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Katie B #156767 10-26-2012 10:21 AM
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Posts: 58
"OCF across the pond"
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Dear Charm

Can I ask you what is your profession?

I am just curious what is the background of a person who is so strictly opposing the Secret. Or is it because you are a cancer patient and that's why you disbelieve in all this woo woo and phoney baloney as you said?

All the best,

Max

Last edited by Max1987; 10-26-2012 10:34 AM.

25/09/12 - diagnosis: lateral left side tongue moderate SCC (10-15mm)
15/10/12 - operation: partial glossectomy + neck dissection
17/11/12 - operation: excision of the tongue scar (or extensive biopsy)
26 y.o., non-smoker, social drinker
Max1987 #156768 10-26-2012 10:41 AM
Joined: Mar 2008
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Max

I am a retired lawyer, who started out in criminal defense but could not stand to get guilty clients set free, then went into medical malpractice where I learned out to read between the lines of bullshit medical studies and fake medical claims. In both of those, I got tired of asking the client's, "how much justice can you afford", so I switched to being a state civil prosecutor protecting those discriminated for jobs on account of their race, sex, handicap, etc. The Department of Justice in DC recruited me to deal with police departments then I was promoted over to Treasury to handle big million dollar cases involving cities not paving streets or providing sewer services or highways on account of discrimination but did not realize that certain politicians g did not really want me to win those cases so the Dept of Treasury dissolved my whole agency for "fiscal reasons".
I then headed up enforcement of the Foreign Assets Control laws against funding terrorists and trained US Custom Agents.
Again, I offended the wrong high ranking people by making a big bank pay a million dollar fine so I was shipped over to the IRS as punishment. Luckily for me, they needed someone to protect them from the vendors of computer equipment and fake technology promises and the high priced outside consultants (very much like the Secret type people peddling woo woo, only with a technological veneer). Suddenly, being a "mad dog" litigator was an asset. I had a lot of fun with some great IT people modernizing the agency so you can e-file with only a PIN instead of having to buy a PKI certificate.
I retired when the cancer hit me with the highest award possible: The Albert Gallatin Award from Treasury.
So, while I am not a medical doctor, I have ripped them to shreds in depositions and know how to spot phony studies.
Plus I got used to being the only one to speak the truth to power and call fools fools.
Now I police the OCF board for woo woo, fake science, fake cures, quackademic medicine in addition to sharing tips and tricks that got me through three rounds of cancer.
I hope you behave yourself here for your own sake
If you persist in trying to spread lies and false hope, I will ask that you be banned from the OCF board.
We don't allow "discussion" of theories that blame the cancer patient for not following fake laws of attraction.
Charm

Last edited by Charm2017; 10-26-2012 10:44 AM. Reason: typos

65 yr Old Frack
Stage IV BOT T3N2M0 HPV 16+
2007:72GY IMRT(40) 8 ERBITUX No PEG
2008:CANCER BACK Salvage Surgery
25GY-CyberKnife(5) 3 Carboplatin
Apaghia /G button
2012: CANCER BACK -left tonsilar fossa
40GY-CyberKnife(5) 3 Carboplatin

Passed away 4-29-13
Katie B #156769 10-26-2012 11:00 AM
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Posts: 58
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Charm

Thank you for the story from your life.

Of course I respect the rules and the policy of this forum. Although the law of attraction worked for me many times, I am not going to promote it here. It is not about "blame the cancer patient for not following fake laws of attraction" (cited from your last sentence), but it is rather about patient's belief that his/her desease will be cured and the patient will be fit and healthy. Whatever treatment a patient chooses (medical or woo woo - everyone has a right to choose), you will agree that our mind should be set for the bright future and positiveness that this terrible desease will be treated.

In my opinion, human being's thought is the strongest power in the universe. Do you agree?

Max

Last edited by Max1987; 10-26-2012 11:01 AM.

25/09/12 - diagnosis: lateral left side tongue moderate SCC (10-15mm)
15/10/12 - operation: partial glossectomy + neck dissection
17/11/12 - operation: excision of the tongue scar (or extensive biopsy)
26 y.o., non-smoker, social drinker
Katie B #156770 10-26-2012 11:59 AM
Joined: Jan 2009
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Gentlemen,

This thread is about Katie, so Max if you wish to continue this discussion with Charm, please do so in a Private Message so as not to detract from the original topic so that "Katie" get's the answers and support she needs.

Thanks for the cooperation here, Charm as always, thank you for everything you do and have done for OCF over the years.


Young Frack, SCC T4N2M0, Cisplatin,35+ rads,ND, RT Mandiblectomy w fibular free flap, facial paralysis, "He who has a "why" to live can bear with almost any "how"." -Nietzche "WARNING" PG-13 due to Sarcasm & WAY too much attitude, interact at your own risk.
Katie B #156773 10-26-2012 12:21 PM
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Boys!!!! As I mentioned in my post apologizing to Katie about the hijack....this is NOT a discussion.

The offending links have been removed and I do not want to be forced to shut down Katie's thread but I will if this continues. As I mentioned in my previous post, any discussions will be thru PMs and NOT on this thread. It is not fair to someone who comes here for help to be subjected to anything but respect and assistance. When someone asks questions on the forum they should be answered and by leading the conversation in another direction that is called hijacking. I do not want to see this topic taken over to another thread either.

This is the final post about anything other than Katie's questions. Thank you in advance for respecting the rules of the forum and being polite!



Christine
SCC 6/15/07 L chk & by L molar both Stag I, age44
2x cispltn-35 IMRT end 9/27/07
-65 lbs in 2 mo, no caregvr
Clear PET 1/08
4/4/08 recur L chk Stag I
surg 4/16/08 clr marg
215 HBO dives
3/09 teeth out, trismus
7/2/09 recur, Stg IV
8/24/09 trach, ND, mandiblctmy
3wks medicly inducd coma
2 mo xtended hospital stay, ICU & burn unit
PICC line IV antibx 8 mo
10/4/10, 2/14/11 reconst surg
OC 3x in 3 years
very happy to be alive smile
Katie B #156774 10-26-2012 02:52 PM
Joined: Sep 2012
Posts: 58
"OCF across the pond"
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Katie, apologies for hijacking your thread!

Admins, please delete all our post that are not relevant to Katie's problem. I accept that it's not fair on Katie that we are discussing here totally different things that are not relevant to her problem and admit it as my fault. Sorry.

Charm, if you wish to continue our philosophical discussion then feel free to post via PM. Otherwise we can finish where we are.



25/09/12 - diagnosis: lateral left side tongue moderate SCC (10-15mm)
15/10/12 - operation: partial glossectomy + neck dissection
17/11/12 - operation: excision of the tongue scar (or extensive biopsy)
26 y.o., non-smoker, social drinker
Katie B #156782 10-26-2012 05:05 PM
Joined: Oct 2012
Posts: 33
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I didn't sign on for a few days and came back to see that this thread has gone way off on a tangent from my original posting. I didn't even see Max's links that have been removed.

I am here to learn more about my condition from those who have had medical treatment. I am newly diagnosed and am still processing the disbelief, anger, frustration, and shock that goes along with a cancer diagnosis. When I questioned whether stress brought this on, it was more of a question to the universe; why is this happening to me? What did I do? Etc.. I know I didn't give myself this awful disease.

I appreciate everyone's willingness to be helpful and answer everyone's questions. I have already learned a lot from this site.

Thank you Christine, Eric and Charm for moderating.


10/2/12 Surgery Dx Stage II SCC RLT
11/12/12 Further tongue resec and SND. 3 of 22 lymph + SCC Stage IVa
11/22/12 Hospitalized for infection incision at neck
12/5/13 PET scan tumor at BOT
12/26/12-2/27/13 RT and Cisplatin
4/1/13-5/17/13 3 rounds of Cisplatin, Taxotere and 5-FU
7/19/13 Pet Scan possible recurrence
8/23/13 2nd op at MSKCC, CT Scan
8/31/13 MRI. Both show sizeable mass
9/11/13 CT-guided needle BX + SCC
10/1/13 Erbitux, Cisplatin and Taxotere
2/14/14 Passed away
Katie B #156785 10-26-2012 05:12 PM
Joined: Nov 2009
Posts: 493
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Katie,
Sometimes there really IS no reason. I never smoked in my life, was a light drinker, and was negative for HPV. I was also very healthy. When I was hospitalized for my surgery they asked me when was the last time I had been hospitalized. I said, "Well, my son is 30 years old..." So, cancer was the first time I had been sick other than routine colds and flu. I go through the same thoughts myself, even now that I am three years out of treatment. My ENT said that it could possibly be some sort of virus, probably one that hadn't even been discovered yet.


Female, nonsmoker, 70, diag. 5/09 after tongue biopsy: stage IV. Left hemi-gloss. and left selec. neck disec. 30 lymph nodes removed May 20. Over 7 weeks daily rads. with three chemo. PEG removed 12/4/09 Am eating mostly soft foods. Back to work 11/09 Retired 4/1/11. 7 clear scans! Port out 9/11. 2/13. It's back: base of tongue, very invasive
surgery involving lifestyle changes. 2/14: Now speaking w/Passey-Muir valve. Considering a swallow study. Grateful to be alive.
Katie B #156790 10-26-2012 06:52 PM
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Katie,

Thank you for verbalizing that thought by the way, as they are exactly the ones I had shortly after diagnosis. Some of us may never know the "reason" we got this awful disease, like my friend told me "Eric it's like you won the lottery, only not the lottery anyone would want to win.".

As a poker player I guess I look at it as I've been dealt a hand, and it's not the hand I've been dealt that counts, but the way I play that hand. I've always admired those examples in history personally.


Young Frack, SCC T4N2M0, Cisplatin,35+ rads,ND, RT Mandiblectomy w fibular free flap, facial paralysis, "He who has a "why" to live can bear with almost any "how"." -Nietzche "WARNING" PG-13 due to Sarcasm & WAY too much attitude, interact at your own risk.
Katie B #156791 10-26-2012 07:05 PM
Joined: Oct 2012
Posts: 5
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Hi Katie,
I also am newly diagnosed. I had a sore on the left side of my tongue. Had a biopsy which determined SCC. At that time I was told I was stage 1. I had surgery on the left side of my tongue and neck dissection removing 45 lymph nodes. Cancer was found in 3 lymph nodes and I tested positive for perineurol invasion and lymphatic vascular invasion. I suddenly became stage 4. I begin radiation and chemo on Nov 5. It has been a rough road but doable. It is true you don't know how strong you are until you have to be strong! Hang in there and contact me privately if you want to discuss.

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