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#134615 05-26-2011 02:23 PM
Joined: Jul 2010
Posts: 49
benfry Offline OP
Contributing Member (25+ posts)
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Contributing Member (25+ posts)

Joined: Jul 2010
Posts: 49
I am just very scared about my dad's reocurrence. I don't know what is going to happen now. His tumor is at the base of his tongue, he will need surgery to have it removed, after that he will need radiation. The surgery was scheduled for 06/08 but we received a call from the doctor's office saying it had to be postponed to 06/15. In the meantime I can't do anything but worry and be scared. This is a nightmare.


My Dad:
Squamous Cell Carcinoma,Stage 2, Right side of Tongue
Dx 7/19/10
Partial glossectomy and neck dissection 8/18/10
Reocurrence: 04/2011 Base/back of Tongue right side
Surgery: Partial glossectomy, flap 06/15/2011
Rad and Chemo finished on Sept/ Oct 2011
Recovery and assimilation. Enjoying life
benfry #134619 05-26-2011 04:20 PM
Joined: Jan 2011
Posts: 571
"Above & Beyond" Member (500+ posts)
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"Above & Beyond" Member (500+ posts)

Joined: Jan 2011
Posts: 571
I am so sorry your family is having to wait. I know what it's like. It feels like the doctors or you or someone needs to be doing something...anything in the meantime.

Unless you can actually get them to move up the surgery date, try to find ways to take your mind off of it. It is hard, but try to busy yourself and your dad with other things.

If at all possible, try to quiet your mind and accept the time frame (as long as your dad's doctors have assured you that it is acceptable to wait.) Sometimes, it's the only thing we can do when we can't control what's going on.

If you can get the worrying and fear under control, then you can spend time with your dad and really enjoy it before he has surgery and is launched into treatment.

Wishing you peace,

Sandy


Ex-spouse MISDIAGNOSED with SCC-HN IVa 12/10. Tonsils out 1/11. 4 teeth out 2/11. TX Erbitux x2, IMRT x2 2/11. 2nd opinion-benign BCC-NOT CANCER 3/11. TX stopped 3/11. New doctors 4/11. ENT agrees with 2nd opinion 5/11. ENT scoped him-all clear 7/11. Ordered MRI anyway. MRI 8/22/11 Result-all clear.
Sandy177 #134639 05-27-2011 03:41 AM
Joined: Nov 2006
Posts: 2,671
Patient Advocate (old timer, 2000 posts)
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Patient Advocate (old timer, 2000 posts)

Joined: Nov 2006
Posts: 2,671
Benfry - It is better if you can try to keep busy with other things - maybe give yourself a time limit for thinking about the wait because the mind tends to go to all the "what ifs" and the negatives, so if you can substitute the negatives with all the things that can go Right, it keeps away the bad thoughts. When I was so worried about my son, I would try to do something physical. The exercise gets oxygen to the brain and helps to make you feel better. I'm sure your Dad is worried, too so if you do things with him to occupy the time it would help both of you. I took my son to see a really funny movie and hearing him laugh made me feel good, too. Find out what your Dad likes and suggest it. And take time for doing things that you like, too!


Anne-Marie
CG to son, Paul (age 33, non-smoker) SCC Stage 2, Surgery 9/21/06, 1/6 tongue Rt.side removed, +48 lymph nodes neck. IMRTx28 completed 12/19/06. CT scan 7/8/10 Cancer-free! ("spot" on lung from scar tissue related to Pneumonia.)




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