#13064 12-07-2007 07:28 AM | Joined: Sep 2007 Posts: 98 Senior Member (75+ posts) | OP  Senior Member (75+ posts)
Joined: Sep 2007 Posts: 98 | I met with the ENT on Tuesday, Dec 4th, and discussed the two uptake spots found on the PET scan done on Nov 20th. My radiation ended on Aug 23, so it has been just over 3 months that I had the PET scan. They said the spot on my neck was to small to worry about now. The uptake on the side of my tongue felt a little hard, so he wanted to get me on the operating table and take a biopsy to clarify if it was scar or healing tissue, or residual cancer. I am scheduled to go on Dec 20th. He said there is a 50/50 chance it could be either way, and just wanted to make sure. He didn't seem overly worried that it was cancer, which I guess I could take as a good sign. He did do a really thourogh job of feeling around my neck and tongue. And so I wait again.
Thank you all for your support and please keep me in your prayers.
Tom
Tom
SCC T4N1M0 left side tongue & 1 node
Dx 05/21/07 42 yrs old
40 Tx IMRT @ 70 Gy started 06/25/07
Cysplatin & 5fu 1st & 4th wks
treatment ended 08/23/07
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#13065 12-07-2007 10:19 AM | Joined: Jan 2004 Posts: 1,116 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: Jan 2004 Posts: 1,116 | Tom, I will certainly keep you in my prayers...God Bless, Carol
Diagnosed May 2002 with Stage IV tongue cancer, two lymph nodes positive. Surgery to remove 1/2 tongue, neck dissection, 35 radiation treatments. 11/2007, diagnosed with cancer of soft palate, surgery 12/14/07, jaw split. 3/24/10, cancer on tongue behind flap, need petscan, surgery scheduled 4/16/10
---update passed away 8-27-11---
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#13066 12-07-2007 02:19 PM | Joined: Jun 2007 Posts: 510 "Above & Beyond" Member (300+ posts) | | "Above & Beyond" Member (300+ posts)
Joined: Jun 2007 Posts: 510 | Tom: Prayers you got! Hoping and praying for the very best outcome....
Lois & Buzz in NC
CG to 77 y/o hubby;SCC Alveolar Ridge; Wake Forest Baptist Hosp surgery: 07/19/07; bi mod radical resection/jaw replacement;
T2 N2-B M0 Stage IV-A
28 IMRT +
6 Paclitaxel/Carboplatin
Getting stronger every day!
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#13067 12-07-2007 03:20 PM | Joined: Sep 2006 Posts: 493 Platinum Member (300+ posts) | | Platinum Member (300+ posts)
Joined: Sep 2006 Posts: 493 | try to stay positive while you wait and me and my family will pray for you
Tim
Tim Stoj
60 yr old. Dx Jun 06 with BOT Stage IV. Neck dissesction on 19 Jun 06. Started Tx on 21 Aug 06/completed 33 IMRTs and 3 CT (2 Cisplat & 1 Carboplat) on 5 Oct 06.
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#13068 12-07-2007 04:18 PM | Joined: Jun 2007 Posts: 5,260 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 5,260 | Tom I had a PetScan today and have 2 cd's they made me to send to the James Cancer Center at Ohio State. MY Dr felt my tongue and felt a hard spot too. I wish oyu luck with your resulta and I hope I get some good news after I mail them the CDs. They did my tongue and lungs.
Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April.
--- Passed away 5/14/14, will be greatly missed by everyone here
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#13069 12-07-2007 04:43 PM | Joined: Feb 2004 Posts: 598 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: Feb 2004 Posts: 598 | Tom & Jim --
If you do a search on the forums for PET Scan results, you will find lots of discussions of false positives and the impact of radiation and surgery on PET images.
I went through the same thing in October, with some lymph nodes that showed activity. I was 2.5 months out from treatment at the time. Both the ENT\Surgeon (same doctor as EZJim has) and the RO said not to worry. Easier said than done.
I had my follow up PET scan on Tuesday, and go for the results and a follow up on Monday. Keep us all posted here, and hopefully all 3 of us will have good outcomes!
Jeff
SCC Right BOT Dx 3/28/2007
T2N2a M0G1,Stage IVa
Bilateral Neck Dissection 4/11/2007
39 x IMRT, 8 x Cisplatin Ended 7/11/07
Complete response to treatment so far!!
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#13070 12-08-2007 02:51 PM | Joined: Sep 2007 Posts: 98 Senior Member (75+ posts) | | OP Senior Member (75+ posts)
Joined: Sep 2007 Posts: 98 | Thank you all for your prayers and support. Jeff, I did what you said and stopped pressing on my lymph nodes, and actually all the swelling has disappeared on my neck in the past couple of weeks.
That would sure end the year on a good note with everyone having good outcomes from the PET scans.
I meet with my chemo Dr next Thursday and my radiation Dr on Friday. Then the following week on the 20th I get the biopsy.
I will keep you all posted.
Thanks,
Tom
Tom
SCC T4N1M0 left side tongue & 1 node
Dx 05/21/07 42 yrs old
40 Tx IMRT @ 70 Gy started 06/25/07
Cysplatin & 5fu 1st & 4th wks
treatment ended 08/23/07
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#13071 12-08-2007 04:08 PM | Joined: May 2007 Posts: 104 Senior Member (100+ posts) | | Senior Member (100+ posts)
Joined: May 2007 Posts: 104 | My thoughts and prayers are with you.....it is such a scary thing to go thru. Sure hoping for scar tissue.
Jordan's Mom. Linda
She fought the fight with courage, hope and dedication. Ten months of battling tongue cancer. They thought they had it after each treatment. Not to be. Christa died at 32 y/o in Nov. '07.
| | | | | Joined: Sep 2007 Posts: 98 Senior Member (75+ posts) | | OP Senior Member (75+ posts)
Joined: Sep 2007 Posts: 98 | I had my biopsy on Dec 20th and at that time the Dr said it looked like just scar tissue and inflamation. Dr wanted to do a biopsy after an uptake appeared on my first post treatment PET scan on Nov 20th. My treatment ended Aug 23.
The Dr called me last night at 8:30 and said the pathology report showed NO signs of cancer! He said we will keep an eye on it clinically.
I am speechless as I absorb this great news!
Tom
SCC T4N1M0 left side tongue & 1 node
Dx 05/21/07 42 yrs old
40 Tx IMRT @ 70 Gy started 06/25/07
Cysplatin & 5fu 1st & 4th wks
treatment ended 08/23/07
| | | | | Joined: Sep 2006 Posts: 8,311 Senior Patient Advocate Patient Advocate (old timer, 2000 posts) | | Senior Patient Advocate Patient Advocate (old timer, 2000 posts)
Joined: Sep 2006 Posts: 8,311 |
David
Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
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