| | Joined: Jan 2006 Posts: 758 Likes: 3 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: Jan 2006 Posts: 758 Likes: 3 | Samantha, I'm praying for a miracle. Get a second opinion. You are too young and have too much to live for. Don't give up the fight!
Susan
SCC R-Lateral tongue, T1N0M0
Age 47 at Dx, non-smoker, casual drinker, HPV-
Surgery: June 2005
RT: Feb-Apr 2006
HBOT: 45 in 2008; 30 in 2013; 30 in 2022 -> Total 105!
Recurrence/Surgeries: Jan & Apr 2010
Biopsy 2/2011: Moderate dysplasia
Surgery 4/2011: Mild dysplasia
Dental issues: 2013-2026 (ORN of lower jaw)
2026-It’s back! 12-hour Surgery-Mandibulectomy w/ Fibula Free-Flap * FOM tumor SCC * Sarcoma in jaw likely caused by RT
| | | | | Joined: Jan 2009 Posts: 1,844 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: Jan 2009 Posts: 1,844 | Samantha is at John's Hopkins I believe...the only place to go from there that's not a step back is MDA. Where prudence is always get a second, I don't believe she'll find any better care.
Samantha. To hell with the odds, they don't matter. Your spirit is prepared to fight this monster and you have a weapon in radiation so if you have a "why" to live my dear...give it hell. Focus on your why and hold to it.
Rage on young lady, rage on.
Eric
Young Frack, SCC T4N2M0, Cisplatin,35+ rads,ND, RT Mandiblectomy w fibular free flap, facial paralysis, "He who has a "why" to live can bear with almost any "how"." -Nietzche "WARNING" PG-13 due to Sarcasm & WAY too much attitude, interact at your own risk.
| | | | | Joined: Nov 2006 Posts: 2,671 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Nov 2006 Posts: 2,671 | Keep up the fight, Samantha! We are all with you and sending love and prayers your way.
Anne-Marie
CG to son, Paul (age 33, non-smoker) SCC Stage 2, Surgery 9/21/06, 1/6 tongue Rt.side removed, +48 lymph nodes neck. IMRTx28 completed 12/19/06. CT scan 7/8/10 Cancer-free! ("spot" on lung from scar tissue related to Pneumonia.)
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