| | Joined: Jun 2008 Posts: 475 Platinum Member (300+ posts) | | Platinum Member (300+ posts)
Joined: Jun 2008 Posts: 475 | Thank you to all who donated or participated in the April oral cancer awareness events.
It was a busy month for OCF, a record number of walks were held around the country! My goal is to have at least one walk in each state, and we are getting there.
I receive calls every day of someone wanting to do something, it is so wonderful to talk to such passionate people who want to make a difference!
Keep checking our events site, we have events coming up in Florida, Texas, Minnesota, Colorado, Chicago, New Jersey, Ohio, Massachussetts, Pennsylvania, Rhode Island, California and Iowa!! Just to name a few!
Thank you again and if anyone wants to start something in their community, please let me know.
All my best,
Susan
Susan Lauria - OCF Director of Events - Always looking for volunteers to help spread the word about early detection! Contact me if you can help!
*Brother passed away from tongue cancer in 2006 at age 47, was co-caregiver, he was non-smoker/casual drinker
LETS MAKE ORAL CANCER HISTORY!
| | | | | Joined: Jul 2010 Posts: 531 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: Jul 2010 Posts: 531 | Is there a form somewhere to use to get donations from work and friends and neighbors? You know something legal looking so they can see it IS for OCF?
Thanks!
CG to Ron
Out of Pain 4/3/13
4/12-lung and under chin growth no treatment
1/13/12 lung biopsy
6/11 recur 6/30 resection #2 Clear margins
Clear 12/10
Surg 5/13/10 neck dis/nodes part gloss/flap R thigh all teeth out
RAD 30 8/10
DX 4/2/10 "Oral Cavity" T3NOMO
12/28/07 Non Hodg Lymph remission 7/08
passed away 4.3.15, RIP Ron, you are greatly missed
| | | | | Joined: Jun 2008 Posts: 475 Platinum Member (300+ posts) | | Platinum Member (300+ posts)
Joined: Jun 2008 Posts: 475 | Currently, we have our website/donor drive where people can go and donate and also receive an online receipt for tax purposes. Also we do have donation envelopes we can send you from our main office you can pass out to friends/family/co-workers. Just send me your address in a PM and I will get some out to you. Is this what you were looking for? Thanks Susan
Susan Lauria - OCF Director of Events - Always looking for volunteers to help spread the word about early detection! Contact me if you can help!
*Brother passed away from tongue cancer in 2006 at age 47, was co-caregiver, he was non-smoker/casual drinker
LETS MAKE ORAL CANCER HISTORY!
| | | | | Joined: Mar 2002 Posts: 4,918 Likes: 71 OCF Founder Patient Advocate (old timer, 2000 posts) | | OCF Founder Patient Advocate (old timer, 2000 posts)
Joined: Mar 2002 Posts: 4,918 Likes: 71 | Straight donations not associated with an event or with someone's personal campaign to raise money for OCF are here http://www.ocfstore.org/donate.aspThey can print out a copy of their donation invoice at the end of the process for their IRS records. If it is related to an event, they can select the event, then the person or team that they wish to support here http://donate.oralcancer.org/index.cfm?fuseaction=donorDrive.homeAs above, they can print out at the end of their process a receipt for the IRS. Suez, if you are gong to work to raise money (thank you for considering doing this for the foundation), I suggest that you create a personal campaign like Christine Brader has done, and which you can see on the home page of our Donor Drive software. It allows you to tell people what and why your are doing this, upload a photo, does it all online from any computer, and then tracks your totals for all to see. You can share the campaign on Facebook and other platforms to expand your reach and success. If you have difficulty in setting this up, just call Jamie at the OCF office or send her a note by email, and she will walk you through it. 949-723-4400
Brian, stage 4 oral cancer survivor. OCF Founder and Director. The first responsibility of a leader is to define reality. The last is to say thank you. In between, the leader is a servant.
| | | | | Joined: Jun 2007 Posts: 10,507 Likes: 8 Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) | | Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 10,507 Likes: 8 | There are still several OCF events coming up all around the country. Anyone able to attend PLEASE do! Just take a few hours out of your day to show support for OCF. At the awareness walks there are free oral cancer screenings so bring your friends and relatives to get checked. Oral cancer patients/survivors are free to attend the walks. Check out the link to see if there is a walk near you..... OCF upcoming events
Last edited by ChristineB; 09-16-2012 09:24 PM.
ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive  | | | | | Joined: Nov 2006 Posts: 2,671 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Nov 2006 Posts: 2,671 | I've been checking the events coming up and noticed that many of the events listed on the main page don't show where or what the dates are until you click on the event itself. So if you want to know the dates for all of them to see if one is close to you, it is necessary check the whole list. Well, I did that so now I know where to go and when.
Then I noticed on the little calendar to the right of this page, you can click on the month and you get a big calendar that you can list events in! So I listed the David Nasto Memorial Walk for September 22, 2012 and the only thing is that the OCF calendar says September 22 is on a Friday and my iPhone calendar says Sept 22 is on a Saturday. Also, I'm assuming the OCF calendar is for personal use? Is there some way the upcoming events could be listed there for everyone to see? It would be a way we could all see what events are coming up. Just a thought.
Anne-Marie
CG to son, Paul (age 33, non-smoker) SCC Stage 2, Surgery 9/21/06, 1/6 tongue Rt.side removed, +48 lymph nodes neck. IMRTx28 completed 12/19/06. CT scan 7/8/10 Cancer-free! ("spot" on lung from scar tissue related to Pneumonia.)
| | | | | Joined: Mar 2002 Posts: 4,918 Likes: 71 OCF Founder Patient Advocate (old timer, 2000 posts) | | OCF Founder Patient Advocate (old timer, 2000 posts)
Joined: Mar 2002 Posts: 4,918 Likes: 71 | There is an option to make a posting on what is normally your private calendar, to make a event date public. I have put a test event up in November if you can see it please let me know.
Brian, stage 4 oral cancer survivor. OCF Founder and Director. The first responsibility of a leader is to define reality. The last is to say thank you. In between, the leader is a servant.
| | | | | Joined: Jan 2009 Posts: 1,844 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: Jan 2009 Posts: 1,844 | Suez...Good job on the fund raising by the way my friend! I knew you would do well and it looked like you really got into it!
I know this year has been fun for me, participating in the San Antonio walk, then Chicago and then helping organize the Seattle event. They are so fun, inspiring, life changing in my opinion. I'm glad you plugged in Sue and you really did fantastic at getting the word out on FB! Way to go girl!!
Young Frack, SCC T4N2M0, Cisplatin,35+ rads,ND, RT Mandiblectomy w fibular free flap, facial paralysis, "He who has a "why" to live can bear with almost any "how"." -Nietzche "WARNING" PG-13 due to Sarcasm & WAY too much attitude, interact at your own risk.
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