| Joined: Mar 2008 Posts: 3,082 Patient Advocate (old timer, 2000 posts) | Patient Advocate (old timer, 2000 posts) Joined: Mar 2008 Posts: 3,082 | Michelle
When I get thrush, I use Mycelex lozenges (generic name is Clotrimazole 10 mg troches) which dissolve on your tongue and are really effective. Unlike Diflucan which courses through your whole body and can do a number on your kidney and liver, this just hits topically on the thrush on your tongue. You might want to ask your doctor next time to prescribe some for you. good luck - I hate it when the thrush comes back but I found the lozenges helpful Charm 65 yr Old Frack Stage IV BOT T3N2M0 HPV 16+ 2007:72GY IMRT(40) 8 ERBITUX No PEG 2008:CANCER BACK Salvage Surgery 25GY-CyberKnife(5) 3 Carboplatin Apaghia /G button 2012: CANCER BACK -left tonsilar fossa 40GY-CyberKnife(5) 3 Carboplatin Passed away 4-29-13
| | | | Joined: Jun 2007 Posts: 10,507 Likes: 7 Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) | Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) Joined: Jun 2007 Posts: 10,507 Likes: 7 | To rinse with the salt water and baking soda concoction... Use 16 oz (a pint) of warm water, 2 tsp baking soda and 2 tsp salt. Or decrease cut it in half for a smaller amount. Rinse several times per day.
Another thing to think about, sanitizing glasses, utensils or anything you put into your mouth. Anything including your toothbrush needs to be sanitized and kept away from other household members things. Its necessary to prevent it from spreading to others. In fact the nurse told me to throw out my toothbrush and get a new one. I was so paranoid about it coming back that I would wash my sheets and blankets in hot water and added bleach to make sure I killed all the germs.
Hope you are doing ok besides the thrush. ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive | | | | Joined: Jan 2011 Posts: 168 Senior Member (100+ posts) | OP Senior Member (100+ posts) Joined: Jan 2011 Posts: 168 | Thanks for the tip on the lozenges. I will ask my doctor about them. -Michelle
SCC left tonsil, stage IV, HPV+, metastatic to one lymph node. Biopsy 12/23/10; tonsillectomy 1/13/11; DX 1/25/11; Peg in 1/28/11. Peg out 6/29. TX 1/31/11-3/21/11: 35 IMRT plus 3 Cisplatin. Pet-Scan 6/20/11 = CLEAR! Three years out, learning to live with the long-term side effects of radiation while reminding myself to feel blessed.
| | | | Joined: Jan 2011 Posts: 168 Senior Member (100+ posts) | OP Senior Member (100+ posts) Joined: Jan 2011 Posts: 168 | Thanks for the info on the rinse. Today I start my radiation. Tomorrow I have my first chemo. It feels like everything that happened prior to today was dress rehearsal and now the performance begins. My feeding tube is causing me a little pain, but the kind of pain the doctor said I would get the first few days. The worse thing of all is feeling so debilitated. I have always done so much and felt so robust. Now I feel like my life is shrinking. I know it's temporary, but I still feel feeble and weak and small. My partner and kids are great and we have so many friends and family who have helped us so much already, and I am grateful, but man nothing is worse than feeling so limited in what I can do. But there is a time for everything, right? Ecclisiastes says so; this must be my time to be sick. -Michelle
SCC left tonsil, stage IV, HPV+, metastatic to one lymph node. Biopsy 12/23/10; tonsillectomy 1/13/11; DX 1/25/11; Peg in 1/28/11. Peg out 6/29. TX 1/31/11-3/21/11: 35 IMRT plus 3 Cisplatin. Pet-Scan 6/20/11 = CLEAR! Three years out, learning to live with the long-term side effects of radiation while reminding myself to feel blessed.
| | | | Joined: Jan 2009 Posts: 476 Platinum Member (300+ posts) | Platinum Member (300+ posts) Joined: Jan 2009 Posts: 476 | Michelle, Just wanted to wish you "good luck" as you start your treatments today. Keep a calendar on the fridge that you can cross off each day, it helps to track the days. John kept a notebook and wrote down the date at the top of each page. He would write down EVERYTHING he consumed that day and what time - food, liquids, meds etc. He had really bad nausea and was on both Zofran and Compazine through treatments. Don't let this get on top of you. Continue to post all your questions, comments and concerns. YOU CAN DO THIS!!! My mother's favorite saying was "This too shall pass". Good luck.
Wanda (47) caregiver to husband John (56) age at diag.(2009) 1-13-09 diagnosed Stage IV BOT SCC (HPV+) 2-12-09 PEG placed, 7-6-09 removed Cisplatin 7 weeks, 7 weeks (35) IMRT 4-15-09 - treatment completed 8-09,12-09-CT Scans clear, 4-10,6-11-PET Scans clear 4-2013 - HBO (30 dives) tooth extraction 10-2019 - tooth extraction, HBO (10 dives) 11-2019 - Left lateral tongue SCC - Stage 2
| | | | Joined: Sep 2009 Posts: 177 Senior Member (100+ posts) | Senior Member (100+ posts) Joined: Sep 2009 Posts: 177 | God Bless Michelle, hope all goes well.
Wendy
Wendy 46yrs@ DX 9/16/09 T1N0 SCC of leftlat tongue, poorly differentiated.Partial glosectomy 10/01/09 & 10/16/09 & 11/10/09 60-70% tongue removed, Radical fff, 38 nodes-clear, no rads/chemo. 3 petscans-clear
| | | | Joined: Jul 2010 Posts: 531 "Above & Beyond" Member (500+ posts) | "Above & Beyond" Member (500+ posts) Joined: Jul 2010 Posts: 531 | believe ME this thrush IS contagious! I got it from Ron...and after my first course of Nystatin ended last week...it's still not cleared up,it's just about there...but not and now after reading about what Diflucan does to your kidneys and liver and today Ron tells me when he was on it his feet swelled up...kinda worried him a bit seeing when he had his Non Hodgkins Lymphoma that his feet swelled up...but he said when he was done they went down to normal, ya he didn't say one word to me either til today when I am at work...men! So I wouldn't want that stuff I may end up calling the doc again and getting more Nystatin I guess. Unless you all really think just by using the salt water and soda can clear up this little bit. And also Ron bought plastic utensils he uses them now instead of my silver ware. I got to get my darn dishwasher fixed...keep forgetting. But he did get that Magic Mouthwash, his has 4 things in in I thought there were only 3.
CG to Ron Out of Pain 4/3/13 4/12-lung and under chin growth no treatment 1/13/12 lung biopsy 6/11 recur 6/30 resection #2 Clear margins Clear 12/10 Surg 5/13/10 neck dis/nodes part gloss/flap R thigh all teeth out RAD 30 8/10 DX 4/2/10 "Oral Cavity" T3NOMO 12/28/07 Non Hodg Lymph remission 7/08 passed away 4.3.15, RIP Ron, you are greatly missed
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