| Joined: Jul 2010 Posts: 95 Supporting Member (50+ posts) | OP Supporting Member (50+ posts) Joined: Jul 2010 Posts: 95 | I wanted to share the editorial written by Dr Surbone ( http://bit.ly/fUfHQI) about my recent paper in Surgical Oncology ( http://bit.ly/i4T6XE) . Her Editorial is very insightful and adds depth and dimensions to the issues of care of patients with cancer. I hope that you will find it of interest. Itzhak Brook MD MSc | | | | Joined: Mar 2008 Posts: 3,082 Patient Advocate (old timer, 2000 posts) | Patient Advocate (old timer, 2000 posts) Joined: Mar 2008 Posts: 3,082 | Great editorial Doc. thanks for sharing. It's very well written. Well worth reading. charm 65 yr Old Frack Stage IV BOT T3N2M0 HPV 16+ 2007:72GY IMRT(40) 8 ERBITUX No PEG 2008:CANCER BACK Salvage Surgery 25GY-CyberKnife(5) 3 Carboplatin Apaghia /G button 2012: CANCER BACK -left tonsilar fossa 40GY-CyberKnife(5) 3 Carboplatin Passed away 4-29-13
| | | | Joined: Sep 2009 Posts: 701 Likes: 1 "Above & Beyond" Member (500+ posts) | "Above & Beyond" Member (500+ posts) Joined: Sep 2009 Posts: 701 Likes: 1 | Dr. Brook, I enjoyed your article...very interesting and beautifully written. Thank you for sharing it. I can imagine many surgeons getting a wake up call from your article.
Anita
Anita (68) CG to husband, Clark, 79, DX SCC 11/07, T4N0Mx, PEG 1/08, RAD, post rad infection 3/08, HBOT 40 dives, ORN, Surg 11/09 mandibulectomy w/fibular graft. Plastic Surg 4/10, 12/10, 3/11, 10/11, 4/12, 10/12. All PETS clear, PEG out 1/11. 6/11 non union jaw fracture Fractured jaw w/surgery 7/14 Aspiration pneumonia 7/21, 10/22 PEG 7/21 Botox injections
| | | | Joined: Jul 2008 Posts: 507 "Above & Beyond" Member (500+ posts) | "Above & Beyond" Member (500+ posts) Joined: Jul 2008 Posts: 507 | Dr. Brooks, Thanks for writing and posting your article.
Although my trials and tribulations don't compared to yours, I do relate.
For me the surgical prep experience and then waking up in the hospital ICU ward was sheer trauma and terror - just for an ND, a bunch of biopsies and a (wide) Tonsillectomy! The place was a nightmare - doors wide open and alarms in rooms up and down the hall going off constantly. Despite the meds, I don't think I got much sleep until the poor guy next to me finally died.
After that I needed a stay in a Psycho unit. I left the hospital in a state of shock!
Don TXN2bM0 Stage IVa SCC-Occult Primary FNA 6/6/08-SCC in node<2cm PET/CT 6/19/08-SCC in 2nd node<1cm HiRes CT 6/21/08 Exploratory,Tonsillectomy(benign),Right SND 6/23/08 PEG 7/3/08-11/6/08 35 TomoTherapy 7/16/08-9/04/08 No Chemo Clear PET/CT 11/15/08, 5/15/09, 5/28/10, 7/8/11
| | | | Joined: Sep 2006 Posts: 8,311 Senior Patient Advocate Patient Advocate (old timer, 2000 posts) | Senior Patient Advocate Patient Advocate (old timer, 2000 posts) Joined: Sep 2006 Posts: 8,311 | DonB said....
"The place was a nightmare - doors wide open and alarms in rooms up and down the hall going off constantly. Despite the meds, I don't think I got much sleep until the poor guy next to me finally died."
There's a Horror movie script ready to be written!
David
Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
| | | | Joined: Jun 2007 Posts: 5,260 Patient Advocate (old timer, 2000 posts) | Patient Advocate (old timer, 2000 posts) Joined: Jun 2007 Posts: 5,260 | LOL David. Thanks for the post Dr. Very well written and understandable.
Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April. --- Passed away 5/14/14, will be greatly missed by everyone here
| | | | Joined: Jul 2010 Posts: 95 Supporting Member (50+ posts) | OP Supporting Member (50+ posts) Joined: Jul 2010 Posts: 95 | I am grateful to have read all the messages. It is my hope that physicians would be able to gain insight into the hardship their patients go through and be more caring and compassionate. Itzhak Brook MD | | | | Joined: Jul 2010 Posts: 95 Supporting Member (50+ posts) | OP Supporting Member (50+ posts) Joined: Jul 2010 Posts: 95 | I wanted to share with the readers a message I received from a head and neck surgeon who cares for cancer patient. He wrote it to me after reading my recent manuscript about my experiences as a patient. " Dr. Brook, Thank you for writing the essay on your experience as a patient that I read through your blog http://dribrook.blogspot.com. It was eloquent and moving. You exposed the shortcomings of healthcare that our patients are often reluctant to bring forth, or simply cannot appreciate as laypeople. I am a head and neck surgeon in private practice. You have reinforced my view that, for the oncology patient, there is no subtitute for a personal relationship between patient and treating physician. A more personal relationship induces more communication and compels the treating physician to be more attentive. Cancer is simply too complex and too overwhelming, for most patients, to allow care to be administered in the manner of our current model. The treating physician, whether it be the surgeon, radiation oncologist, or hematologist oncologist, must be aware of the patients status constantly. He must be willing to orchestrate care and shield the patient from inappropriate or incompetent care. He must be willing to stay in frequent contact with the patient. Substandard nursing care is pervasive and adds an extra burden for the vigilant physician. The paradigm for care of which I speak is labor intensive and not financially renumerative, but it is best for the patient and most gratifying for the healer." It is my hope that many more physicians will be willing to recognize these issues and implement them. Itzhak Brook MD
Last edited by dribrook; 01-18-2011 08:33 AM.
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