| | Joined: Jan 2009 Posts: 1,844 Patient Advocate (1000+ posts) | OP  Patient Advocate (1000+ posts)
Joined: Jan 2009 Posts: 1,844 | Hey Guys! Here is a very cool event being put on by CURE Magazine with our new friends at Dental Oncology Professionals of N. Texas' own Dr. Dennis Abbott, DDS. DOPNT are supporters of OCF and are hosting a screening event for us for Oral Cancer Awareness Month! I've had the pleasure of talking with Dr. Abbott and Noberto Diaz, their PR man, and they are passionate about working with OCF and helping us raise awareness! This is going to be a great opportunity to get questions answered from a specialist who's passionate about helping patients get through it and I hope you are able to participate! https://www.facebook.com/events/197841053663971/Thursday Noon-1PM Central Time (1PM ET, 10AM Pacific) Strength in Numbers!
Young Frack, SCC T4N2M0, Cisplatin,35+ rads,ND, RT Mandiblectomy w fibular free flap, facial paralysis, "He who has a "why" to live can bear with almost any "how"." -Nietzche "WARNING" PG-13 due to Sarcasm & WAY too much attitude, interact at your own risk.
| | | | | Joined: Jun 2007 Posts: 10,507 Likes: 7 Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) | | Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 10,507 Likes: 7 | Eric, I have alot on my plate right now but I will try really hard to help with this. I did put a question out there already.
ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive  | | | | | Joined: Jan 2009 Posts: 1,844 Patient Advocate (1000+ posts) | | OP Patient Advocate (1000+ posts)
Joined: Jan 2009 Posts: 1,844 | Thanks Christine you do so much for so many people, I have no idea how you do it! I'm just very thankful that you do!
Thursday is a crazy day for me too as I'm getting ready to fly out early the next day for San Antonio however Dr. Abbott and Norberto are really great guys and are excited to partner with OCF. I hope we have a good turn out, I've already seen questions posted by other OCF members so I think it will be.
Young Frack, SCC T4N2M0, Cisplatin,35+ rads,ND, RT Mandiblectomy w fibular free flap, facial paralysis, "He who has a "why" to live can bear with almost any "how"." -Nietzche "WARNING" PG-13 due to Sarcasm & WAY too much attitude, interact at your own risk.
| | | | | Joined: Jun 2007 Posts: 10,507 Likes: 7 Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) | | Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 10,507 Likes: 7 | Hope you are taking your laptop with you to help me keep up with the admin stuff over the weekend. I will be traveling too but will still be keeping an eye on the forum from Nashville.
ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive | | | | | Joined: Jan 2009 Posts: 1,844 Patient Advocate (1000+ posts) | | OP Patient Advocate (1000+ posts)
Joined: Jan 2009 Posts: 1,844 | laptop, phone, I be connected my dear friend and will be "on the case"
Young Frack, SCC T4N2M0, Cisplatin,35+ rads,ND, RT Mandiblectomy w fibular free flap, facial paralysis, "He who has a "why" to live can bear with almost any "how"." -Nietzche "WARNING" PG-13 due to Sarcasm & WAY too much attitude, interact at your own risk.
| | | | | Joined: Feb 2011 Posts: 117 Senior Member (100+ posts) | | Senior Member (100+ posts)
Joined: Feb 2011 Posts: 117 | Christine and Eric, thank you both for all you do "behind the scenes" in addition to all the stuff we can see. I don't know how you do it but you are both such a blessing for the rest of us. Keep up the great work !
DX 12/6/10 of T3 SCC Tongue.
Surgery 1/3/11 was hemigloss & forearm free flap, midline mandibulectomy, Neck Disection-All nodes clear.
Ended rads 5/11/11. Taste buds back to about 80%. PEG removed 4/5/12, experimenting eating real food again. If I can do this, so can you !! Stay Strong.
| | | | | Joined: Oct 2011 Posts: 805 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: Oct 2011 Posts: 805 | Agreed. Thank you to the 2 of you. When this weekend is over, you both need to rest!!! Promise????
Kathy wife/caregiver to:
Kevin age:53
Dx 7/15/11
HPV16+ SCC Stage IV BOT/R
Non smoker, casual drinker
7/27/11 Cistplatin, taxotere,5FU 2/3week sessions, followed by IMRT 125cgy x 60 (2x daily) w/Erbitux weekly. Last rad 10/26/11. Last Erbitux 10/27/11
PEG placed 9/1/11 Removed 11/8/11
Clear PET 10/12 and 10/13 and ct in 6/14
| | | | | Joined: May 2010 Posts: 638 "OCF Down Under" "Above & Beyond" Member (500+ posts) | | "OCF Down Under" "Above & Beyond" Member (500+ posts)
Joined: May 2010 Posts: 638 | so how exactly does a Facebook Chat work? is it everyone typing madly or is there a video link up somewhere? If I am going to drag my backside out of bed at 3am, I want to know EXACTLY what I am supposed to do before I apply my sleep addled brain to the problem
Karen Love of Life to Alex T4N2M0 SCC Tonsil, BOT, R lymph nodes Dx March 2010 51yrs. Unresectable. HPV+ve Tx Chemo x 3+1 cycles(cisplatin,docetaxel,5FU)- complete May 31 Chemoradiation (IMRTx35 + weekly cisplatin) Finish Aug 27 Return to work 2 years on 3 years out Aug 27 2013 NED Still underweight
| | | | | Joined: May 2007 Posts: 622 Likes: 1 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: May 2007 Posts: 622 Likes: 1 | Eric, isn't this 12:NOON Central ? [quote=EricS]Hey Guys! Here is a very cool event being put on by CURE Magazine with our new friends at Dental Oncology Professionals of N. Texas' own Dr. Dennis Abbott, DDS. DOPNT are supporters of OCF and are hosting a screening event for us for Oral Cancer Awareness Month! I've had the pleasure of talking with Dr. Abbott and Noberto Diaz, their PR man, and they are passionate about working with OCF and helping us raise awareness! This is going to be a great opportunity to get questions answered from a specialist who's passionate about helping patients get through it and I hope you are able to participate! https://www.facebook.com/events/197841053663971/Thursday Noon-1PM Central Time (1PM ET, 10AM Pacific) Strength in Numbers! [/quote]
18 YEAR SURVIVOR
SCC Tongue (T3N0M0) diag 06/2006.
No evidence of disease 2010
Another PET 12-2014 pre-HBO, still N.E.D.
�Remember to look up at the stars and not down at your feet. It matters that you don't just give up.�
Stephen Hawking | | | | | Joined: Jan 2009 Posts: 1,844 Patient Advocate (1000+ posts) | | OP Patient Advocate (1000+ posts)
Joined: Jan 2009 Posts: 1,844 | Yep Kevin it's Thursday April 12th Noon Central Time hope you can participate! lol, Karen, there is no video feed it's just a group chat with Dr. Abbott answering questions which you can ask before hand if you can't make it to the chat. I'm sorry about the 3am thing my dear, no way I'm close to cognitive at that time. Kathy, I try not to make promises, especially ones I know I can't keep These guys are great and really excited to help. Dr. Abbott and his team are the good ones that actually give a shhhhh...well you know.
Young Frack, SCC T4N2M0, Cisplatin,35+ rads,ND, RT Mandiblectomy w fibular free flap, facial paralysis, "He who has a "why" to live can bear with almost any "how"." -Nietzche "WARNING" PG-13 due to Sarcasm & WAY too much attitude, interact at your own risk.
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