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| Joined: May 2009 Posts: 1,412 Patient Advocate (1000+ posts) | OP Patient Advocate (1000+ posts) Joined: May 2009 Posts: 1,412 | I finished HBO a few weeks ago. Now, I have a hole in the floor of my mouth on the right side. it does not hurt all the time, but occasianally it will feel like someone is sticking me with a needle, and then that pain will shoot up to my ear. It is intermittent. I did notice that hole during HBO, but it was not very big. It is still not very big, but has grown some in the last few weeks. I hate to always go see my Drs if it is nothing. I am staying calm about this one. Is this something that can wait until my next appt. in April or should I try to get in next week during spring break? Have any of you ever experience a hole forming and not a lump that was C.
Angelia 31 at Dx. DX: 4/30/09, 10/21/09 SCC on floor of mouth, T1NOMO, T2N1M0 TX: 39 IMRT, 8 cisplatin 11/30/09 PET/CT: 11/03/09: Lymph node involvement PEG/PORT: 11/09 TX end: 02/01/10 PET Scan: 04/05/10 clear PEG Out: 06/21/10 Biopsy: 12/23/10: fibrosis HBO: 01/04/11 - ORN Baby girl born 11-30-12
| | | | Joined: Jul 2009 Posts: 453 "OCF Down Under" Platinum Member (300+ posts) | "OCF Down Under" Platinum Member (300+ posts) Joined: Jul 2009 Posts: 453 | Hi Angelia, if I was you I'd give your doctor a call to have a chat about it. When Steve first admitted to me that something was wrong the way he described it was there was a hole under his tongue. Now I don't know if that's just how he described it or if that's what actually was there, he has never let me see. I don't want to scare you or anything and I'm by no means medically educated but please give your doctor a call to have this checked. If only to ease your mind. Hoping and praying that it's nothing.
Wife to Steve 43. DX 5 May 09. T4N2MO SCC tongue, floor of mouth, lymph nodes & jaw bone No surgery Teeth removed 06/07/2009 radiation 13/07/2009 x 7wks chemo 15/07/2009 x 3 Cisplatin last TX 28/08/2009 25/11/2009 PET-lymph node activity. 08/01/2010 CT Scan-ALL CLEAR 03/03/2010-Peg removed 01/2013 left side of Jaw removed and replaced with pectoral flap. 23/12/2020 scan show lesion in tongue 01/2021 SCC stage 3 base of tongue diagnosed 01/03/2021 chemotherapy started.
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