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#139292 09-05-2011 10:47 AM
Joined: Mar 2002
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Joanna Offline OP
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Hello. I was around and in treatment not long after the OCF began. I am doing extremely well. I was recently reminded of something that is very important to anyone undergoing radiation. Even if you are eating via PEG, it is very important to open your mouth WIDE several times EVERY day. Nobody told me about this and now I cannot eat a sandwich and need to cut my food up in small pieces. This is not terrible as I still enjoy most everything, but if you want to bite into a juicy hamburger, OPEN, OPEN, OPEN! Just heard from a guy who I nagged about this, and he thanked me when he ate at Subway for the first time post treatment. So, remember, OPEN, OPEN, OPEN!

Joanna #139317 09-05-2011 06:26 PM
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welcome back, we've missed you!!


Brian, stage 4 oral cancer survivor. OCF Founder and Director. The first responsibility of a leader is to define reality. The last is to say thank you. In between, the leader is a servant.
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"OCF Canuck"
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Thanks for the advice!!! I do open open open a lot!! smile and welcome back!


Cheryl : Irritation - 2004 BX: 6/2008 : Inflam. BX: 12/10, DX: 12/10 : SCC - LS tongue well dif. T2N1M0. 2/11 hemigloss + recon. : PND - 40 nodes - 39 clear. 3/11 - 5/11 IMRT 33 + cis x2, PEG 3/28/11 - 5/19/11 3 head, 2 chest scans - clear(fingers crossed) HPV-, No smoke, drink, or drugs, Vegan
Cheryld #139323 09-05-2011 09:35 PM
Joined: May 2008
Posts: 551
"Above & Beyond" Member (500+ posts)
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Posts: 551
YES!! Stretch those jaw and tongue muscles every chance you get!

- Margaret


Stage IV SCC lt lateral tongue, surgery 5/19/08 (partial gloss/upper neck dissection left side/radial free flap reconstruction) IMRT w/weekly Cisplatin & Erbitux 6/30/08, PEG 1 6/12/08 - out 7/14 (in abdominal wall, not stomach), PEG 2 7/23/08 - out 11/20/08, Tx done 8/18/08
Second SCC tumor, Stage 1, rt mobile tongue, removed 10/18/2016, right neck dissection 12/9/2016
Third SCC tumor, diagnosed, 4/19/2108, rt submandibular mass, HPV-, IMRT w/ weekly Cisplatin, 5/9 - 6/25/2018, PEG 3 5/31/2018
Joined: May 2009
Posts: 1,412
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I would say continue this even after treatment, but not near as often. If I do not do regular mouth exercises, my mouth will get tight and hard for me to open very far. It does loosen up during thre day, but it sure takes awhile.


Angelia
31 at Dx.
DX: 4/30/09, 10/21/09 SCC on floor of mouth,
T1NOMO, T2N1M0
TX: 39 IMRT, 8 cisplatin 11/30/09
PET/CT: 11/03/09: Lymph node involvement
PEG/PORT: 11/09
TX end: 02/01/10
PET Scan: 04/05/10 clear
PEG Out: 06/21/10
Biopsy: 12/23/10: fibrosis
HBO: 01/04/11 - ORN
Baby girl born 11-30-12

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