The hair quit growing in my ears and after 15 yrs there is still very little. Keep your head up and youll do fine! Ron Cark | | |
| Forums23 Topics18,264 Posts197,178 Members13,362 | | Most Online1,788
Jan 23rd, 2025 | | |
|
