| | Joined: Dec 2012 Posts: 7 Member | OP  Member
Joined: Dec 2012 Posts: 7 | Looking for what to expect as husband is having partial glossectomy and neck dis. on Mondy. We are quite anxious and scared.
Last edited by ChristineB; 12-14-2012 01:19 PM.
1/16/12 - diagnosed with Stage IV BOT cancer with 2 nodes involved. HPV+
2/12 - 4/12 - 40 rads and 8 chemo
7/12 - PET clean
10/12 - cancer back at base of tongue
12/17/12 - partial glossectomy, neck dissection
| | | | | Joined: Dec 2012 Posts: 7 "OCF across the pond" Member | | "OCF across the pond" Member
Joined: Dec 2012 Posts: 7 | Awwww bless him.
The tongue surgery bit is not as bad as you would think. I didn't have my neck thing done but my nurse said that people don't notice the neck bit after surgery because they are distracted by the swollen tongue which feels strange. His tongue will be numb due to cutting the nerves so not that painful really, plus the morphine is kind of nice to have anyway. The emotional stuff later is the hard bit I found. Adrenaline will get you both through this next bit.
He will feel like his tongue is filling his whole mouth when he comes round, tell him not to panic and that it will go down a lot within 24 hours, they will help him breath if needs be.
Mine was a little different as it was tip of tongue but some things will be the same. Hopefully you might get a response from a BOT survivor!
I'm so sorry for you both, I will be thinking of you on Monday, this time next week things will be a little better.
Let me know how it goes.
Kate
Last edited by ChristineB; 12-14-2012 01:22 PM.
T1N0M0 Tip of tongue cancer
32 year old female from the UK
Diagnosed 31 Oct 2012
Surgery 14 Nov
Partial glossectomy
No neck dissection as tumour 3 by 4 mm
Ex smoker and drinker
| | | | | Joined: Dec 2012 Posts: 7 Member | | OP Member
Joined: Dec 2012 Posts: 7 | Thanks. I will post how it goes. Don't know how I will sleep this weekend!
Last edited by ChristineB; 12-14-2012 01:22 PM.
1/16/12 - diagnosed with Stage IV BOT cancer with 2 nodes involved. HPV+
2/12 - 4/12 - 40 rads and 8 chemo
7/12 - PET clean
10/12 - cancer back at base of tongue
12/17/12 - partial glossectomy, neck dissection
| | | | | Joined: Jun 2007 Posts: 10,507 Likes: 7 Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) | | Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 10,507 Likes: 7 | Welcome to OCF! I have moved your post to its own thread and sent you a message with some helpful info about the forum.
Best wishes to your husband with his upcoming surgery next week!
ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive  | | | | | Joined: Dec 2012 Posts: 7 "OCF across the pond" Member | | "OCF across the pond" Member
Joined: Dec 2012 Posts: 7 | You'll get through it, be strong for him even if you feel like you have been kicked so hard it has winded you. You're going through a trauma and the human body is very resilient. You will cope will little sleep, however I got a little something to help from the Dr to put me out, it's was only for the worst bit so don't feel bad if you need some of the hard stuff. Failing that a large glass of wine helps wonders too :-)
You'll come through this as I think I will to, I survived the trauma bit now I�ll get through the recovery bit and so will you and your husband.
T1N0M0 Tip of tongue cancer
32 year old female from the UK
Diagnosed 31 Oct 2012
Surgery 14 Nov
Partial glossectomy
No neck dissection as tumour 3 by 4 mm
Ex smoker and drinker
| | | | | Joined: Jul 2009 Posts: 1,409 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: Jul 2009 Posts: 1,409 | Chuckles, my thoughts are with you both. The fact that you've chosen that screen name tells me that you've got a sense of humor (unless your last name is Chuckles, of course!), which is a great asset going in to this treatment.
We're here to help.
David 2
SCC of occult origin 1/09 (age 55)| Stage III TXN1M0 | HPV 16+, non-smoker, moderate drinker | Modified radical neck dissection 3/09 | 31 days IMRT finished 6/09 | Hit 15 years all clear in 6/24 | Radiation Fibrosis Syndrome kicked in a few years after treatment and has been progressing since | Prostate cancer diagnosis 10/18
| | | | | Joined: Jul 2012 Posts: 3,267 Likes: 4 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Jul 2012 Posts: 3,267 Likes: 4 | Good luck with everything, and I hope for a quick recovery.
10/09 T1N2bM0 Tonsil
11/09 Taxo Cisp 5-FU, 6 Months Hosp
01/11 35 IMRT 70Gy 7 Wks
06/11 30 HBO
08/11 RND PNI
06/12 SND PNI LVI
08/12 RND Pec Flap IORT 12 Gy
10/12 25 IMRT 50Gy 6 Wks Taxo Erbitux
10/13 SND
10/13 TBO/Angiograph
10/13 RND Carotid Remove IORT 10Gy PNI
12/13 25 Protons 50Gy 6 Wks Carbo
11/14 All Teeth Extract 30 HBO
03/15 Sequestromy Buccal Flap ORN
09/16 Mandibulectomy Fib Flap Sternotomy
04/17 Regraft hypergranulation Donor Site
06/17 Heart Attack Stent
02/19 Finally Cancer Free Took 10 yrs
| | | | | Joined: Dec 2010 Posts: 5,264 Likes: 4 "OCF Canuck" Patient Advocate (old timer, 2000 posts) | | "OCF Canuck" Patient Advocate (old timer, 2000 posts)
Joined: Dec 2010 Posts: 5,264 Likes: 4 | Hi there my surgery was similar the neck dissection is rather painless - actually the whole thng is mostly uncomfortable rather than painfully. Mostly you are numb as theyve cut nerves etc... But he'll likely Need physio for his shoulder. And a few weeks later will be back to eating and speaking ok. Best of luck le us knw how he does. Take care
Cheryl : Irritation - 2004 BX: 6/2008 : Inflam. BX: 12/10, DX: 12/10 : SCC - LS tongue well dif. T2N1M0. 2/11 hemigloss + recon. : PND - 40 nodes - 39 clear. 3/11 - 5/11 IMRT 33 + cis x2, PEG 3/28/11 - 5/19/11 3 head, 2 chest scans - clear(fingers crossed) HPV-, No smoke, drink, or drugs, Vegan
| | | | | Joined: Dec 2012 Posts: 16 Likes: 1 Member | | Member
Joined: Dec 2012 Posts: 16 Likes: 1 | I wish your husband the best of luck! I'm going for the same surgery on the 27th! I noticed you are from Ohio! I'm getting my treatment from dr. agrawal at OSU. I'm wondering if you have the same because when they were scheduling my surgery and he got two patients in at the same time, with the same surgeries (one me) and one surgery date was the 18th and the other the 27th!
well anyways, best of luck! Stay strong!
Shelby, 28 yrs old, stage 3 tongue cancer, non- smoker, not HPV, 12/27/12 partial glossectomy and neck dissection, 1 lymph node positive, Chemo and Rad 5 days a week, 32 treatments, feeding tube in, finish treatment 3/22/13 back to normal basically
| | | | | Joined: Oct 2012 Posts: 118 Senior Member (100+ posts) | | Senior Member (100+ posts)
Joined: Oct 2012 Posts: 118 | Hi, My husband just had the same surgery on Dec. 5th. We are home now and he is slowly getting better. It was very traumatic as a caregiver. Honestly my knees buckled when I first saw him in ICU. But then It became familiar and I think it might look worse than it is. Reggie is now taking sips of water very well. He says he can't feel it but it's not coming back out his mouth so I know he is swallowing. It's all about baby steps. Good luck today.
Bette/CG to husband Reggie 66
dx 1: SCC Soft Palate (12/06)
tx: chemo and rad
dx 2: SCC 6 cm tum rt. vocal chord (12/09)
tx: total laryngectomy with stoma, 2 nodes
dx 3: SCC 4 cm tum BOT (10/16/12)
Tx: partial gloss w/ mod deck dis 4 nodes incl. part. pharyngectomy
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