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#14863 02-02-2004 03:44 AM
Joined: Jan 2004
Posts: 64
Supporting Member (50+ posts)
OP Offline
Supporting Member (50+ posts)

Joined: Jan 2004
Posts: 64
I just wanted to thank everyone again, more recently, Dinah and Julie, for your support and well wishes. I am really glad to hear that everyone is doing so well after all the struggle they have been through. I've just made an appointment for tomorrow with my medical oncologist. I actually moved my appointment up 2 weeks because I just can't shake this sinking feeling. I should probably jump over to the symptoms forum, but I just wondered if anyone could shed some light on recurrence. I've spent most of the weekend on line and of course am more confused now than ever. (I did manage to watch the superbowl though. What a game!) Aside from this general malaise, I've been feeling lightheaded with a pressure in the back of my head. Of course I have pain and stiffness in my neck, but it seems unusally worse. I also have tingling/numbness in the roof of my mouth. Mostly when my mouth is dry, when I swallow, I have pain that shoots to my ear, mostly the right one and then I experience tingling on my chin and around my mouth. Also, I still have that feeling that something is stuck or rather someone has their hand around my throat. None of these feelings are persistent, however the numbness on the roof of the mouth seems to be more frequent. I know how I must sound. My husband thinks I'm a pessimist. I think I'm a realist who just wants to be prepared. If anyone has felt these symptoms, please let me know. Or even if you haven't...

Thanks again,

Kelley


SCC tonsil(left) with contralateral mets. Modified right neck disection August, 2002. 33 rads(62 gy)both sides of neck and 3 cycles cisplatin completed October 25, 2002. 34 yo at time of diagnosis
#14864 02-02-2004 03:36 PM
Joined: Jul 2003
Posts: 1,163
Patient Advocate (1000+ posts)
Offline
Patient Advocate (1000+ posts)

Joined: Jul 2003
Posts: 1,163
Hi Kelly.

Your feelings are normal. I am only 7 months post surgery (right Tonsil Stage 4) and 10 weeks post Rad. (IMRT) I think everyone who has cancer has negative thoughts. The trick is to get allot of support from your family and friends. Always know you can come here and receive both support and some good advise. You are not alone!!!! I can't really add much to what the others have posted but I will be praying you are wrong about a reoccurance. Take care and let us know how you are doing.

Are you as sick as shoveling snow as I am???

Your Friend, Dan Bogan


Daniel Bogan DX 7/16/03 Right tonsil,SCC T4NOMO. right side neck disection, IMRT Radiation x 33.

Recurrance in June 05 in right tonsil area. Now receiving palliative chemo (Erbitux) starting 3/9/06

Our good friend and loved member of the forum has passed away RIP Dannyboy 7-16-2006
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