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#141350 10-10-2011 12:55 PM
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Does anybody know anything about stiffness in the joints after chemo or radiation. I was fine until I weaned off the pain patches and now have stiff joints and the only way I can cope is with pain medication. Also does "turkey neck" ever go away and is there anything to do to help reduce it. Thank you all for being here I keep learning..........


charlie
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I have not heard of this complaint as a side effect from chemo or rads. An anti-inflammatory medicine like ibuprofen could help with your stiff joints. It would be a good idea to check this out with your family physician or maybe a physical therapist. It could be arthritis or joint inflammation or all kinds of other things that are affecting your joints, tendons, muscles and cartilage. I have also heard a few of my friends discuss the benefits of taking Glucosamine. Maybe that would help, it takes a couple weeks before you would see any improvement.


Christine
SCC 6/15/07 L chk & by L molar both Stag I, age44
2x cispltn-35 IMRT end 9/27/07
-65 lbs in 2 mo, no caregvr
Clear PET 1/08
4/4/08 recur L chk Stag I
surg 4/16/08 clr marg
215 HBO dives
3/09 teeth out, trismus
7/2/09 recur, Stg IV
8/24/09 trach, ND, mandiblctmy
3wks medicly inducd coma
2 mo xtended hospital stay, ICU & burn unit
PICC line IV antibx 8 mo
10/4/10, 2/14/11 reconst surg
OC 3x in 3 years
very happy to be alive smile
ChristineB #141368 10-10-2011 04:41 PM
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charlie, is it the joints specifically or the muscles? muscle pain could = protein deficiency. an all liquid diet and less physical activity towards end of treatment has effected my Dad too. we're addressing it by adding whey powder to several shakes a day and some walking, it has gotten a bit better.


Caco
CG to Dad. Biopsy 5/11 non-op, SCC stage IV poorly dif at base of tongue with nodes, quit smoking in '85, ChemoRad began 8/2/11 ended 9/22/11 with NED. Distant mets 11/11, clinical trials. War raging on!
Caco #141379 10-10-2011 09:14 PM
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I had a lot of issues with pain in my knees for about a week after Tx. I never did find out what the deal was for sure, but I suspect I wasn't hydrating well enough. Get more fluids and see if that helps.


Dx: 3/11 Stage III glottic laryngeal SCC HPV 16+ Tx Start: 7/18/11 chemoradiation 7wks - Tomotherapy IMRT x 34 / Cisplatin x 7 Tx End:9/1/11]-[as of 1/20/12 - ALL CLEAR!]


HankXavier #141383 10-10-2011 10:24 PM
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This going to sound bizarre but my first thought was chemo meds acumulating in those areas! Don't know why this popped into my head. However I do think it will eventually calm down! Once your system clears everything. Also there the use it or lose it principle - you went from athlete to couch potato, areas that were used to exercise anre now not being used anymore. Try easing into it - but at least try to walk daily! Even do light movement of he joints to try an increase their flexibility again! Good luck!


Cheryl : Irritation - 2004 BX: 6/2008 : Inflam. BX: 12/10, DX: 12/10 : SCC - LS tongue well dif. T2N1M0. 2/11 hemigloss + recon. : PND - 40 nodes - 39 clear. 3/11 - 5/11 IMRT 33 + cis x2, PEG 3/28/11 - 5/19/11 3 head, 2 chest scans - clear(fingers crossed) HPV-, No smoke, drink, or drugs, Vegan
Cheryld #141384 10-10-2011 11:45 PM
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Actually Charlie hypothyroidism is a common issue after treatment, many here have heard the advice of the old timers like Charm and DavidCPA persistently telling new folks to get their TSH levels checked and many here are on thyroid meds.

What some people don't realize is that joint pain, muscle aches, swelling etc...is a sign of hypothyroidism. Adequate thyroid meds will usually help dramatically according to the Mayo Clinic. You can read their short blurb on it here if you would like. http://www.mayoclinic.com/health/hypothyroidism/AN00069

Have your Dr's check it out with a simple thyroid test, while you're getting those done do yourself a favor and ask for your adrenals and testosterone to be tested as well as those are other common issues that can cause life to be difficult post treatment.

Good luck

Eric


Young Frack, SCC T4N2M0, Cisplatin,35+ rads,ND, RT Mandiblectomy w fibular free flap, facial paralysis, "He who has a "why" to live can bear with almost any "how"." -Nietzche "WARNING" PG-13 due to Sarcasm & WAY too much attitude, interact at your own risk.
EricS #141390 10-11-2011 12:41 AM
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hi
I am 3 months out and am still suffering joint pain in my upper arm/shoulders and legs. some days are worse than others. I thought it was to do with the cisplatin and weight loss i lost 3 stone in 6 weeks. I have been doing light exercise but its not getting any better. would the thyroid problem be this quick to show up?
I would really like to sort this out as its the only thing getting me down now. Got first PET scan next week, i worry about all these aches and pains!
I know it all gets better in time smile
Jayne


Scc nasal cavity /hard palate
Surgery removal of septum and roof of mouth 15/3/11 cl margins
Rt and cisplatin 6 weeks starting 24/5/11
Obturator

Age 45
jayneday #141398 10-11-2011 06:14 AM
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Hi there - try not to worry about the aches in relation to the cancer, specific pain in a specific area is different of course but and achyness all over probably isnt anything to worry about. I wake up stiff in my neck and tongue and cheeks very morning partly cdue to lymphedema and partly due to sleeping and not using those damaged muscles while in bed. (I sleep like im unconscious these days!! smile I was told thyroid issues could crop up at the 4 month mark. I'm past that and a perky turkey! So I think I'm okay so far. The 4 month thing was told to me by my MO - hopefully it's not the case with you! Good luck next week - will say a prayer you are all clear! . Have them do bloodwork for your thyroid - hopefully they took a baseline prior to treatment. Hugs!


Cheryl : Irritation - 2004 BX: 6/2008 : Inflam. BX: 12/10, DX: 12/10 : SCC - LS tongue well dif. T2N1M0. 2/11 hemigloss + recon. : PND - 40 nodes - 39 clear. 3/11 - 5/11 IMRT 33 + cis x2, PEG 3/28/11 - 5/19/11 3 head, 2 chest scans - clear(fingers crossed) HPV-, No smoke, drink, or drugs, Vegan

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