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Michelle Ann #128772 01-29-2011 05:40 PM
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Michelle

When I get thrush, I use Mycelex lozenges (generic name is Clotrimazole 10 mg troches) which dissolve on your tongue and are really effective. Unlike Diflucan which courses through your whole body and can do a number on your kidney and liver, this just hits topically on the thrush on your tongue. You might want to ask your doctor next time to prescribe some for you.
good luck - I hate it when the thrush comes back but I found the lozenges helpful
Charm


65 yr Old Frack
Stage IV BOT T3N2M0 HPV 16+
2007:72GY IMRT(40) 8 ERBITUX No PEG
2008:CANCER BACK Salvage Surgery
25GY-CyberKnife(5) 3 Carboplatin
Apaghia /G button
2012: CANCER BACK -left tonsilar fossa
40GY-CyberKnife(5) 3 Carboplatin

Passed away 4-29-13
Charm2017 #128779 01-29-2011 08:18 PM
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To rinse with the salt water and baking soda concoction...
Use 16 oz (a pint) of warm water, 2 tsp baking soda and 2 tsp salt. Or decrease cut it in half for a smaller amount. Rinse several times per day.

Another thing to think about, sanitizing glasses, utensils or anything you put into your mouth. Anything including your toothbrush needs to be sanitized and kept away from other household members things. Its necessary to prevent it from spreading to others. In fact the nurse told me to throw out my toothbrush and get a new one. I was so paranoid about it coming back that I would wash my sheets and blankets in hot water and added bleach to make sure I killed all the germs.

Hope you are doing ok besides the thrush.


Christine
SCC 6/15/07 L chk & by L molar both Stag I, age44
2x cispltn-35 IMRT end 9/27/07
-65 lbs in 2 mo, no caregvr
Clear PET 1/08
4/4/08 recur L chk Stag I
surg 4/16/08 clr marg
215 HBO dives
3/09 teeth out, trismus
7/2/09 recur, Stg IV
8/24/09 trach, ND, mandiblctmy
3wks medicly inducd coma
2 mo xtended hospital stay, ICU & burn unit
PICC line IV antibx 8 mo
10/4/10, 2/14/11 reconst surg
OC 3x in 3 years
very happy to be alive smile
Charm2017 #128843 01-31-2011 09:02 AM
Joined: Jan 2011
Posts: 168
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Thanks for the tip on the lozenges. I will ask my doctor about them. -Michelle


SCC left tonsil, stage IV, HPV+, metastatic to one lymph node. Biopsy 12/23/10; tonsillectomy 1/13/11; DX 1/25/11; Peg in 1/28/11. Peg out 6/29. TX 1/31/11-3/21/11: 35 IMRT plus 3 Cisplatin. Pet-Scan 6/20/11 = CLEAR! Three years out, learning to live with the long-term side effects of radiation while reminding myself to feel blessed.
ChristineB #128844 01-31-2011 09:09 AM
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Thanks for the info on the rinse. Today I start my radiation. Tomorrow I have my first chemo. It feels like everything that happened prior to today was dress rehearsal and now the performance begins. My feeding tube is causing me a little pain, but the kind of pain the doctor said I would get the first few days. The worse thing of all is feeling so debilitated. I have always done so much and felt so robust. Now I feel like my life is shrinking. I know it's temporary, but I still feel feeble and weak and small. My partner and kids are great and we have so many friends and family who have helped us so much already, and I am grateful, but man nothing is worse than feeling so limited in what I can do. But there is a time for everything, right? Ecclisiastes says so; this must be my time to be sick. -Michelle


SCC left tonsil, stage IV, HPV+, metastatic to one lymph node. Biopsy 12/23/10; tonsillectomy 1/13/11; DX 1/25/11; Peg in 1/28/11. Peg out 6/29. TX 1/31/11-3/21/11: 35 IMRT plus 3 Cisplatin. Pet-Scan 6/20/11 = CLEAR! Three years out, learning to live with the long-term side effects of radiation while reminding myself to feel blessed.
Michelle Ann #128845 01-31-2011 09:20 AM
Joined: Jan 2009
Posts: 476
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Michelle, Just wanted to wish you "good luck" as you start your treatments today. Keep a calendar on the fridge that you can cross off each day, it helps to track the days. John kept a notebook and wrote down the date at the top of each page. He would write down EVERYTHING he consumed that day and what time - food, liquids, meds etc. He had really bad nausea and was on both Zofran and Compazine through treatments. Don't let this get on top of you. Continue to post all your questions, comments and concerns. YOU CAN DO THIS!!! My mother's favorite saying was "This too shall pass". Good luck.


Wanda (47) caregiver to husband John (56) age at diag.(2009)
1-13-09 diagnosed Stage IV BOT SCC (HPV+)
2-12-09 PEG placed, 7-6-09 removed
Cisplatin 7 weeks, 7 weeks (35) IMRT
4-15-09 - treatment completed
8-09,12-09-CT Scans clear, 4-10,6-11-PET Scans clear
4-2013 - HBO (30 dives) tooth extraction
10-2019 - tooth extraction, HBO (10 dives)
11-2019 - Left lateral tongue SCC - Stage 2
slim #128850 01-31-2011 10:28 AM
Joined: Sep 2009
Posts: 177
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God Bless Michelle, hope all goes well.

Wendy


Wendy
46yrs@ DX 9/16/09 T1N0 SCC of leftlat tongue, poorly differentiated.Partial glosectomy 10/01/09 & 10/16/09 & 11/10/09 60-70% tongue removed, Radical fff, 38 nodes-clear, no rads/chemo. 3 petscans-clear

slim #128851 01-31-2011 10:51 AM
Joined: Jul 2010
Posts: 531
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believe ME this thrush IS contagious! I got it from Ron...and after my first course of Nystatin ended last week...it's still not cleared up,it's just about there...but not and now after reading about what Diflucan does to your kidneys and liver and today Ron tells me when he was on it his feet swelled up...kinda worried him a bit seeing when he had his Non Hodgkins Lymphoma that his feet swelled up...but he said when he was done they went down to normal, ya he didn't say one word to me either til today when I am at work...men! So I wouldn't want that stuff I may end up calling the doc again and getting more Nystatin I guess. Unless you all really think just by using the salt water and soda can clear up this little bit. And also Ron bought plastic utensils he uses them now instead of my silver ware. I got to get my darn dishwasher fixed...keep forgetting. But he did get that Magic Mouthwash, his has 4 things in in I thought there were only 3.


CG to Ron
Out of Pain 4/3/13
4/12-lung and under chin growth no treatment
1/13/12 lung biopsy
6/11 recur 6/30 resection #2 Clear margins
Clear 12/10
Surg 5/13/10 neck dis/nodes part gloss/flap R thigh all teeth out
RAD 30 8/10
DX 4/2/10 "Oral Cavity" T3NOMO
12/28/07 Non Hodg Lymph remission 7/08
passed away 4.3.15, RIP Ron, you are greatly missed
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