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Joined: Jun 2007
Posts: 10,507
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Administrator, Director of Patient Support Services
Patient Advocate (old timer, 2000 posts)
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Administrator, Director of Patient Support Services
Patient Advocate (old timer, 2000 posts)

Joined: Jun 2007
Posts: 10,507
Likes: 8
Garrett, a CCC is a comprehensive cancer center. They are the top cancer facilities in the US. A whole team of specialists discuss each individual case and work together to develop a treatment plan for each patient. They follow NCI guidelines which lays out what course of treatment will give the patient the best outcome.

Cancer Centers


Christine
SCC 6/15/07 L chk & by L molar both Stag I, age44
2x cispltn-35 IMRT end 9/27/07
-65 lbs in 2 mo, no caregvr
Clear PET 1/08
4/4/08 recur L chk Stag I
surg 4/16/08 clr marg
215 HBO dives
3/09 teeth out, trismus
7/2/09 recur, Stg IV
8/24/09 trach, ND, mandiblctmy
3wks medicly inducd coma
2 mo xtended hospital stay, ICU & burn unit
PICC line IV antibx 8 mo
10/4/10, 2/14/11 reconst surg
OC 3x in 3 years
very happy to be alive smile
Joined: Sep 2012
Posts: 13
Garrett Offline OP
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Joined: Sep 2012
Posts: 13
Thanks for the clarification about the CCC's. So Yes and No. I went thru Penn Medicine as a whole. They have two cancer centers. My doctor, who happens to specialize in sarcoma practiced out of the center that was not designated a "CCC" but he's one of the two or three sarcoma specialists within 40 or 50 miles of my home... at least. I felt he was a good choice. In my opinion, definitely took great and consideration making treatment plans for me.

I also know Penn Medicine happens to have something called a "tumor board" where large teams of different specialists discuss treatment options (I'm not sure if it was for all patients, but I know for a fact I was discussed).

I'm by no means a medical professional, but I do have an educational background in bio/chem so explanations had the potential to go in depth. I asked tons of questions and felt pretty good about most answers. I'd say the only thing I really rushed into was the surgery itself, just because I personally believe I've had the mass for a long time and wanted it out.

Wendy - Thank you for that awesome reply. I appreciate it.

Thank you all.


Wrong DX since 05
Tx Since 11/10 3 KTP laser surgeries
Correct DX Sarcoma Tongue 9/11
5 cycles doxerubicin + ifex 11/11
35x IMRT 03/12
Near Total Glssctmy/Right Nck Dsct + Trach + PEG 9/7/12
Recovering Nicely.
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