| | Joined: Jun 2008 Posts: 475 Platinum Member (300+ posts) | OP  Platinum Member (300+ posts)
Joined: Jun 2008 Posts: 475 | Thank you to Susan Cotten for organizing her first Oral Cancer Awareness Walk held this past Saturday. She raised close to $10,000 for OCF and had approx 100 walkers attend. Thank you also to Christine Brader and Cathi Carpenter for speaking at the event. I understand alot of tears were flowing!!!
What a great day, what amazing people who volunteered and sponsored. The OCF thanks you and appreciates your hard work and dedication to oc awareness.
Look for pictures and write up on OCF fb page in the days ahead.
Thank you, thank you, thank you!!!
Susan
Susan Lauria - OCF Director of Events - Always looking for volunteers to help spread the word about early detection! Contact me if you can help!
*Brother passed away from tongue cancer in 2006 at age 47, was co-caregiver, he was non-smoker/casual drinker
LETS MAKE ORAL CANCER HISTORY!
| | | | | Joined: Jun 2007 Posts: 10,507 Likes: 7 Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) | | Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 10,507 Likes: 7 | It was my pleasure to go to Susan Cotten's first walk in Colorado. She is an amazing woman who is so dedicated to helping spread awareness. Susan did an awesome job on the walk. She even presented the survivors with real leis imported from Hawaii. It truly was an honor to be able to meet her and Cathi Carpenter.
While I was there another OC survivor James Roe had the brilliant idea to tape my speech so all could hear my message. He did a terrific job with it. My words of perseverance and warning about early detection and symptoms will live long after I am no longer here to speak them.
Thank you to all who made this possible, Brian Hill, Susan Cotten, James Roe and his wonderful wife Mona, and of course a big thanks to Susan Lauria who helps to guide the promoters of the walks. Thanks also to Jamie and Megan in the OCF office for all your behind the scenes help and support. It takes a team to get such great results.
I can only hope that in my lifetime to see a decrease in oral cancer patients and an increase in the rate of the survivors.
Get screened yearly and be well everyone!!!!
ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive  | | | | | Joined: Nov 2009 Posts: 493 Platinum Member (300+ posts) | | Platinum Member (300+ posts)
Joined: Nov 2009 Posts: 493 | Christine, I linked your speech to my Facebook status page. I found it very moving, and the video was very well done. It sounds as if the Colorado event was amazing.
Female, nonsmoker, 70, diag. 5/09 after tongue biopsy: stage IV. Left hemi-gloss. and left selec. neck disec. 30 lymph nodes removed May 20. Over 7 weeks daily rads. with three chemo. PEG removed 12/4/09 Am eating mostly soft foods. Back to work 11/09 Retired 4/1/11. 7 clear scans! Port out 9/11. 2/13. It's back: base of tongue, very invasive
surgery involving lifestyle changes. 2/14: Now speaking w/Passey-Muir valve. Considering a swallow study. Grateful to be alive.
| | | | | Joined: Jun 2007 Posts: 10,507 Likes: 7 Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) | | Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 10,507 Likes: 7 | Thank you for spreading the word!!!!
ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive | | |
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