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ESikon #126226 12-14-2010 10:36 PM
Joined: Sep 2009
Posts: 96
Supporting Member (50+ posts)
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Supporting Member (50+ posts)

Joined: Sep 2009
Posts: 96
I will be keeping you in my prayers. I had a biopsy right before the holidays and found out the results of that right before Christmas and the results were positive. But that was also the year my brother, sister in law and nephew came home for Christmas so it made for a great Christmas. Stay positive and I am sure you can find things to try to keep your mind off things. I know that can be hard when you are in pain.

Keep us posted


31 at dx 9/06
SCC T4N0M0 with bone invasion upper maxillary
Surgery 10/06
CT's clear for 2 years
2nd recurrence - Laser surgery 1/09 dx
Tumor board - No surgery to invasive for QOL
35 IMRT 3/30/09 Completed 5/15/09
8 tx Erbitux 3/24/09 Completed 5/6/09
HBO for ORN March & April 2010
Fibula flap 5/10
BrandyK #126570 12-21-2010 01:58 AM
Joined: May 2010
Posts: 224
Gold Member (200+ posts)
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Gold Member (200+ posts)

Joined: May 2010
Posts: 224
So not trying to sound rude or offensive in anyway, but sometimes, the more you look, the more you find. And the more you think and worry about things, the more severe they can seem and hurt.

I had my cancer on the back right side of my tongue, and it looked like i was chewing on my tongue. But that wasn't my cancer, my cancer was in my tongue, and could not be seen on the surface, it was pushing inner tongue tissue out, which was what the ridge was that was scarring.

I will say this though, mine did hurt quite a bit once it showed up. But so did the infected lesion i had on my tongue that lit up on my scan as well. Anything abnormal on the tongue is painful. Everytime you get those damaged taste buds, the ones everyone calls dead taste buds, the ones that turn white, those kill for a few days till they subside. Every time i get a biopsy it hurts. It's a very sensitive area!

But I will also tell you this. My 3 month scan, I had 5 areas that lit up on my Pet/CT scan for hypermetabolic activity. They biopsied all areas, and 3 came back as inflamed salivary gland tissue, and 2 came back as nothing.

So just because areas lite up like that, doesn't mean it is cancer. Can be inflammation, infection, or any number of things, but also could be nothing as 2 of mine were.

I know it's tough, but try not to worry so much. I know for me, the more i worry, the more pain i have and the more abnormalities I find. The mind is not nice when you are scared and sometimes makes things much worse then they really are. Not saying that is what is going on in your case, but saying it is a possibility.

I had to wait from november when i found the spot on my tongue, until march when they finally biopsied and diagnosed, the whole time me pushing the docs to biopsy, but they kept saying it wasn't cancer, and i was too young, so I know very well about how badly waiting sucks. But try to not worry so much, and try to do things to get your mind off of it, until your results come back as a definitive positive or negative.

Hoping for negative for you!!


25/female at diagnosis
Dx;stage 3 SCC tongue 03/25/2010
Surgery 04/13/2010
Trach,ng tube, peg feeding tube
Hemiglossectomy, right side neck dissection, 40 lymph nodes removed. Free-Flap transplant to tongue.
30 rounds IMRT ended July 15,2010
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