Thanks for the clarification about the CCC's. So Yes and No. I went thru Penn Medicine as a whole. They have two cancer centers. My doctor, who happens to specialize in sarcoma practiced out of the center that was not designated a "CCC" but he's one of the two or three sarcoma specialists within 40 or 50 miles of my home... at least. I felt he was a good choice. In my opinion, definitely took great and consideration making treatment plans for me.

I also know Penn Medicine happens to have something called a "tumor board" where large teams of different specialists discuss treatment options (I'm not sure if it was for all patients, but I know for a fact I was discussed).

I'm by no means a medical professional, but I do have an educational background in bio/chem so explanations had the potential to go in depth. I asked tons of questions and felt pretty good about most answers. I'd say the only thing I really rushed into was the surgery itself, just because I personally believe I've had the mass for a long time and wanted it out.

Wendy - Thank you for that awesome reply. I appreciate it.

Thank you all.


Wrong DX since 05
Tx Since 11/10 3 KTP laser surgeries
Correct DX Sarcoma Tongue 9/11
5 cycles doxerubicin + ifex 11/11
35x IMRT 03/12
Near Total Glssctmy/Right Nck Dsct + Trach + PEG 9/7/12
Recovering Nicely.