| | Joined: Mar 2011 Posts: 22 Member | OP  Member
Joined: Mar 2011 Posts: 22 | Hi, I am jou.
I had an ulcer on the left side of my tongue for 2 years and finally did a biopsy. The biopsy result shows that I have dysplastic epithelium - severe form. The doctor suggested that I have a surgery to remove the ulcer. I sought a second opinion and the second doctor is agreeable to the surgery. After researching on my diagnosis, I decided to checked into a cancer centre for further diagnosis. I did another biopsy and went for a MRI scan. My results will come in 2 days later at a tumour board.
Now, I am anxiously waiting for the results. Uncertain if it is tongue cancer. This site has many brave people. But how did you deal with getting the results and the wait???
Last edited by joucads; 03-05-2011 07:26 AM.
joucads
DX: T1N0 Tongue Cancer 23/3/2011
Partial Glossectomy 30/3/2011
Clear margins.
| | | | | Joined: Jun 2007 Posts: 10,507 Likes: 7 Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) | | Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 10,507 Likes: 7 | Welcome to OCF. You sound like you are doing the right things by getting second opinions and going to a cancer center. Excellent job of being a good patient who advocates for themselves. Waiting is so hard! The only thing I can say is keep yourself busy so the waiting time flys by. Hopefully your biopsy will come back as negative. Best wishes!
ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive  | | | | | Joined: Mar 2011 Posts: 22 Member | | OP Member
Joined: Mar 2011 Posts: 22 | I keep playing in my mind what happened if it is cancer? I worried about the cost and chemo/rad therapy scared me to hell.
joucads
DX: T1N0 Tongue Cancer 23/3/2011
Partial Glossectomy 30/3/2011
Clear margins.
| | | | | Joined: Jan 2009 Posts: 1,844 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: Jan 2009 Posts: 1,844 | You know, it's funny that you think about the monetary cost of staying alive...I say that because I thought the same thing when I was diagnosed. Now I find it odd. Wait for the biopsy, "IF" (that's a big if) it comes back positive, the last thing you'll worry about is money, you'll just want to live.
Keep your chin up, it's not cancer until a biopsy says it is!
Eric
Young Frack, SCC T4N2M0, Cisplatin,35+ rads,ND, RT Mandiblectomy w fibular free flap, facial paralysis, "He who has a "why" to live can bear with almost any "how"." -Nietzche "WARNING" PG-13 due to Sarcasm & WAY too much attitude, interact at your own risk.
| | | | | Joined: Mar 2011 Posts: 22 Member | | OP Member
Joined: Mar 2011 Posts: 22 | Thank you both for your kind words and encouragements. Appreciate it. Thanks.
joucads
DX: T1N0 Tongue Cancer 23/3/2011
Partial Glossectomy 30/3/2011
Clear margins.
| | | | | Joined: Nov 2006 Posts: 2,671 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Nov 2006 Posts: 2,671 | It is so good that you came here. Everyone I'm sure agrees that waiting is the worst and keeping busy whether it's with your body or with your mind, is very important. The mind tends to think of all the things that could go wrong and it takes conscious effort to crowd out the bad thoughts and replace them with good ones. You need to think about all the things that could go right, and like Eric says: "It's not cancer until a biopsy says it is"! Meanwhile you can get all kinds of great information on this site by visiting the main page and clicking on all the links that you feel you need to know about. This way you can be better prepared for your appointment with the doctor with any questions you need answered with him/her and for questions you might have on this forum. It really helps to take someone with you to your appointment so that they can help you remember what suggestions the tumor board has for you. When my son had his appointment with the tumor board, a nurse friend of mine and my daughter and I all went with him and we all asked questions which really helped us later when we talked about the suggestions made. So until your appointment, just try to stay busy with whatever you like to do and let us know what happens.
Anne-Marie
CG to son, Paul (age 33, non-smoker) SCC Stage 2, Surgery 9/21/06, 1/6 tongue Rt.side removed, +48 lymph nodes neck. IMRTx28 completed 12/19/06. CT scan 7/8/10 Cancer-free! ("spot" on lung from scar tissue related to Pneumonia.)
| | | | | Joined: Mar 2011 Posts: 22 Member | | OP Member
Joined: Mar 2011 Posts: 22 | While waiting, I reflect about my life and believe that everything happen for a reason. Even getting the diagnosis might be god's plan to make me aware of the fact that we need to treasure what matters most to us in our life. There are alway up and down in our life and as long as we get pass today, tomorrow is alway better.
Wish me luck tomorrow.
joucads
DX: T1N0 Tongue Cancer 23/3/2011
Partial Glossectomy 30/3/2011
Clear margins.
| | | | | Joined: Nov 2006 Posts: 2,671 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Nov 2006 Posts: 2,671 | The very best of luck to you and all good wishes going your way for your appointment with the tumor board tomorrow! Make a list of any questions you have you have for them.
Anne-Marie
CG to son, Paul (age 33, non-smoker) SCC Stage 2, Surgery 9/21/06, 1/6 tongue Rt.side removed, +48 lymph nodes neck. IMRTx28 completed 12/19/06. CT scan 7/8/10 Cancer-free! ("spot" on lung from scar tissue related to Pneumonia.)
| | | | | Joined: Sep 2010 Posts: 179 "OCF Down Under" Senior Member (100+ posts) | | "OCF Down Under" Senior Member (100+ posts)
Joined: Sep 2010 Posts: 179 | Hi Joucads,
People often say to me that they dont think they can handle what i have gone through but let me tell you that the human spririt is STRONG. Our survival instinct always comes out and we will always find the strength to deal with anything that is thrown at us. Chemo/rad is harsh but most of us on this board has gone through it and come out ok. I hope that your diagnosis is negative and you wont need to worry about cancer.
Minh
35 Yrs old
03/10 SCC T1-T2
Partial Glossectemy end March - margins not clear enough.
While waiting for resection - cancer returned,2 new cancerous lumps
Re-section End May & flap from cheek attatched. Margins clear.
Mid June - 4 teeth out
Mid July -32 Rads and 3 Cisplatin
6th Sept 10 Finished Treatment!!
| | | | | Joined: Mar 2011 Posts: 22 Member | | OP Member
Joined: Mar 2011 Posts: 22 | Hi all,
I finally gotten my results. My biopsy prove negative but my MRI scan shows that there is something penetrating into the tongue. The doctors are unable to interpret what exactly is that. So their suggestion is to go for surgery and remove part of my tongue and sent it to the lab for further examination. If its cancer then they will remove a wider margin and 20/30 lymph nodes from my neck.
I am wondering if there are a better way to interpret the MRI scan? Can anyone help?
joucads
DX: T1N0 Tongue Cancer 23/3/2011
Partial Glossectomy 30/3/2011
Clear margins.
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