| | Joined: Aug 2008 Posts: 38 Contributing Member (25+ posts) | OP  Contributing Member (25+ posts)
Joined: Aug 2008 Posts: 38 | I finished my re-radiation / chemo back in September 2010 following a hemi-glossectomy in July.
First diag of SCC BOT in Aug 2008. Mets to lungs in Oct 2009. Recovered from those and recurred in BOT and Right tonsil in June 2010.
Recovery going pretty well from round 3. Stronger everyday. My PET in January was high, nothing on the CT, followed up by MRI and physical exam. No evidence of a tumor. Waited to relook in June. Had a bad PET scan on the 6th. PET is positive, CT negative, MRI neg, exam neg, I have a biopsy surgery scheduled for the 13th.
I asked about false alarm rates of PET scans on those that have been twice radiated. Any knowledge of results out there?
(FDG Uptake in Jan was 7-ish, June was 10-ish) I feel good.
Bill age 47 at Dx, non-smoker
1st DIAG: 8/06/2008 SCC BOT T4N1M0
2nd Diag 10/14/09 Mets in lungs
3rd diag 06/23/2010 Primary Site malignant
Hemi-glossectomy July 2
In surveillance post re-IMRT and Carbo. Lots of scar tissue, hi-FDG Uptake on PET, no lump. Feel Fine, CLEAR for now.
| | | | | Joined: Jun 2007 Posts: 10,507 Likes: 7 Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) | | Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 10,507 Likes: 7 | Bill, I am very very sorry to read about what could be round IV for you. Please keep us posted. As always, Im wishing you all the best.
Be well!!!!!
ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive  | | | | | Joined: Jan 2009 Posts: 1,844 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: Jan 2009 Posts: 1,844 | Bill,
False positives are common on PET's my friend, don't let it rile you. The 10 uptake is high and if indicative of a tumor would more then likely show up on the other scans. I'm not a Dr but I would definitely wait for the biopsy results before I let it cross my mind more then once. I guess the way I think about it is if I've got an area that is four times higher then what's considered malignant it really should show on the MRI or CT as well.
Best of luck with the biopsy, I hope you can ease your mind.
Eric
Young Frack, SCC T4N2M0, Cisplatin,35+ rads,ND, RT Mandiblectomy w fibular free flap, facial paralysis, "He who has a "why" to live can bear with almost any "how"." -Nietzche "WARNING" PG-13 due to Sarcasm & WAY too much attitude, interact at your own risk.
| | | | | Joined: Mar 2008 Posts: 3,082 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Mar 2008 Posts: 3,082 | Bill
For what it's worth, none of my doctors at the CCC nor my ENT recommend anymore PETscans for me after two rounds of radiation a year apart. They felt the false positive rate, especially for base of tongue cancer, was just too high and they'd have to do an MRI/CT anyway. Let's hope that is the case here for you and this biopsy comes back negative. It's a good sign that the CT and MRI did not show any tumors.
Charm
65 yr Old Frack
Stage IV BOT T3N2M0 HPV 16+
2007:72GY IMRT(40) 8 ERBITUX No PEG
2008:CANCER BACK Salvage Surgery
25GY-CyberKnife(5) 3 Carboplatin
Apaghia /G button
2012: CANCER BACK -left tonsilar fossa
40GY-CyberKnife(5) 3 Carboplatin
Passed away 4-29-13
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