| Joined: Mar 2002 Posts: 4,918 Likes: 64 OCF Founder Patient Advocate (old timer, 2000 posts) | OCF Founder Patient Advocate (old timer, 2000 posts) Joined: Mar 2002 Posts: 4,918 Likes: 64 | I think that statement speaks to the stupidity of the person that said it plant girl. It assumes that some people have a supreme beings love and protection and others do not. That God exists in your acts, and not in your heart.
I am not going to go into my personal belief systems, and I urge others here not to as well. Religion on these boards has historically brought out the worst in people, not the best... isn't that a dichotomy. The worst in the early years was a woman that was loosing her husband to the disease. She and he were practicing Buddhists. Some "pious, good" Christians on this board went for the throat in a very unChristian way, with comments similar, like it was for their lack of belief in Jesus etc. that they were where they are, and it was stated with so much conviction and self righteousness that that it broke their hearts and mine as well. We immediately changed the rules of the board as a result. These boards are for all, believers (no matter in what), and non believers.
We keep religion off the boards for a reason. There are plenty of other forums on other sites to discuss it.
Brian, stage 4 oral cancer survivor. OCF Founder and Director. The first responsibility of a leader is to define reality. The last is to say thank you. In between, the leader is a servant. | | | | Joined: Nov 2006 Posts: 2,671 Patient Advocate (old timer, 2000 posts) | Patient Advocate (old timer, 2000 posts) Joined: Nov 2006 Posts: 2,671 | Amen, Brian!
Anne-Marie CG to son, Paul (age 33, non-smoker) SCC Stage 2, Surgery 9/21/06, 1/6 tongue Rt.side removed, +48 lymph nodes neck. IMRTx28 completed 12/19/06. CT scan 7/8/10 Cancer-free! ("spot" on lung from scar tissue related to Pneumonia.)
| | | | Joined: Sep 2006 Posts: 8,311 Senior Patient Advocate Patient Advocate (old timer, 2000 posts) | Senior Patient Advocate Patient Advocate (old timer, 2000 posts) Joined: Sep 2006 Posts: 8,311 | My next door neighbor who is way way more into religion that I am held weekly prayer meetings at her house during my entire Tx. Always invited me but I never felt comfortable going but bottom line, to this day, she swears they made the difference in my outcome. Who knows??? But to suggest that because you weren't very religious and are somehow being punished is downright ignorant and ranks right up there with the followers of Jim Jones.
David
Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
| | | | Joined: Mar 2008 Posts: 3,082 Patient Advocate (old timer, 2000 posts) | OP Patient Advocate (old timer, 2000 posts) Joined: Mar 2008 Posts: 3,082 | Thanks Brian for keeping this an true ecumenical board. As a former seminarian, I still hold deep religious convictions but heartily agree that OCF is not the forum to expand upon them. I get angry when I hear remarks like that made to Plantgirl although I should try to be more charitable and assume that the speaker never got around to reading the Book of Job in the Bible. Charm 65 yr Old Frack Stage IV BOT T3N2M0 HPV 16+ 2007:72GY IMRT(40) 8 ERBITUX No PEG 2008:CANCER BACK Salvage Surgery 25GY-CyberKnife(5) 3 Carboplatin Apaghia /G button 2012: CANCER BACK -left tonsilar fossa 40GY-CyberKnife(5) 3 Carboplatin Passed away 4-29-13
| | | | Joined: May 2009 Posts: 1,412 Patient Advocate (1000+ posts) | Patient Advocate (1000+ posts) Joined: May 2009 Posts: 1,412 | Sorry, I was just trying to make a point that anyone get this horrid disease. I will no longer bring my beliefs in this board, even though they are the most important part of my life.
Angelia 31 at Dx. DX: 4/30/09, 10/21/09 SCC on floor of mouth, T1NOMO, T2N1M0 TX: 39 IMRT, 8 cisplatin 11/30/09 PET/CT: 11/03/09: Lymph node involvement PEG/PORT: 11/09 TX end: 02/01/10 PET Scan: 04/05/10 clear PEG Out: 06/21/10 Biopsy: 12/23/10: fibrosis HBO: 01/04/11 - ORN Baby girl born 11-30-12
| | | | Joined: Mar 2002 Posts: 4,918 Likes: 64 OCF Founder Patient Advocate (old timer, 2000 posts) | OCF Founder Patient Advocate (old timer, 2000 posts) Joined: Mar 2002 Posts: 4,918 Likes: 64 | Walknlite - nothing to apologize for. There are just so many new people here, and it seems that no one really reads the rules of the board when they sign in, that I put that comment up there to speak to plantgirl, and as a reminder of why we have the policy for the boards. Strong spiritual beliefs help many people, but when they are used to tell someone that because you didn't do this or that, or believe like me, that you ended up with this dreaded disease, it is just wrong on so many levels.
Brian, stage 4 oral cancer survivor. OCF Founder and Director. The first responsibility of a leader is to define reality. The last is to say thank you. In between, the leader is a servant. | | | | Joined: Nov 2009 Posts: 493 Platinum Member (300+ posts) | Platinum Member (300+ posts) Joined: Nov 2009 Posts: 493 | OMG, Plantgirl, that's awful!
Female, nonsmoker, 70, diag. 5/09 after tongue biopsy: stage IV. Left hemi-gloss. and left selec. neck disec. 30 lymph nodes removed May 20. Over 7 weeks daily rads. with three chemo. PEG removed 12/4/09 Am eating mostly soft foods. Back to work 11/09 Retired 4/1/11. 7 clear scans! Port out 9/11. 2/13. It's back: base of tongue, very invasive surgery involving lifestyle changes. 2/14: Now speaking w/Passey-Muir valve. Considering a swallow study. Grateful to be alive.
| | | | Joined: Nov 2009 Posts: 493 Platinum Member (300+ posts) | Platinum Member (300+ posts) Joined: Nov 2009 Posts: 493 | I certainly believe in the power of prayer, but it also bothers me when people say it saved them. When my mother was diagnosed with ovarian cancer, no one could have been prayed for more than she, but she died anyway. I guess I feel that whatever faith you have (in whatever higher power you believe) will help you get through rough times, but not necessarily "cure" you.
Female, nonsmoker, 70, diag. 5/09 after tongue biopsy: stage IV. Left hemi-gloss. and left selec. neck disec. 30 lymph nodes removed May 20. Over 7 weeks daily rads. with three chemo. PEG removed 12/4/09 Am eating mostly soft foods. Back to work 11/09 Retired 4/1/11. 7 clear scans! Port out 9/11. 2/13. It's back: base of tongue, very invasive surgery involving lifestyle changes. 2/14: Now speaking w/Passey-Muir valve. Considering a swallow study. Grateful to be alive.
| | | | Joined: Nov 2010 Posts: 4 Member | Member Joined: Nov 2010 Posts: 4 | When you realize after wasting all this time and you're on your way home that you forgot to ask the single most important question that you needed the answer to. | | | | Joined: Nov 2006 Posts: 2,671 Patient Advocate (old timer, 2000 posts) | Patient Advocate (old timer, 2000 posts) Joined: Nov 2006 Posts: 2,671 | Yup, it sure is easy to forget something, giving the amount of stress just going to the doctor creates. That's why it's a good idea to have someone go with you to appointments and make a list of questions to ask. 
Anne-Marie CG to son, Paul (age 33, non-smoker) SCC Stage 2, Surgery 9/21/06, 1/6 tongue Rt.side removed, +48 lymph nodes neck. IMRTx28 completed 12/19/06. CT scan 7/8/10 Cancer-free! ("spot" on lung from scar tissue related to Pneumonia.)
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