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trese #141892 10-22-2011 09:23 AM
Joined: Jan 2009
Posts: 1,844
Patient Advocate (1000+ posts)
Patient Advocate (1000+ posts)

Joined: Jan 2009
Posts: 1,844
Trese,

First, oral cancer isn't genetic so just because you have family history of cancer doesn't mean you'll get OC.

Second, your "symptoms" do not matter, why? because only a certified Ear Nose & Throat specialist is qualified to diagnose you, it's their job, it's what they do. You've been to one that you didn't agree with, so now you've got a second opinion scheduled...that's the ONLY THING YOU CAN DO AT THIS POINT!!!! It's the ONLY ADVICE THAT WE CAN GIVE, other then getting a psych consult to boot.

I'm not trying to be mean or cruel here, just pointing out the obvious. We are not Dr's, you've asked for advice, you've been given it, now follow it. There's no more information you can gather or advice from us AT THIS POINT that can help you.

There's a quote usually attributed to Albert Einstein that says "The definition of insanity is doing the same thing over and over and expecting different results." Asking the same questions over and over and expecting a different answer may be a sign...of course me giving you the ONLY advice we can give at this point to you over and over may be one as well.

To humor myself I'll dive into crazy

1. Get a second opinion from the best ENT available to you

2. Get a second opinion from the best ENT available to you

3. Get a second opinion from the best ENT available to you

(that's my obsessive compulsive disorder quota filled, now let's dive deeper just to ensure the proper amount of insanity)

4. Get a second opinion from the best ENT available to you

5. Get a second opinion from the best ENT available to you

6. Get a second opinion from the best ENT available to you


Now that's DOUBLE the amount of my usual OCD to ensure that I've made it clear. Your welcome by the way.

After you've been seen by an ENT with whom you will accept an opinion from, AND you've been diagnosed through a biopsy that you do in fact have oral cancer then I know that these forums are the best source of information. At that time we know exactly what you're dealing with and most likely someone here will have a similar experience in which to draw wisdom from. That's the point and purpose of these forums...not diagnosis.


Last edited by EricS; 10-22-2011 09:51 AM. Reason: always spelling

Young Frack, SCC T4N2M0, Cisplatin,35+ rads,ND, RT Mandiblectomy w fibular free flap, facial paralysis, "He who has a "why" to live can bear with almost any "how"." -Nietzche "WARNING" PG-13 due to Sarcasm & WAY too much attitude, interact at your own risk.
trese #141897 10-22-2011 12:08 PM
Joined: Dec 2010
Posts: 5,264
Likes: 5
"OCF Canuck"
Patient Advocate (old timer, 2000 posts)
"OCF Canuck"
Patient Advocate (old timer, 2000 posts)

Joined: Dec 2010
Posts: 5,264
Likes: 5
Check the other forum - I suggested you try something there - its not a placebo I really think you should try it! GOod luck!!


Cheryl : Irritation - 2004 BX: 6/2008 : Inflam. BX: 12/10, DX: 12/10 : SCC - LS tongue well dif. T2N1M0. 2/11 hemigloss + recon. : PND - 40 nodes - 39 clear. 3/11 - 5/11 IMRT 33 + cis x2, PEG 3/28/11 - 5/19/11 3 head, 2 chest scans - clear(fingers crossed) HPV-, No smoke, drink, or drugs, Vegan
Joined: May 2009
Posts: 1,412
Patient Advocate (1000+ posts)
Patient Advocate (1000+ posts)

Joined: May 2009
Posts: 1,412
Eric, you made me smile. I just love how you put it out there and tell it like it is. No games!


Angelia
31 at Dx.
DX: 4/30/09, 10/21/09 SCC on floor of mouth,
T1NOMO, T2N1M0
TX: 39 IMRT, 8 cisplatin 11/30/09
PET/CT: 11/03/09: Lymph node involvement
PEG/PORT: 11/09
TX end: 02/01/10
PET Scan: 04/05/10 clear
PEG Out: 06/21/10
Biopsy: 12/23/10: fibrosis
HBO: 01/04/11 - ORN
Baby girl born 11-30-12
EricS #141936 10-23-2011 04:53 AM
Joined: Nov 2006
Posts: 2,671
Patient Advocate (old timer, 2000 posts)
Patient Advocate (old timer, 2000 posts)

Joined: Nov 2006
Posts: 2,671
Einstein and Eric were right: "The definition of insanity is doing the same thing over and over and expecting different results." There is a reason, however, why many of us do this (according to what I learned in a college class on Biological Foundations of Behavior) :

When we follow a certain thought process, our brains are making little tracks so that each time we get back to the same thought, we automatically follow the same track and get stuck there. Not getting the desired results can lead to stress and even physical symptoms or worse. Or until we can ask ourselves -
�How�s that working for you?� And make new "tracks" by doing what Eric and others have suggested and -

�Get a second opinion from the best ENT available to you.�


Anne-Marie
CG to son, Paul (age 33, non-smoker) SCC Stage 2, Surgery 9/21/06, 1/6 tongue Rt.side removed, +48 lymph nodes neck. IMRTx28 completed 12/19/06. CT scan 7/8/10 Cancer-free! ("spot" on lung from scar tissue related to Pneumonia.)



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