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Button Type Feeding Tube #147810
04-05-2012 06:37 AM
04-05-2012 06:37 AM
Joined: Feb 2009
Posts: 22
missouri
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sandisays Offline OP
Member
sandisays  Offline OP
Member
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Joined: Feb 2009
Posts: 22
missouri
I've had a tube for three years so its not new to me but had to have it replaced in Feb. the ballon type, had to have it replaced in Mar. another ballon type. Now having that one replaced next week with the button type. Needless to say I am frustrated and would like to hear any pros or cons for the button type. I cannot have the type that must be dragged down my throat which is what I had the first time three years ago.

Re: Button Type Feeding Tube [Re: sandisays] #147816
04-05-2012 10:14 AM
04-05-2012 10:14 AM
Joined: Jun 2007
Posts: 10,364
PA
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ChristineB Offline
Administrator, Director of Patient Support Services
ChristineB  Offline
Administrator, Director of Patient Support Services
Patient Advocate (old timer, 2000 posts)
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Joined: Jun 2007
Posts: 10,364
PA
Hi Sandi!

One of our feeding tube 'experts' Charm recently went thru exactly what you are describing. Here are some links to button discussions.

Good luck!!!!

MicKey Button

Charm's tube issues thread

Last edited by ChristineB; 04-05-2012 10:16 AM.

Christine
SCC 6/15/07 L chk & by L molar both Stag I, age44
2x cispltn-35 IMRT end 9/27/07
-65 lbs in 2 mo, no caregvr
Clear PET 1/08
4/4/08 recur L chk Stag I
surg 4/16/08 clr marg
215 HBO dives
3/09 teeth out, trismus
7/2/09 recur, Stg IV
8/24/09 trach, ND, mandiblctmy
3wks medicly inducd coma
2 mo xtended hospital stay, ICU & burn unit
PICC line IV antibx 8 mo
10/4/10, 2/14/11 reconst surg
OC 3x in 3 years
very happy to be alive smile
Re: Button Type Feeding Tube [Re: sandisays] #147827
04-05-2012 02:49 PM
04-05-2012 02:49 PM
Joined: Mar 2008
Posts: 3,082
Alexandria VA
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Charm2017 Offline
Patient Advocate (old timer, 2000 posts)
Charm2017  Offline
Patient Advocate (old timer, 2000 posts)
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Joined: Mar 2008
Posts: 3,082
Alexandria VA
Sandi

If you are going from a regular G-tube to a low profile or button, then you will really be surprised at how much more comfortable it is than the tube. Both have "balloons" at the end that are inflated with water and hold the tube or button in. I was skeptical at first but now am a true believer. Plus I have done PMs with other OCF members who switched to a button from a tube and they love it also. My idiosyncratic list of pros & cons:
Positives of button:
1 Can be covered with a bandaid for swimming instead of using a third of a roll of press & seal
2. No dangling "cat's tale" to snap in pants or underwear and possibly pull out the tube
3. Can be changed by a caregiver instead of a doctor.
4. Less granulation tissue on stoma
5. Less leakage around the stoma and tube
Negatives of button
1. They average three months before needing a new one while tubes average six months.
2. The anti-reflux valve could clog (the tube has no valve - which is why your stomach contents pour out when you uncap it to put in an extension with the tube but not with the button)

That said, my valve has not clogged at all and I put all types of pills and powders, plus blended regular food down my button. I do think the AMT mini one is better than the Mic-key button but many people love the mic-key and it is the most popular one put in for both tubes and buttons due to market saturation.

Last but not least, there is the possibility that I have misunderstood you and your doctors are planning on putting in a "mushroom" or "button" ended tube that does not use a balloon. In that case, forget all the above. The mushroom is a solid buttton that never breaks or leaks like the balloon. I don't know anyone who has one and their use is not common since the mushroom has to be folded up and pushed with an obduator thru the stoma while the balloon glides in since it's not inflated. They last a long time and many medical articles recommend them. For me, having my wife now able to change my button is very reassuring since one of my feeding tube balloons have burst within a week and my first button's balloon burst in three weeks and I always have to wait 4-5 days before I could get into the Interventional Radiology surgical schedule. That meant keeping the tube in with bandages and tape on my skin. But if your buttons are bursting every month a mushroom ending might be the answer.

It's been a little over three years now that I've only "eaten" thru my feeding tube so I can empathize with your frustration.
Charm

Last edited by Charm2017; 04-05-2012 02:51 PM. Reason: typos

65 yr Old Frack
Stage IV BOT T3N2M0 HPV 16+
2007:72GY IMRT(40) 8 ERBITUX No PEG
2008:CANCER BACK Salvage Surgery
25GY-CyberKnife(5) 3 Carboplatin
Apaghia /G button
2012: CANCER BACK -left tonsilar fossa
40GY-CyberKnife(5) 3 Carboplatin

Passed away 4-29-13

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