| Joined: Aug 2012 Posts: 71 Supporting Member (50+ posts) | OP Supporting Member (50+ posts) Joined: Aug 2012 Posts: 71 | Thank You Tammy. That makes me feel better. I am starting to cough up some white stuff, so it probably is not the PEG. The nurse did say to quit putting neosporin on the tube (I had been doing this daily) she said to just wash with a good soap and dry.
Thanks Again! Mickey
large lymph node Left Neck around May 22 2012 ENT June 6, did needle Biopsy - Negative ENT CT scan July 9 - Negative Remove lymph node July 26, DX - SSC - T1N2aM0 PET Aug 7, BOT Aug 14, endoscopy, 1cm - clear margin HPV+ TX 33 IMRT - 6 Chemo - Taxol/Carboplatin TX chemo 09/04/12 RAD 09/05/12 | | | | Joined: Jul 2012 Posts: 3,267 Likes: 4 Patient Advocate (old timer, 2000 posts) | Patient Advocate (old timer, 2000 posts) Joined: Jul 2012 Posts: 3,267 Likes: 4 | Besides soap and water, I clean it with peroxide daily, and apply bactrim. After a fungal infection around the tube site, dr prescribed clotromizole ointment. The thing about applying antibiotic ointment, anti fungal often is developing a resistance to it. I just completed treatment last week, and do smell garlic on people's breath. Seemed like the whole hospital was eating it.
10/09 T1N2bM0 Tonsil 11/09 Taxo Cisp 5-FU, 6 Months Hosp 01/11 35 IMRT 70Gy 7 Wks 06/11 30 HBO 08/11 RND PNI 06/12 SND PNI LVI 08/12 RND Pec Flap IORT 12 Gy 10/12 25 IMRT 50Gy 6 Wks Taxo Erbitux 10/13 SND 10/13 TBO/Angiograph 10/13 RND Carotid Remove IORT 10Gy PNI 12/13 25 Protons 50Gy 6 Wks Carbo 11/14 All Teeth Extract 30 HBO 03/15 Sequestromy Buccal Flap ORN 09/16 Mandibulectomy Fib Flap Sternotomy 04/17 Regraft hypergranulation Donor Site 06/17 Heart Attack Stent 02/19 Finally Cancer Free Took 10 yrs
| | | | Joined: Mar 2008 Posts: 3,082 Patient Advocate (old timer, 2000 posts) | Patient Advocate (old timer, 2000 posts) Joined: Mar 2008 Posts: 3,082 | while everybody knows how hard I am on "alternative" treatments, I found that Tea Tree oil helped keep the Peg stoma clean while reducing the granulation tissue. Some sites claim that peroxide use increases granulation tissue so I quit using that. I do use antibiotic cream on the Peg site sometimes. Although despite tea tree oil, in the end, I have to use silver nitrate sticks to burn off the granulation tissue. In over three years, I have never had an infection of the stoma or PEG. BTW, I love the smell of garlic Charm 65 yr Old Frack Stage IV BOT T3N2M0 HPV 16+ 2007:72GY IMRT(40) 8 ERBITUX No PEG 2008:CANCER BACK Salvage Surgery 25GY-CyberKnife(5) 3 Carboplatin Apaghia /G button 2012: CANCER BACK -left tonsilar fossa 40GY-CyberKnife(5) 3 Carboplatin Passed away 4-29-13
| | | | Joined: Dec 2010 Posts: 5,264 Likes: 5 "OCF Canuck" Patient Advocate (old timer, 2000 posts) | "OCF Canuck" Patient Advocate (old timer, 2000 posts) Joined: Dec 2010 Posts: 5,264 Likes: 5 | EEEW..charm garlic??? ack!
On another note most infections at the skin level are characterized by redness and soreness, as well as oozing. Does sound like you can have a cold. I had one and am finally getting over it after sucking down some extra vitamin c, and b12 for a few days. ;o) it was a nasty head cold that tried to move into my chest, but I think I nixed it as I only had one day of coughing possibly related to phlegm etc.. So now I just have draining sinuses, and a bit of the sniffles. (hate colds!)
secondly can you drink jevity? ACK! I know was told I wouldn't be allowed to drink the formula I was on as the peg they inserted into me went directly into my jejunum. I was told it was for peg use only as it was predigested (so GROSS) and when I drank it was usually a boost or ensure. Does it actually taste okay? just curious. take care and feel better.
Cheryl : Irritation - 2004 BX: 6/2008 : Inflam. BX: 12/10, DX: 12/10 : SCC - LS tongue well dif. T2N1M0. 2/11 hemigloss + recon. : PND - 40 nodes - 39 clear. 3/11 - 5/11 IMRT 33 + cis x2, PEG 3/28/11 - 5/19/11 3 head, 2 chest scans - clear(fingers crossed) HPV-, No smoke, drink, or drugs, Vegan
| | | | Joined: Mar 2008 Posts: 3,082 Patient Advocate (old timer, 2000 posts) | Patient Advocate (old timer, 2000 posts) Joined: Mar 2008 Posts: 3,082 | cheryl
I think you are mixing up Mickey's posts and mine. I do not have a cold and have not had one ever since the first round of TX. I used to laugh and say there is in fact a cure for the common cold, Radiation and chemo. Likewise, I have never had any infection ever in or around my PEG.
I have never drank a can of Jevity and now with a permanent inability to swallow, I never will. I don't think I'm missing anything in that regard. Like yourself, I did not even know anybody drank Jevity until I read this thread of Mickey's. The very first time around, when I refused to get a PEG, I drank Vanilla Ensure exclusively.
Charm
65 yr Old Frack Stage IV BOT T3N2M0 HPV 16+ 2007:72GY IMRT(40) 8 ERBITUX No PEG 2008:CANCER BACK Salvage Surgery 25GY-CyberKnife(5) 3 Carboplatin Apaghia /G button 2012: CANCER BACK -left tonsilar fossa 40GY-CyberKnife(5) 3 Carboplatin Passed away 4-29-13
| | | | Joined: Aug 2012 Posts: 71 Supporting Member (50+ posts) | OP Supporting Member (50+ posts) Joined: Aug 2012 Posts: 71 | Well I went to the OC and they prescribed anti-biotics. I do think it has went into my chest, and I can't really clean my sinuses and spit out a lugi (sorry) as I cant stop it from going down my throat. The same reason I can't gargle I guess (the ENT said that the RX burned some skin or latterial tonsil thing, but I should be able to eventually gargle). Although I do eventually cough it up.
The Jevity does not taste too bad, it is not sweet like ensure or boost.
The OC said they will take out my peg Friday. He seemed to think it wasn't infected.
large lymph node Left Neck around May 22 2012 ENT June 6, did needle Biopsy - Negative ENT CT scan July 9 - Negative Remove lymph node July 26, DX - SSC - T1N2aM0 PET Aug 7, BOT Aug 14, endoscopy, 1cm - clear margin HPV+ TX 33 IMRT - 6 Chemo - Taxol/Carboplatin TX chemo 09/04/12 RAD 09/05/12 | | | | Joined: Jan 2009 Posts: 1,844 Patient Advocate (1000+ posts) | Patient Advocate (1000+ posts) Joined: Jan 2009 Posts: 1,844 | I was on a PEG for almost 2 years...it was a liberating moment coming off of it. Really helped intimacy too  Yeehaw!
Young Frack, SCC T4N2M0, Cisplatin,35+ rads,ND, RT Mandiblectomy w fibular free flap, facial paralysis, "He who has a "why" to live can bear with almost any "how"." -Nietzche "WARNING" PG-13 due to Sarcasm & WAY too much attitude, interact at your own risk.
| | | | Joined: Dec 2010 Posts: 5,264 Likes: 5 "OCF Canuck" Patient Advocate (old timer, 2000 posts) | "OCF Canuck" Patient Advocate (old timer, 2000 posts) Joined: Dec 2010 Posts: 5,264 Likes: 5 | :o) Charm I did a kill two birds with one stone post.. the garlic comment was for you... the cold comment was for mikey
on the other had I think I have a sinus thingi ( cold etc.. ) going on so it could be the meds.
hugs all.
Cheryl : Irritation - 2004 BX: 6/2008 : Inflam. BX: 12/10, DX: 12/10 : SCC - LS tongue well dif. T2N1M0. 2/11 hemigloss + recon. : PND - 40 nodes - 39 clear. 3/11 - 5/11 IMRT 33 + cis x2, PEG 3/28/11 - 5/19/11 3 head, 2 chest scans - clear(fingers crossed) HPV-, No smoke, drink, or drugs, Vegan
| | | | Joined: Aug 2012 Posts: 71 Supporting Member (50+ posts) | OP Supporting Member (50+ posts) Joined: Aug 2012 Posts: 71 | Well the PEG is Out!!!!! They pulled it out (they told me that cutting it and pushing it into the stomach is old school). Kinda sore. Was not infected, they said.
Still some congestion in chest but feel better....
Oh, the Jevity 1.5 cans say that you can drink it or PEG it. It kinda smells and tastes like baby formula I guess, sort of thick and not too hard to swallow. Not a strong taste....
Thanks everyone. later
large lymph node Left Neck around May 22 2012 ENT June 6, did needle Biopsy - Negative ENT CT scan July 9 - Negative Remove lymph node July 26, DX - SSC - T1N2aM0 PET Aug 7, BOT Aug 14, endoscopy, 1cm - clear margin HPV+ TX 33 IMRT - 6 Chemo - Taxol/Carboplatin TX chemo 09/04/12 RAD 09/05/12 | | | | Joined: Dec 2010 Posts: 5,264 Likes: 5 "OCF Canuck" Patient Advocate (old timer, 2000 posts) | "OCF Canuck" Patient Advocate (old timer, 2000 posts) Joined: Dec 2010 Posts: 5,264 Likes: 5 | Glad it's gone and icky on the jevity.l Congrats on getting through it. Mine was simply yanked out I could have done it. 
Cheryl : Irritation - 2004 BX: 6/2008 : Inflam. BX: 12/10, DX: 12/10 : SCC - LS tongue well dif. T2N1M0. 2/11 hemigloss + recon. : PND - 40 nodes - 39 clear. 3/11 - 5/11 IMRT 33 + cis x2, PEG 3/28/11 - 5/19/11 3 head, 2 chest scans - clear(fingers crossed) HPV-, No smoke, drink, or drugs, Vegan
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