| | Joined: Jun 2009 Posts: 64 Supporting Member (50+ posts) | OP  Supporting Member (50+ posts)
Joined: Jun 2009 Posts: 64 | My husband completed treatment in 09. His pet scan came back clean last year. He now has a lot of problem with his neck, it tighens up and causes him pain.
He also has been coughing a lot. It sounds like he is gagging. Also his voice is forever changing.
We have a dr. appt in December for a re-check, do I call ask them to do the "cookie test"?
Any feedback would be helpful.
Thanks
Pat
Crgvr to Husband 55-yrs, surgery to remove cyst-diagnosed as SCC, 4/3/09 CT & Pet Scan showed more cancer in left lymph node and primary at the base of the tongue.TX Radiation 7 weeks 5 days a week last day is 6/25/09
Chemo completed 6/19/09
Peg Tube 5/22/09
| | | | | Joined: Sep 2006 Posts: 8,311 Senior Patient Advocate Patient Advocate (old timer, 2000 posts) | | Senior Patient Advocate Patient Advocate (old timer, 2000 posts)
Joined: Sep 2006 Posts: 8,311 | Cough can be related to acid reflux so have that discussed as well. Might even want to try an OTC acid reflux med just to see if there's any difference since you are a month away from the appt.
David
Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
| | | | | Joined: Jun 2009 Posts: 64 Supporting Member (50+ posts) | | OP Supporting Member (50+ posts)
Joined: Jun 2009 Posts: 64 | He currently takes Omprazole for his acid reflux.
Thanks
Pat
Crgvr to Husband 55-yrs, surgery to remove cyst-diagnosed as SCC, 4/3/09 CT & Pet Scan showed more cancer in left lymph node and primary at the base of the tongue.TX Radiation 7 weeks 5 days a week last day is 6/25/09
Chemo completed 6/19/09
Peg Tube 5/22/09
| | | | | Joined: Nov 2002 Posts: 3,552 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Nov 2002 Posts: 3,552 | I don't have acid reflex but I have the other issues and have mentioned it frequently in other posts.
The neck spasms and more phlegm than pre Tx are pretty much to be expected. I also lost about 1/3 octave on my voice as well. Some doctors think the vocal cords were damaged as a result of all of the vomiting.
Gary Allsebrook
***********************************
Dx 11/22/02, SCC, 6 x 3 cm Polypoid tumor, rt tonsil, Stage III/IVA, T3N0M0 G1/2
Tx 1/28/03 - 3/19/03, Cisplatin ct x2, IMRT, bilateral, with boost, x35(69.96Gy)
________________________________________________________
"You are a mist that appears for a little while and then vanishes" (James 4:14 NIV)
| | | | | Joined: Jun 2009 Posts: 875 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: Jun 2009 Posts: 875 | Hi:
What's the "cookie test?"
julieann
Julieann Nov 2007 SCC on right tonsil following tonsillectomy. Was smoker, QUIT. (Stage IV T2 N2b) 7 weeks radiation one day/wk chemo (carboplatin and 5-FU). Allergic to Taxol; PEG in, lost 30 lbs. TX completed January 2008. PEG out mid- 2008. PET/CT 1/17/2011;2/3/12 NEGATIVE for cancer  | | | | | Joined: May 2011 Posts: 287 Gold Member (200+ posts) | | Gold Member (200+ posts)
Joined: May 2011 Posts: 287 | It is Barium Swallow test. Pete had published this link: http://www.radiographicceu.com/article23.html
Father; 67 yrs; RIP: 2012/05/26
TX:SCC pT2N1M0G2;Glossectomy+SND+CCRT(59.3Gy+6xCis.)[2009]
TX:Nodal Mets; 3xDCF[2011/05/05]
TX: RND + PMMC Flap[2011/07/11]
DX:SCC PNI+ECE
TX:Re-RT 60Gy[2011/09/21]
TX:Gefitinib 250mg[2011/12/18]
| | | | | Joined: Feb 2009 Posts: 7 Member | | Member
Joined: Feb 2009 Posts: 7 | Pat:
This sounds very familiar...your husband's history could be mine...including the site...only a year later...
At the simplest, my voice has changed. I get hoarse easily, and am often dry...although I do not have dry mouth, I do not have as much saliva as normal...
Those who don't know me have accused me of "smoker's cough" in the morning...a lot of throat clearing and phlegm...which is all the more ironic since I have never smoked!
I've discussed the various issues with my ENT surgeons who suggest this is all part of my new "normal"...the RO, before he retired, had warned me of the same. Both ENT surgeons have supported long-term acid-reflux medication (Nexium)...
I had the "cookie test" prior to treatment...which showed some silent aspiration to clear fluids...I haven't had that test since...
The only advice is "lots of fluids"...although it has been suggested to me to try the saliva-supporting lozenge "Numoisyn"...
Age 51 at Dx
BOT SCC T4aN2cM0 Dx May 08
Tracheostomy/PEG May 08
Inductive Chemotherapy attempted Jun 08
Concurrent IMRT (x32) and Cisplatin (x2)/Carboplatin (x1) Jul - Aug 08
Selective Lateral Neck Dissection - 22 nodes removed - all negative - Sep 09
| | |
| Forums23 Topics18,168 Posts196,927 Members13,104 | | Most Online458
Jan 16th, 2020 | | |
|
