| Joined: Nov 2010 Posts: 128 Senior Member (100+ posts) | OP Senior Member (100+ posts) Joined: Nov 2010 Posts: 128 | friday, so i am assuming that the scan does indeed show something.. i am a wreck.. dad has been in bed for about 7weeks.. i am afraid that if this disease is back that we have exhausted all our options for dad.. i mean how much can one person take? he already did the rad/chemo treatments last year and salvage surgery december 2010.. his problem side has always been the left side.. the swelling and the red eye are on the right side.. after a week of being on the levaquin he said the pain in his eye has gotten better, but the swelling is still there.. any advise and/or input would be great.. thanks so much.. concerened daughter..
Dad-55 yrs..2/2010-DX/March 2010-Induction Chemo/35Rads 7weeks concurrent with chemo once every 3weeks/6/2010-Treatments completed-October 2010-Recurrence/December 2010-salvage surgery/clear Margins/July 2011-recurrence/weekly Erbitux treatments-5/30/12, last erbitux.. Painfree and rested 6/19/12
| | | | Joined: Nov 2010 Posts: 128 Senior Member (100+ posts) | OP Senior Member (100+ posts) Joined: Nov 2010 Posts: 128 | OOOPS only half my post posted.. eek basically, the oncologist is now a part of tomorrow's follow up visit for dad.. he had his scan on friday, so i am assuming that the scan does indeed show something.. i am a wreck.. dad has been in bed for about 7weeks.. i am afraid that if this disease is back that we have exhausted all our options for dad.. i mean how much can one person take? he already did the rad/chemo treatments last year and salvage surgery december 2010.. his problem side has always been the left side.. the swelling and the red eye are on the right side.. after a week of being on the levaquin he said the pain in his eye has gotten better, but the swelling is still there.. any advise and/or input would be great.. thanks so much.. concerened daughter..
Dad-55 yrs..2/2010-DX/March 2010-Induction Chemo/35Rads 7weeks concurrent with chemo once every 3weeks/6/2010-Treatments completed-October 2010-Recurrence/December 2010-salvage surgery/clear Margins/July 2011-recurrence/weekly Erbitux treatments-5/30/12, last erbitux.. Painfree and rested 6/19/12
| | | | Joined: Dec 2010 Posts: 5,264 Likes: 5 "OCF Canuck" Patient Advocate (old timer, 2000 posts) | "OCF Canuck" Patient Advocate (old timer, 2000 posts) Joined: Dec 2010 Posts: 5,264 Likes: 5 | Wait to hear what they have to say - if this is someting new in a different location - the right side - they can radiate there - since he probably wasn't radiated before on that side. They will do what they can to get ahead of the cancer. Hugs to you - try to relax - and take care.
Cheryl : Irritation - 2004 BX: 6/2008 : Inflam. BX: 12/10, DX: 12/10 : SCC - LS tongue well dif. T2N1M0. 2/11 hemigloss + recon. : PND - 40 nodes - 39 clear. 3/11 - 5/11 IMRT 33 + cis x2, PEG 3/28/11 - 5/19/11 3 head, 2 chest scans - clear(fingers crossed) HPV-, No smoke, drink, or drugs, Vegan
| | | | Joined: Jun 2007 Posts: 5,260 Patient Advocate (old timer, 2000 posts) | Patient Advocate (old timer, 2000 posts) Joined: Jun 2007 Posts: 5,260 | Slow down and relax a little. Don't think about bad until you get bad so your dad can relax too. I hope you are more calm around your dad. He needs a chuckle and a hug.
Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April. --- Passed away 5/14/14, will be greatly missed by everyone here
| | | | Joined: Nov 2010 Posts: 128 Senior Member (100+ posts) | OP Senior Member (100+ posts) Joined: Nov 2010 Posts: 128 | thank you both cheryl and ezjim... im always cool and collect around my dad, i usually dont breakdown until the kids are tucked in bed and im alone at night.. my biggest concern with dad is his energy level. he is on the 50 fent patch and norco as needed.. basically he is in bed 24/7.. they did increase his synthroid about 7 weeks ago, which is about the time he started spending more time in bed.. they re-tested his tsh levels this past wednesday.. now the ENT wants dad back in next thursday for the dreadful biopsies.. dad just seems so out of it.. i pray every night and i stay positive.. i have to for him and my mom.. thank you both again for your responses.. xoxo nicki
Dad-55 yrs..2/2010-DX/March 2010-Induction Chemo/35Rads 7weeks concurrent with chemo once every 3weeks/6/2010-Treatments completed-October 2010-Recurrence/December 2010-salvage surgery/clear Margins/July 2011-recurrence/weekly Erbitux treatments-5/30/12, last erbitux.. Painfree and rested 6/19/12
| | | | Joined: Dec 2010 Posts: 5,264 Likes: 5 "OCF Canuck" Patient Advocate (old timer, 2000 posts) | "OCF Canuck" Patient Advocate (old timer, 2000 posts) Joined: Dec 2010 Posts: 5,264 Likes: 5 | Hey - it's hard to watch a loved one suffer. The drugs really do sound like the reason he is so out of it... Try not to worry about the biopsies. Cancer is a one day at a time thing. As stressful as it is try not to worry constantly it's not good for you either. Especially because you have other loved ones that depend on you. It really dies sound like his lack of motivation could be drug related and maybe he's a bit depressed to. but you wouldn't know that until he's drug free. Good luck and many blessings to you.
Cheryl : Irritation - 2004 BX: 6/2008 : Inflam. BX: 12/10, DX: 12/10 : SCC - LS tongue well dif. T2N1M0. 2/11 hemigloss + recon. : PND - 40 nodes - 39 clear. 3/11 - 5/11 IMRT 33 + cis x2, PEG 3/28/11 - 5/19/11 3 head, 2 chest scans - clear(fingers crossed) HPV-, No smoke, drink, or drugs, Vegan
| | | | Joined: Jan 2011 Posts: 571 "Above & Beyond" Member (500+ posts) | "Above & Beyond" Member (500+ posts) Joined: Jan 2011 Posts: 571 | Oh Nicki, I'm so sorry. This is a good place for you. You are getting good advice and a place to vent. You are such a blessing to your parents. Remember to take some time for yourself (and not just to have a good cry at the end of the day when the kids are asleep.) Do something nice for yourself that will take your mind away for awhile and help you relax. I'll keep you, your dad and your family in my thoughts and prayers.
Sending a hug and wishing you peace,
Sandy xoxox
Ex-spouse MISDIAGNOSED with SCC-HN IVa 12/10. Tonsils out 1/11. 4 teeth out 2/11. TX Erbitux x2, IMRT x2 2/11. 2nd opinion-benign BCC-NOT CANCER 3/11. TX stopped 3/11. New doctors 4/11. ENT agrees with 2nd opinion 5/11. ENT scoped him-all clear 7/11. Ordered MRI anyway. MRI 8/22/11 Result-all clear.
| | | | Joined: Jun 2007 Posts: 10,507 Likes: 7 Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) | Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) Joined: Jun 2007 Posts: 10,507 Likes: 7 | Nicki, Im so sorry to hear of your father struggling. Some patients always have such a hard time. You are a great daughter!!!! Im sure it is so hurtful watching your father go thru this. I will keep your father, you and your family in my prayers. ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive | | | | Joined: Nov 2010 Posts: 128 Senior Member (100+ posts) | OP Senior Member (100+ posts) Joined: Nov 2010 Posts: 128 | (tears) thank you all so much.. you have no idea how much i look forward to all your kind words, thoughts and advice.. i also keep all you survivors in my thoughts and prayers daily.. God bless you all.. xoxo nicki
Dad-55 yrs..2/2010-DX/March 2010-Induction Chemo/35Rads 7weeks concurrent with chemo once every 3weeks/6/2010-Treatments completed-October 2010-Recurrence/December 2010-salvage surgery/clear Margins/July 2011-recurrence/weekly Erbitux treatments-5/30/12, last erbitux.. Painfree and rested 6/19/12
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