| | Joined: Mar 2008 Posts: 3,082 Patient Advocate (old timer, 2000 posts) | OP  Patient Advocate (old timer, 2000 posts)
Joined: Mar 2008 Posts: 3,082 | Just got back from my three month checkup with my prosthodontist He was doublchecking my left mandible because of a comment by the MRI radiologist when he asked me if I had been having a tickling feeling there. I had indeed. Turns out that the flap from my wrist that was grafted onto the tongue reconstruction had finally sprouted hair that grew long enough to tangle up the mucous and hold it all, Using tweezers he gingerly pulled and twisted until a nice solid slimy mess of hair and mucous came out. Feels much better now. Wonder what will happen to my tongue this Friday when the full moon happens  Keep the faith Charm
65 yr Old Frack
Stage IV BOT T3N2M0 HPV 16+
2007:72GY IMRT(40) 8 ERBITUX No PEG
2008:CANCER BACK Salvage Surgery
25GY-CyberKnife(5) 3 Carboplatin
Apaghia /G button
2012: CANCER BACK -left tonsilar fossa
40GY-CyberKnife(5) 3 Carboplatin
Passed away 4-29-13
| | | | | Joined: Dec 2010 Posts: 291 Gold Member (200+ posts) | | Gold Member (200+ posts)
Joined: Dec 2010 Posts: 291 | Charm,
I bet it does feel lots better! Are they going to have to continue to "tweeze and twist" on a regular basis in order to prevent you from becoming a werewolf? (we'll just have to remember to call you Jake from Twilight) That's my connection with the younger set from my teaching coming into play there.
Anne
SCC tongue 9/2010, excised w/clear margins:8 X 4 mm, 1 mm deep
Neck Met, 10/2010, 1 cm lymph node; 12/21/'10: Neck Diss 30 nodes, 29 clear, micro ECE node, part tongue gloss, no residual scc
IMRT & 6 cisplatin 1/20/11-2/28/11 at MDA
GIST tumor sarcoma, removed 9/2011, no chemo needed
Clear on both counts as of Fall, 2021
| | | | | Joined: Jan 2008 Posts: 706 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: Jan 2008 Posts: 706 | Charm-Neil was always concerned about that. The doctors told him that hair would not grow there but how could it not? Good thing you have an awesome sense of humor!
cg to husband, 48 Stage 1V head and neck SCC. First surgery 9/07. Radiation and several rounds of chemo followed. Mets to chest and lungs. "Life isn't about waiting for the storm to pass, it's about learning to dance in the rain." Went home to God on February 22, 2009.
| | | | | Joined: Jun 2007 Posts: 10,507 Likes: 7 Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) | | Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 10,507 Likes: 7 | Boy, thats something else! Never would have expected that one! I take it as a good sign you are healing. That hair growing long enough to trap some mucous means the flap really took. Thats what my plastic surgeon says anyway----when hair grows on the flap part its a good sign. Im so glad that it wasnt anything to be concerned about and easily corrected.
Cant wait to see you in a couple weeks!
ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive  | | | | | Joined: Aug 2010 Posts: 72 Supporting Member (50+ posts) | | Supporting Member (50+ posts)
Joined: Aug 2010 Posts: 72 | Charm,
Tim�s flap from his leg started growing hair in his mouth and the surgeons sent him to a radiation oncologist to burn it off. It�s very expensive and very painful (in many ways). Hot wax might be almost as painful, but it�s a minor fraction of the cost.
Someone else on the board mentioned laser removal.
Susan, CG to husband, diagnosed April 2010, age 56, non-smoker, no HPV
Mandibulectomy on left side May 2010 followed by 30 radiation, 3 cisplatin treatments.
| | | | | Joined: Dec 2010 Posts: 5,264 Likes: 4 "OCF Canuck" Patient Advocate (old timer, 2000 posts) | | "OCF Canuck" Patient Advocate (old timer, 2000 posts)
Joined: Dec 2010 Posts: 5,264 Likes: 4 | Yes I know someone else who has the same problem... Sorry folks kind of ack-ish if you know what I mean... This person's dr. recommended laser...
Now - I've had laser on a scar on my face and I have to say, it is not exquisitely painful... But it is uncomfortable - and I have a high pain tolerance - I can't imagine having it done to my tongue... My graft is from the inside of my wrist which is thankfully hair free...
Waxing - even a cold wax strip might be better...
But glad you are feeling better charm!
Cheryl : Irritation - 2004 BX: 6/2008 : Inflam. BX: 12/10, DX: 12/10 : SCC - LS tongue well dif. T2N1M0. 2/11 hemigloss + recon. : PND - 40 nodes - 39 clear. 3/11 - 5/11 IMRT 33 + cis x2, PEG 3/28/11 - 5/19/11 3 head, 2 chest scans - clear(fingers crossed) HPV-, No smoke, drink, or drugs, Vegan
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