| | Joined: Jul 2012 Posts: 28 Contributing Member (25+ posts) | OP  Contributing Member (25+ posts)
Joined: Jul 2012 Posts: 28 | This was so interesting. I was looking for ANY suggestions on food I might could enjoy. I took my 12th rad today and I'm down to 180 from 210. I'm getting scared. Doc says not to use my PEG until I absolutely can't stand to eat oraly. I'm trying to maintain 3 meals a day but they are small. Eggs in the morn, soups and stews for lunch and supper. It's such a chore to eat.
I think I'm going to try the baked beans, fruit cups.
Also, I'm only drinking water. Is this ok? Do I need juice or some other form of liquid.
The mucous makes me nasuea's all the time.
Last edited by ChristineB; 09-22-2012 03:56 AM.
Age 35, Former smoker/drinker HPV+
Ear Ache 5/12
GP for ear ache 6/18
ENT for ear ache 7/12
CT shows cancer 7/12
Biopsy 8/12
diagnosed SCC
Base of tongue right side
Barely crossed midline
Nodes involved
PEG 9/12
35 IMRT start Sept 6th
Cisplastin x3 1 down 2 to go
| | | | | Joined: Jun 2007 Posts: 10,507 Likes: 7 Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) | | Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 10,507 Likes: 7 | Your doctor is right. Dont worry about how long it takes you to eat, just do it. You must swallow every single day and watch your intake very closely. The tube is a tool to suppliment your diet. Here is a list of easy to eat foods. List of Easy to Eat Foods PS.. Your post was moved to its own thread. If you need help navigating please let me know.
Last edited by ChristineB; 09-22-2012 04:02 AM.
ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive  | | | | | Joined: Sep 2006 Posts: 8,311 Senior Patient Advocate Patient Advocate (old timer, 2000 posts) | | Senior Patient Advocate Patient Advocate (old timer, 2000 posts)
Joined: Sep 2006 Posts: 8,311 | You need calories and tons of them. You also probably want to consume them as fast as possible so if I were you I would start buying cases of Boost VHC which has appx 560 cals in a small 8 oz can. If you only drink 6 of those a day, you'll get over 3000 cals. Also don't forget about water, at least 48ozs a day. Helps fend off the dreaded Big C.
David
Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
| | | | | Joined: Oct 2011 Posts: 805 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: Oct 2011 Posts: 805 | That's a lot of weight in not much time. Eat man eat. You don't have to like it and it won't be fun, but eat! Make milkshakes with some protein powder and lots of ice cream and whole milk. I would make those for Kevin every couple of days. It would take him an hour to drink it, but it had tons of calories in it. He still lost a lot of weight though.
Kathy
Kathy wife/caregiver to:
Kevin age:53
Dx 7/15/11
HPV16+ SCC Stage IV BOT/R
Non smoker, casual drinker
7/27/11 Cistplatin, taxotere,5FU 2/3week sessions, followed by IMRT 125cgy x 60 (2x daily) w/Erbitux weekly. Last rad 10/26/11. Last Erbitux 10/27/11
PEG placed 9/1/11 Removed 11/8/11
Clear PET 10/12 and 10/13 and ct in 6/14
| | | | | Joined: Jul 2012 Posts: 28 Contributing Member (25+ posts) | | OP Contributing Member (25+ posts)
Joined: Jul 2012 Posts: 28 | I gained a few pounds this week. Not looking to be so lucky next week with the chemo treatment Monday.
Whats the dreaded Big C.
Age 35, Former smoker/drinker HPV+
Ear Ache 5/12
GP for ear ache 6/18
ENT for ear ache 7/12
CT shows cancer 7/12
Biopsy 8/12
diagnosed SCC
Base of tongue right side
Barely crossed midline
Nodes involved
PEG 9/12
35 IMRT start Sept 6th
Cisplastin x3 1 down 2 to go
| | | | | Joined: Nov 2006 Posts: 2,671 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Nov 2006 Posts: 2,671 | To answer your question: "Whats the dreaded Big C" - it's the word nobody likes to say: "Cancer". It's also known as the "Cancer Beast". We're all here to Zap it, Destroy it and make it History! And you are on your way to doing just that! So Eat, Eat, Eat!! Maybe 6 small meals instead of 3? It's good you gained a few pounds this week. You say: "Not looking to be so lucky next week with the chemo treatment Monday." If you can manage to get a mental picture of being VERY lucky next week and doing really well with eating, you might do better than you are anticipating. It couldn't hurt to substitute the negative thought with a positive one. Hang in there and you WILL get through it! Maybe you need a cheerleader section? My son's 5 year old daughter and I would jump up and down and cheer loudly if my son just managed to eat one noodle in his chicken soup!
Anne-Marie
CG to son, Paul (age 33, non-smoker) SCC Stage 2, Surgery 9/21/06, 1/6 tongue Rt.side removed, +48 lymph nodes neck. IMRTx28 completed 12/19/06. CT scan 7/8/10 Cancer-free! ("spot" on lung from scar tissue related to Pneumonia.)
| | | | | Joined: Sep 2006 Posts: 8,311 Senior Patient Advocate Patient Advocate (old timer, 2000 posts) | | Senior Patient Advocate Patient Advocate (old timer, 2000 posts)
Joined: Sep 2006 Posts: 8,311 | I use the Big C to mean Constipation.
David
Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
| | | | | Joined: Nov 2006 Posts: 2,671 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Nov 2006 Posts: 2,671 | Thanks David for clarifying and I do like your definition so much better! That is so funny! Although your Big C can be troublesome. . . . and not that funny. I think I may just be confused between Big C and Little c.  And that's all I'm going to say about that.
Last edited by Anne-Marie; 09-27-2012 05:37 PM. Reason: confusion
Anne-Marie
CG to son, Paul (age 33, non-smoker) SCC Stage 2, Surgery 9/21/06, 1/6 tongue Rt.side removed, +48 lymph nodes neck. IMRTx28 completed 12/19/06. CT scan 7/8/10 Cancer-free! ("spot" on lung from scar tissue related to Pneumonia.)
| | | | | Joined: Sep 2006 Posts: 8,311 Senior Patient Advocate Patient Advocate (old timer, 2000 posts) | | Senior Patient Advocate Patient Advocate (old timer, 2000 posts)
Joined: Sep 2006 Posts: 8,311 | IMO there is NOTHING little about Constipation! I suffered from it during the throws of my Tx and if the pain I experienced is ANYTHING like child birth as I was told then you Moms are something!
David
Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
| | | | | Joined: Nov 2006 Posts: 2,671 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Nov 2006 Posts: 2,671 | Well, since I've done both, I can say that I enjoyed childbirth quite a bit more. Not so much with the Big C, when I think of trying to assume the position on the floor to match the little picture that came with the Fleet thingy, with my glasses falling off, my arthritis getting in the way and then trying to reach for my iPhone so I could count the minutes before I could move to the next step on the chart. Uh-Uh - Hope I never have to do that again! Now on the other hand, when you give birth, and the delightful product of your efforts sees the light of day, everybody cheers and says "Good Job!" And Beautiful Baby! And it's a big celebration!
You don't get that with the Big C. At least I didn't.
Anne-Marie
CG to son, Paul (age 33, non-smoker) SCC Stage 2, Surgery 9/21/06, 1/6 tongue Rt.side removed, +48 lymph nodes neck. IMRTx28 completed 12/19/06. CT scan 7/8/10 Cancer-free! ("spot" on lung from scar tissue related to Pneumonia.)
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