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#139228 09-04-2011 10:00 AM
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Hey Everyone!

We have some fall oral cancer walks approaching!!!

September 10 - Cleveland, OHio

September 18 - Plymouth, Massachussetts

September 24 - Andover, New Jersey

October 1 - Bethlehem, Pennsylvania

October 22 - Minneapolis, Minnesota


If you live in any of these areas, please come out and support the event and OCF!! Check event site for more details or contact me!!

Thanks so much!!

Susan


Susan Lauria - OCF Director of Events - Always looking for volunteers to help spread the word about early detection! Contact me if you can help!

*Brother passed away from tongue cancer in 2006 at age 47, was co-caregiver, he was non-smoker/casual drinker

LETS MAKE ORAL CANCER HISTORY!
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It would be wonderful to have OCF members present at each of the walks. It would show their support of this wonderful organization.

There is a new tshirt available this year. Its one that survivors, caregivers or anyone can wear. The tshirt was originally designed to be worn by OCF members when they attend the walks. It makes it easy to spot fellow OCF members.

If anyone wants to participate in a walk but do not live near one, they can still help out. If unable to attend a walk, a walker can be sponsored. Donations of any amount are also accepted.

I hope anyone who is able to help out will do so. OCF helps us all so much, lets try to give back what we can.


Christine
SCC 6/15/07 L chk & by L molar both Stag I, age44
2x cispltn-35 IMRT end 9/27/07
-65 lbs in 2 mo, no caregvr
Clear PET 1/08
4/4/08 recur L chk Stag I
surg 4/16/08 clr marg
215 HBO dives
3/09 teeth out, trismus
7/2/09 recur, Stg IV
8/24/09 trach, ND, mandiblctmy
3wks medicly inducd coma
2 mo xtended hospital stay, ICU & burn unit
PICC line IV antibx 8 mo
10/4/10, 2/14/11 reconst surg
OC 3x in 3 years
very happy to be alive smile
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Posts: 706
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Hi all. I will most definately be coming to the Andover walk. I just got that day off of work and can't wait to see you all!


cg to husband, 48 Stage 1V head and neck SCC. First surgery 9/07. Radiation and several rounds of chemo followed. Mets to chest and lungs. "Life isn't about waiting for the storm to pass, it's about learning to dance in the rain." Went home to God on February 22, 2009.
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Sue I am so happy you will be attending!!!!!! I cant wait to see you again and catch up.


Christine
SCC 6/15/07 L chk & by L molar both Stag I, age44
2x cispltn-35 IMRT end 9/27/07
-65 lbs in 2 mo, no caregvr
Clear PET 1/08
4/4/08 recur L chk Stag I
surg 4/16/08 clr marg
215 HBO dives
3/09 teeth out, trismus
7/2/09 recur, Stg IV
8/24/09 trach, ND, mandiblctmy
3wks medicly inducd coma
2 mo xtended hospital stay, ICU & burn unit
PICC line IV antibx 8 mo
10/4/10, 2/14/11 reconst surg
OC 3x in 3 years
very happy to be alive smile
Joined: Apr 2005
Posts: 2,219
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Can't wait to see you, too...Suemarie.


Jerry

Retired Dentist, 59 years old at diagnosis. SCC of the left lateral border of the tongue (Stage I). Partial glossectomy and 30 nodes removed, 4/6/05. Nodes all clear. No chemo no radiation 18 year survivor.

"Whatever doesn't kill me, makes me stronger"
Joined: Jun 2008
Posts: 475
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Awesome Sue Marie!!! So glad you are coming!!!!

See you then!!!

Susan


Susan Lauria - OCF Director of Events - Always looking for volunteers to help spread the word about early detection! Contact me if you can help!

*Brother passed away from tongue cancer in 2006 at age 47, was co-caregiver, he was non-smoker/casual drinker

LETS MAKE ORAL CANCER HISTORY!
Joined: Jul 2010
Posts: 531
"Above & Beyond" Member (500+ posts)
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Joined: Jul 2010
Posts: 531
well jeeez, I never knew there was a walk this Saturday!!! I have to watch my grandson...I'm so sad...how can I find anything out now about it? I'm really sad...


CG to Ron
Out of Pain 4/3/13
4/12-lung and under chin growth no treatment
1/13/12 lung biopsy
6/11 recur 6/30 resection #2 Clear margins
Clear 12/10
Surg 5/13/10 neck dis/nodes part gloss/flap R thigh all teeth out
RAD 30 8/10
DX 4/2/10 "Oral Cavity" T3NOMO
12/28/07 Non Hodg Lymph remission 7/08
passed away 4.3.15, RIP Ron, you are greatly missed
Joined: Jul 2010
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OK found it and it's closer to my house than Cleveland proper it's actually in Sagamore Hills woo hoo! Now to find out if I can get somebody to keep an eye on the grandson my Saturday to watch him...hmmm I'm sure he can go for a stroll right? Do I have to be there @ 8am exactly to start? If so I can't go, they don't get to my house til 8...shoot...and Christine do they sell those shirts @ the walks? I'd like one if I could get one. IF I can even get to the walk now. It shows 8am-noon. hmmm gotta do more reading


CG to Ron
Out of Pain 4/3/13
4/12-lung and under chin growth no treatment
1/13/12 lung biopsy
6/11 recur 6/30 resection #2 Clear margins
Clear 12/10
Surg 5/13/10 neck dis/nodes part gloss/flap R thigh all teeth out
RAD 30 8/10
DX 4/2/10 "Oral Cavity" T3NOMO
12/28/07 Non Hodg Lymph remission 7/08
passed away 4.3.15, RIP Ron, you are greatly missed
Joined: Jun 2007
Posts: 10,507
Likes: 6
Administrator, Director of Patient Support Services
Patient Advocate (old timer, 2000 posts)
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Administrator, Director of Patient Support Services
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Sue, you will LOVE the OCF walks!!!! Im so excited that you will get to go!!!! Children are always welcome at the walks. At the San Antonio walk they had a play ground and face painting for the little ones. Every walk is a little different.

The burgundy tshirts are only sold in the OCF store, they take arrive very quickly. I dont think there is enough time to get you one by Sat. frown Usually at the walks they will give you a free tshirt. The burgundy tshirt is what I was wearing when I went to the Colorado walk in July. Im not sure if you got to see the pictures. In the link the shirt looks more red than it really is, its a nice deep burgundy color. I love that tshirt!!! Here is the link to the store so you can buy one.

http://www.ocfstore.org/Make_Oral_Cancer_History_T_Shirt_p/makehistory_tshirt.htm




*******Anyone else going to the Clevland walk on Saturday, contact me or SUEZ to arrange to meet in person.*****


Christine
SCC 6/15/07 L chk & by L molar both Stag I, age44
2x cispltn-35 IMRT end 9/27/07
-65 lbs in 2 mo, no caregvr
Clear PET 1/08
4/4/08 recur L chk Stag I
surg 4/16/08 clr marg
215 HBO dives
3/09 teeth out, trismus
7/2/09 recur, Stg IV
8/24/09 trach, ND, mandiblctmy
3wks medicly inducd coma
2 mo xtended hospital stay, ICU & burn unit
PICC line IV antibx 8 mo
10/4/10, 2/14/11 reconst surg
OC 3x in 3 years
very happy to be alive smile
Joined: Oct 2006
Posts: 209
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Joined: Oct 2006
Posts: 209
SUEZ, I hope you make it to the walk, I will look for you. I did not know about the shirts for OCF members until today. Oh well.


Ginny, spouse of MikeG. SSC BOT T2N1M0 Stage III, Dx 06/27/06 at age 52, Tx 07/31/06 through 09/28/06 Chemo Cisplatin & 5FU x2, Radiation x42. Cancer free and doing well.
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