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This is a news story, but the link to the original study is at the bottom of it. It looks at outcomes from major institutions vs small regional hospitals. I suspect you already know what the outcomes are. When you consider that there are a large number of oral cancer patients that are treated as outpatients by ENT doctors that are not even looked at by this study, the situation is likely even worse.

http://oralcancernews.org/wp/prereferral-head-and-neck-cancer-treatment/

Last edited by Brian Hill; 01-06-2011 09:23 PM. Reason: fix link

Brian, stage 4 oral cancer survivor. OCF Founder and Director. The first responsibility of a leader is to define reality. The last is to say thank you. In between, the leader is a servant.
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Hi, Brian -
I'm not a dental professional & couldn't sign up for the drbicuspid site, so I couldn't read the article.
Any other way I could read it?

Marlene


Marginal mandibulectomy 6/17/08 resulted in DX of Stage I SCC - gingiva (3 mm) right mandible, buccal side. Clear margins. Occasional social drinker. Smoked last cigarette in 1979. Clear pet: 12/08; 7/20/09. Yay!
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I can pretty much guess that the morbidity rate is substantially higher in regional/local hospitals than at a CCC or CC. Going to a CCC or CC for treatment has pretty much been a mantra around here and there are enough long term survivors to back that up.

In all fairness many smaller institutions do their best to follow the NCCN Oncology Practice Guidelines, which is the Gold Standard.

Last edited by Gary; 01-06-2011 12:57 PM.

Gary Allsebrook
***********************************
Dx 11/22/02, SCC, 6 x 3 cm Polypoid tumor, rt tonsil, Stage III/IVA, T3N0M0 G1/2
Tx 1/28/03 - 3/19/03, Cisplatin ct x2, IMRT, bilateral, with boost, x35(69.96Gy)
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"You are a mist that appears for a little while and then vanishes" (James 4:14 NIV)
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@Gary -
This is another link from OCF that I can't link to. (I've linked to others.) Site says I have to register to purchase/belong to the bicuspid site, & I must be on its list of professions. Don't want to belong to the site, just read the article. Don't know what the problem is. any ideas?

Marlene


Marginal mandibulectomy 6/17/08 resulted in DX of Stage I SCC - gingiva (3 mm) right mandible, buccal side. Clear margins. Occasional social drinker. Smoked last cigarette in 1979. Clear pet: 12/08; 7/20/09. Yay!
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Hi, Everybody,
I was also unable to link to this site.


Female, nonsmoker, 70, diag. 5/09 after tongue biopsy: stage IV. Left hemi-gloss. and left selec. neck disec. 30 lymph nodes removed May 20. Over 7 weeks daily rads. with three chemo. PEG removed 12/4/09 Am eating mostly soft foods. Back to work 11/09 Retired 4/1/11. 7 clear scans! Port out 9/11. 2/13. It's back: base of tongue, very invasive
surgery involving lifestyle changes. 2/14: Now speaking w/Passey-Muir valve. Considering a swallow study. Grateful to be alive.
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No one can link to that site unless you are a subscriber. Many professional sites do this and many are fee based. Brian may have posted it in the news section of the OCF site, which you should all visit from time to time.

Check this out:
http://oralcancernews.org/wp/prereferral-head-and-neck-cancer-treatment/

Last edited by Gary; 01-06-2011 01:09 PM.

Gary Allsebrook
***********************************
Dx 11/22/02, SCC, 6 x 3 cm Polypoid tumor, rt tonsil, Stage III/IVA, T3N0M0 G1/2
Tx 1/28/03 - 3/19/03, Cisplatin ct x2, IMRT, bilateral, with boost, x35(69.96Gy)
________________________________________________________
"You are a mist that appears for a little while and then vanishes" (James 4:14 NIV)
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I am one of the few who was turned down by a CCC or the big time cancer hospitals for not having insurance. So instead I ended up at a County hospital here in Houston. But all of my ENT team are products of MD Anderson or Memorial Hospital here and they just come into the county Hospital 3 times a week. I feel comfortable with them but when I see commercials for CCC I feel like I might get the short end. It can be nerve racking but I just hope that my ENT team is as good as their jackets portray.

Nathan


SCC left lateral tongue, left neck dissection. 2 nodes positive. 3 All Clear then ITS BACK 8/23/11 Shows 1cm in tongue in CT SCAN, Radial Free Arm Flap with Radical Neck Dissection 9/20/11 , All Nodes Negative, But Tongue Tumor Poorly Differentiated. Awaiting next step in treatment on 10/5/11... RIP Nate 7/28/12
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That is a very good point that Nathan makes. many small hospitals or county hospitals offer exceptional care, especially if they are teaching hospitals (as many county hospitals are). I have a close friend who is a 8 year survivor of small oat cell lung cancer (5%, 5 year survival rate) who was treated at the county hospital, in my area, and she is doing very well. My head and neck surgeon served his residency there after going to UCSF Medical School.

If you are at a smaller hospital, with no other options, we are here to educate you on how to be your own advocate and also what the NCCN Oncology Practice Guidelines are so that you can have some confidence that you are getting the highest level of care.

Not all CCC's will turn you down for no insurance, especially if they are publicly funded.


Gary Allsebrook
***********************************
Dx 11/22/02, SCC, 6 x 3 cm Polypoid tumor, rt tonsil, Stage III/IVA, T3N0M0 G1/2
Tx 1/28/03 - 3/19/03, Cisplatin ct x2, IMRT, bilateral, with boost, x35(69.96Gy)
________________________________________________________
"You are a mist that appears for a little while and then vanishes" (James 4:14 NIV)
Joined: May 2008
Posts: 357
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Hi, Gary -
Google is my home page. I get the OCF news feed on it. It's a great way to keep up-to-date.

Marlene


Marginal mandibulectomy 6/17/08 resulted in DX of Stage I SCC - gingiva (3 mm) right mandible, buccal side. Clear margins. Occasional social drinker. Smoked last cigarette in 1979. Clear pet: 12/08; 7/20/09. Yay!
Joined: May 2007
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I was also not treated in a CCC. Surgery at Emory, Radiation at Griffin, Port and PEG (Griffin) and Chemo in Lovejoy, PET in Fayetteville.
The important point is that all of these talked with each other, were up to date and had new equipment (rad). So it was the surgeon who said you need radiation. I do not see the point it traveling a great distance just to get a standard chemo, that really can be done anywhere.
So it can work, but you also have to be proactive (easily said!) or have someone with a medical degree in your corner (if you are lucky!!). In general if at all possible a CCC is the way to go.

M


Partial glossectomy (25%) anterior tongue. 4/6/07/. IMRT start @5/24/07 (3x) Erbitux start/end@ 5/24/07. IMRT wider field (30x) start 6/5/07. Weekly cisplatin (2x30mg/m2), then weekly carbo- (5x180mg/m2). End of Tx 19 July 07.

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