| | Joined: Feb 2007 Posts: 1,940 "OCF across the pond" Patient Advocate (1000+ posts) | OP  "OCF across the pond" Patient Advocate (1000+ posts)
Joined: Feb 2007 Posts: 1,940 | Just like to say a great big fat thank you to our intrepid leader for the new identification handle for us Brits. It may seen strange to highlight those of us from outside America,but due to the vast differences in our healthcare systems and also the levels of technology and treatment protocols it may be helpful to newbies who may find information more appropriate for the country they reside in.
Thanks Brian x
Liz in the UK
Husband Robin aged 44 years Dx 8th Dec 2006 poorly differentiated SCC tongue with met to neck T1N2cM0 Surgery and Radiation.Finished TX April 2007
Recurrence June/07 died July 29th/07.
Never take your eye off the ball, it may just smack you in the mouth.
| | | | | Joined: Mar 2002 Posts: 4,918 Likes: 64 OCF Founder Patient Advocate (old timer, 2000 posts) | | OCF Founder Patient Advocate (old timer, 2000 posts)
Joined: Mar 2002 Posts: 4,918 Likes: 64 | Actually I thought it would be easier for you, and also our friends down under to identify people in your part of the world to commune with, if your name had a sub title. Not many have noticed it though they've been that way for awhile.
Brian, stage 4 oral cancer survivor. OCF Founder and Director. The first responsibility of a leader is to define reality. The last is to say thank you. In between, the leader is a servant.
| | | | | Joined: May 2010 Posts: 638 "OCF Down Under" "Above & Beyond" Member (500+ posts) | | "OCF Down Under" "Above & Beyond" Member (500+ posts)
Joined: May 2010 Posts: 638 | I noticed immediately and was going to make some smart arse comment but couldn't think of one. Didn't notice that the mother country had scored a title also though. So what are we going to call the Kiwis who think THEY are across the ditch or pond??
Karen Love of Life to Alex T4N2M0 SCC Tonsil, BOT, R lymph nodes Dx March 2010 51yrs. Unresectable. HPV+ve Tx Chemo x 3+1 cycles(cisplatin,docetaxel,5FU)- complete May 31 Chemoradiation (IMRTx35 + weekly cisplatin) Finish Aug 27 Return to work 2 years on 3 years out Aug 27 2013 NED  Still underweight
| | | | | Joined: Jun 2007 Posts: 5,260 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 5,260 | On the other side seems appropriate. LOL Just kidding. To me it's wherever we are, we are in the greatest. As for happenings in the USA , it seems we are being punished for our behavior in this great world and God is showing us that things can get much worse. There are just too many tradgedies occuring here and most are Major. Talk about the land down under... WOW it seems to be us. This might not be the right place for this post but if so. I'm sorry.
Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April.
--- Passed away 5/14/14, will be greatly missed by everyone here
| | | | | Joined: Mar 2002 Posts: 4,918 Likes: 64 OCF Founder Patient Advocate (old timer, 2000 posts) | | OCF Founder Patient Advocate (old timer, 2000 posts)
Joined: Mar 2002 Posts: 4,918 Likes: 64 | Well I've been scratching my head when it comes to our good neighbors up north across the border�. anyone what to make some suggestions? We certainly have a bunch of Canadians among our family.
Brian, stage 4 oral cancer survivor. OCF Founder and Director. The first responsibility of a leader is to define reality. The last is to say thank you. In between, the leader is a servant.
| | | | | Joined: Jul 2008 Posts: 507 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: Jul 2008 Posts: 507 | [quote=Brian Hill]Well I've been scratching my head when it comes to our good neighbors up north across the border�. anyone what to make some suggestions?[/quote]
We call them the 'Snowbirds' so many tend to migrate in for the Winter season - some arrive by air, some by RV. SoCal seems to be among there favorite Winter havens
But then I'm flying with a flock of them back to Toronto, then Quebec in a week, but unlike 'Snowbirds' I won't stay the season - just a few weeks.
Don
TXN2bM0 Stage IVa SCC-Occult Primary
FNA 6/6/08-SCC in node<2cm
PET/CT 6/19/08-SCC in 2nd node<1cm
HiRes CT 6/21/08
Exploratory,Tonsillectomy(benign),Right SND 6/23/08
PEG 7/3/08-11/6/08
35 TomoTherapy 7/16/08-9/04/08 No Chemo
Clear PET/CT 11/15/08, 5/15/09, 5/28/10, 7/8/11
| | | | | Joined: Mar 2008 Posts: 3,082 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Mar 2008 Posts: 3,082 | My Dad, God rest his soul, always thought highly of "Canucks" as he called Canadians. The medical and insurance issues are so different for US patients compared to England, Australia or Canada, it is a good idea to have an easy identifier.
My serious suggestion is [quote]OCF North.[/quote] After all, Canada is technically part of North America.
My not serious suggestions are : [quote]OCF Keener [/quote] or [quote]Eh, OCF[/quote] or [quote]OCF Loonie[/quote](its their one dollar coin not state of mind)or last and definitely least: [quote]OCF Hoser[/quote]
Charm (mixing my Jevity with a "double double" down my tube in honor of our Canadian members)
65 yr Old Frack
Stage IV BOT T3N2M0 HPV 16+
2007:72GY IMRT(40) 8 ERBITUX No PEG
2008:CANCER BACK Salvage Surgery
25GY-CyberKnife(5) 3 Carboplatin
Apaghia /G button
2012: CANCER BACK -left tonsilar fossa
40GY-CyberKnife(5) 3 Carboplatin
Passed away 4-29-13
| | | | | Joined: Jun 2007 Posts: 10,507 Likes: 7 Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) | | Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 10,507 Likes: 7 | I had also thought of OCF North. Or how about OCF's Northern Neighbors or OCF to the North.
The new titles for 'OCF across the pond' and 'OCF downunder' are wonderful!
Over on the east coast Snowbirds are anyone who heads south (usually FL) for the winter. It was always my dream to become a snowbird when I retired and spend my winters where it was warm.
ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive | | | | | Joined: Mar 2002 Posts: 4,918 Likes: 64 OCF Founder Patient Advocate (old timer, 2000 posts) | | OCF Founder Patient Advocate (old timer, 2000 posts)
Joined: Mar 2002 Posts: 4,918 Likes: 64 | Well these are some pretty good ones, and a diversion from cancer for a moment. I can't find any derogatory use of the word Canuck, The call themselves that proudly, there was a WW2 Canadian poster character/soldier by that name, one of the first and most famous jets in the world was named the Canuck, and of course they are found of their sports team named equally. So "OCF Canuks" will be it unless I hear an objection from one of them.
Brian, stage 4 oral cancer survivor. OCF Founder and Director. The first responsibility of a leader is to define reality. The last is to say thank you. In between, the leader is a servant.
| | | | | Joined: Aug 2007 Posts: 1,301 "OCF Down Under" Patient Advocate (1000+ posts) | | "OCF Down Under" Patient Advocate (1000+ posts)
Joined: Aug 2007 Posts: 1,301 | I was going to suggest asking Pandora99 (Donna) but see she is already "OCF Canuck".
I had also heard the term before and wondered what it meant.
A quick google gives so many and varied possibilities but I like this one....
As to the origin of "Canuck," it may have arisen as a blending of "Canadian" and the Inuit (Eskimo) word "inuk,"
History Leukoplakia bx 8/2006 SCC floor mouth T3N0M0- Verrucous Carcinoma.
14 hour 0p SCC-Right ND/excision/marginal mandibulectomy 9/2006, 4 teeth removed, flap from wrist, trach-ng 6 days- no chemo/rad.
6 ops and debulking (flap/tongue join) + bx's 2006-2012.
bx Jan 2012 Hyperkeratosis-Epithelial Dysplasia
24cm GIST tumour removed 8/2013. Indefinite Oral Chemo.
1/31/16 passed away peacefully surrounded by family
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