| | Joined: Dec 2010 Posts: 5,260 Likes: 3 "OCF Canuck" Patient Advocate (old timer, 2000 posts) |  "OCF Canuck" Patient Advocate (old timer, 2000 posts)
Joined: Dec 2010 Posts: 5,260 Likes: 3 | I think it's very normal. I still get them ocassionally. It should heal soon. Take care
Cheryl : Irritation - 2004 BX: 6/2008 : Inflam. BX: 12/10, DX: 12/10 : SCC - LS tongue well dif. T2N1M0. 2/11 hemigloss + recon. : PND - 40 nodes - 39 clear. 3/11 - 5/11 IMRT 33 + cis x2, PEG 3/28/11 - 5/19/11 3 head, 2 chest scans - clear(fingers crossed) HPV-, No smoke, drink, or drugs, Vegan
| | | | | Joined: Jun 2007 Posts: 10,507 Likes: 7 Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) | | Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 10,507 Likes: 7 | John please add a signature when you can. It makes it so much easier to respond to your questions without having to go way back and reread your posts. There are so many new people that it can be difficult to keep everyone straight (with my memory anyway LOL). It only takes 2 minutes. Look at other members signatures and make one of your own that will show your history.
Signature directions..... Click on the "My Stuff" tab then click on "profile". Scroll to the bottom and type in the white box, click submit. Thanks!
Last edited by ChristineB; 02-22-2012 12:37 AM.
ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive  | | | | | Joined: Feb 2012 Posts: 117 Senior Member (100+ posts) | | OP Senior Member (100+ posts)
Joined: Feb 2012 Posts: 117 | So I have an update. Went to my surgeon and had my staples removed. He noticed the incinsion was infected. He drained where the puss was, took a culture and put a pressure dressing where he drained it. Told me still no word on radiation but he thought they would watch me for a while, possibly a year and reevaluate. The staple removal was pretty painless. So I went on my way with the good news that next week I'd be able to go back to my kids.
So my mom and I went on with our day and we decided to end our day by eating at an itilian restaurant because I could now eat what I want to. This is where my good day changed to a nightmare.
I started eating the pizza I'd been craving and my mom looks over and says "watch out you're getting some on your shirt". Well it wasn't sauce. It was blood spewing out of my neck. Long story short I ended up in the hospital again and had a round of IV antibiotics and am now home, I won't even skim the surface of how horrible the hospital stay was and how horrible the journey was to get there.
I'm hoping this doesn't set me back and I can go see my kids next week. Please keep me in your prayers. Just when I thought I was starting to get it all back the rug was ripped right out from under me again.
Taking a break from the forum for a while. Thank you so much for your support if you've been supportive.
| | | | | Joined: Dec 2010 Posts: 5,260 Likes: 3 "OCF Canuck" Patient Advocate (old timer, 2000 posts) | | "OCF Canuck" Patient Advocate (old timer, 2000 posts)
Joined: Dec 2010 Posts: 5,260 Likes: 3 | Hopefully it was just from your infection, once it clears up you should be okay! it's great they're going to monitor you but definately keep an eye on your neck and get to know what's normal for your mouth - hugs! Try to RA and le yourself heal.
Cheryl : Irritation - 2004 BX: 6/2008 : Inflam. BX: 12/10, DX: 12/10 : SCC - LS tongue well dif. T2N1M0. 2/11 hemigloss + recon. : PND - 40 nodes - 39 clear. 3/11 - 5/11 IMRT 33 + cis x2, PEG 3/28/11 - 5/19/11 3 head, 2 chest scans - clear(fingers crossed) HPV-, No smoke, drink, or drugs, Vegan
| | | | | Joined: Nov 2006 Posts: 2,671 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Nov 2006 Posts: 2,671 | Whew! That was quite a day you had, John - Good thing your Mom was with you to get you to the hospital. Sorry your hospital experience was so difficult, but it's good you are back home and can get on with the healing process. Try to be patient with yourself and make sure your body has the time it needs to heal properly so that you can be in good shape when you get back to your kids. Pre-schoolers can be a very active bunch!
Anne-Marie
CG to son, Paul (age 33, non-smoker) SCC Stage 2, Surgery 9/21/06, 1/6 tongue Rt.side removed, +48 lymph nodes neck. IMRTx28 completed 12/19/06. CT scan 7/8/10 Cancer-free! ("spot" on lung from scar tissue related to Pneumonia.)
| | | | | Joined: Jul 2009 Posts: 1,406 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: Jul 2009 Posts: 1,406 | John - whew is right. A terrible experience and I'm sorry to read that you had to go through it. I hope you're feeling better now and that you're not having any pain. Who knew pizza could be so dangerous??
David 2
SCC of occult origin 1/09 (age 55)| Stage III TXN1M0 | HPV 16+, non-smoker, moderate drinker | Modified radical neck dissection 3/09 | 31 days IMRT finished 6/09 | Hit 14 years all clear in 6/23 | Radiation Fibrosis Syndrome kicked in a few years after treatment and has been progressing since | Prostate cancer diagnosis 10/18
| | | | | Joined: Dec 2010 Posts: 5,260 Likes: 3 "OCF Canuck" Patient Advocate (old timer, 2000 posts) | | "OCF Canuck" Patient Advocate (old timer, 2000 posts)
Joined: Dec 2010 Posts: 5,260 Likes: 3 | Pizza is always dangerous unless it's made with a multigrain crust and vegan cheese.., grin... Sorry had to... But my sentiments exactly - hope you're feeling better!
Cheryl : Irritation - 2004 BX: 6/2008 : Inflam. BX: 12/10, DX: 12/10 : SCC - LS tongue well dif. T2N1M0. 2/11 hemigloss + recon. : PND - 40 nodes - 39 clear. 3/11 - 5/11 IMRT 33 + cis x2, PEG 3/28/11 - 5/19/11 3 head, 2 chest scans - clear(fingers crossed) HPV-, No smoke, drink, or drugs, Vegan
| | | | | Joined: Jan 2009 Posts: 1,844 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: Jan 2009 Posts: 1,844 | vegan cheese sounds dangerous...almost as dangerous as lentil loaf :P
Young Frack, SCC T4N2M0, Cisplatin,35+ rads,ND, RT Mandiblectomy w fibular free flap, facial paralysis, "He who has a "why" to live can bear with almost any "how"." -Nietzche "WARNING" PG-13 due to Sarcasm & WAY too much attitude, interact at your own risk.
| | | | | Joined: Dec 2010 Posts: 5,260 Likes: 3 "OCF Canuck" Patient Advocate (old timer, 2000 posts) | | "OCF Canuck" Patient Advocate (old timer, 2000 posts)
Joined: Dec 2010 Posts: 5,260 Likes: 3 | Hey hey my lentil loaf is awesome ont be hating on the loaf or the vegan cheese!!!! If yer ver in LA try out a lace called Madeline's, or RFD - they will Change your mind vegan food! Heavy sigh... I miss them.
Cheryl : Irritation - 2004 BX: 6/2008 : Inflam. BX: 12/10, DX: 12/10 : SCC - LS tongue well dif. T2N1M0. 2/11 hemigloss + recon. : PND - 40 nodes - 39 clear. 3/11 - 5/11 IMRT 33 + cis x2, PEG 3/28/11 - 5/19/11 3 head, 2 chest scans - clear(fingers crossed) HPV-, No smoke, drink, or drugs, Vegan
| | | | | Joined: Feb 2012 Posts: 117 Senior Member (100+ posts) | | OP Senior Member (100+ posts)
Joined: Feb 2012 Posts: 117 | Hello friends. I have another update. I'm doing very well and will find out in a few moments if I can go back to work. I'm doing well dealing with everything that has happened minus some nightmares.
Although I am really upset. It would appear that because I'm healing quite well on the outside and am starting to get back to my normal life others around me are acting as though it's over and I should be over it too. Most people's sympathy has vanished and people around me are too ignorant to realize that this is only the beginning and that I still may face radiation. They also don't seem capable of understanding how much emotional healing I still have to tackle. It's funny how the world just keeps spinning and those who cared before and during surgery could give a crap less. Especially my boss who verbally attacked This morning about parts of my appearance that have to change according to dress code before I can come back to work, completely disregarding my health and how I am feeling.
Taking a break from the forum for a while. Thank you so much for your support if you've been supportive.
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