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| Joined: Jun 2010 Posts: 58 Supporting Member (50+ posts) | Supporting Member (50+ posts) Joined: Jun 2010 Posts: 58 | Charm, I came to this site for much the same reasons as many of the wives/caregivers here. To find out as much information as I could about OC from a valuable resource- the ones going thru it. Doctors can tell you what you will experience, but they do not HAVE OC. Stats scare me to death, and of course they have to tell you what they know, which is enough for John and perhaps why he does not log on here himself. I do not press him to join in, admittedly somewhat reluctant to have him learn more than he needs to know. Perhaps it's the mother in me. Perhaps it's just fear in him. More likely a combination of both. All of the posts help me learn that we are not alone in this fight and this is a safe place. Thank you to all.
Bonnie
CG to husb John, 57, love of my life for 35 yrs. Dx 2/10, T2N2cMx, SCC BOT & lymph nodes. Non smoker. Biopsy HPV+. No surgery - IMRT 35X + 7 chemos cleared BOT 9/10-mets to lungs. 2 rounds chemo, last one trial drug which did not work.
Lost the battle, but walking in Glory 9/7/11.
| | | | Joined: Jan 2009 Posts: 216 Gold Member (200+ posts) | Gold Member (200+ posts) Joined: Jan 2009 Posts: 216 | Oh Charm....you ask the toughest questions! I came because it was the absolute best place to get info and answers from those of you who have been there and done that! Mike's diagnosis was December and he was in treatment a couple weeks later. It was a scramble and then he had an allergic reaction to the chemo so was knocked silly on Benadryl a lot. Gave me a lot of time on my hands to ponder so instead I chose to educate myself. He isn't here because of his anxiety and because when it might have helped him most, he just wasn't on the computer at all. I have been blessed to find this place and although I don't come back and post often, I still read.
CG to H with SCC BOT T4N2cM0 dx 12/19/08, teeth removed pre-tx; Erbitux & RT-done 3/12/09, PEG 2/9/09-7/14/09; ND 6/16. Pet 6/12-no mets except lymph node in neck removed on 6/16. Chyle leak,2nd surg to repair. Dilate esophagus 4/15/10. Clear PET 12/17/10
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