| | Joined: Oct 2011 Posts: 6 Member | OP  Member
Joined: Oct 2011 Posts: 6 | I just got home from being discharged. I also just got a call from my oncologist congratulating me that the mass taken out turned out not to be cancer spreading!!! so excited, i feel like a new man! so this new aggressive treatment is working, in which I have done 3 full chemo treatments and now i will take 2 weeks to heal and start 7 wks of radiation/chemo. I feel good. getting used to not having a full tongue. every once in a while I can touch my teeth. I dont care the ENT doc says that I wont ever touch my teeth again, I believe I will if I work hard and keep pushing myself.
Male, 29YO, Non-Smoker/Non-Tabocco use
DX: 7/11 with T4L1 tongue CA
Surgeries: July/11- 1/3 glossectomy,
Aug/11- 1/2 glossectomy w/reconstruction (flap from forearm), Neck Dissection (47 nodes, 1+), PEG
Regrowth after 1 month of chemo -10/29/11
Chemo: 9/13/11, 10/4/11
Radiation w/chemo: 11/11
| | | | | Joined: Nov 2006 Posts: 2,671 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Nov 2006 Posts: 2,671 | What great news! And with that wonderful attitude of yours, I'm sure you will do fine with the rest of your treatmentl Radiation can be a tough road and everyone reacts differently, of course with some just sailing right through the whole process and others having a more difficult time but just know that there are lots of helpful and compassionate people here to help you through it. So enjoy the good feeling of the great news you just got and keep checking back to let us know how you are doing.
Anne-Marie
CG to son, Paul (age 33, non-smoker) SCC Stage 2, Surgery 9/21/06, 1/6 tongue Rt.side removed, +48 lymph nodes neck. IMRTx28 completed 12/19/06. CT scan 7/8/10 Cancer-free! ("spot" on lung from scar tissue related to Pneumonia.)
| | | | | Joined: Aug 2007 Posts: 1,301 "OCF Down Under" Patient Advocate (1000+ posts) | | "OCF Down Under" Patient Advocate (1000+ posts)
Joined: Aug 2007 Posts: 1,301 | I love that you sound so upbeat and positive after all you have and are still to go through Sergio.
Congratulations on the mass not being a spreading cancer.
Best wishes for the upcoming rads with low dose chemo.
I feel your great attitude will get you through this.
The sooner it is done the sooner you can get back to that wonderul family life.
Gabriele
History Leukoplakia bx 8/2006 SCC floor mouth T3N0M0- Verrucous Carcinoma.
14 hour 0p SCC-Right ND/excision/marginal mandibulectomy 9/2006, 4 teeth removed, flap from wrist, trach-ng 6 days- no chemo/rad.
6 ops and debulking (flap/tongue join) + bx's 2006-2012.
bx Jan 2012 Hyperkeratosis-Epithelial Dysplasia
24cm GIST tumour removed 8/2013. Indefinite Oral Chemo.
1/31/16 passed away peacefully surrounded by family
| | | | | Joined: Dec 2010 Posts: 5,264 Likes: 5 "OCF Canuck" Patient Advocate (old timer, 2000 posts) | | "OCF Canuck" Patient Advocate (old timer, 2000 posts)
Joined: Dec 2010 Posts: 5,264 Likes: 5 | Fantastic... Good luck with rads and many blessings to you - you will do great! Hugs!
Cheryl : Irritation - 2004 BX: 6/2008 : Inflam. BX: 12/10, DX: 12/10 : SCC - LS tongue well dif. T2N1M0. 2/11 hemigloss + recon. : PND - 40 nodes - 39 clear. 3/11 - 5/11 IMRT 33 + cis x2, PEG 3/28/11 - 5/19/11 3 head, 2 chest scans - clear(fingers crossed) HPV-, No smoke, drink, or drugs, Vegan
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