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| | Joined: Apr 2010 Posts: 24 Member | OP  Member
Joined: Apr 2010 Posts: 24 | Hi All,
Just thought I would share a nice gesture that happened this past weekend. I won a radio contest to recieve guitar lessons from Synyster Gates of Avenged Sevenfold (a rock band) who both myself and my 16 year old son love. They were in Atlanta with several other bands at the Uproar Festival. there were probably 15,000 in attendance at the concert. Early in the day we were escorted back to the bands tour bus where my son received the lessons and we took some photo's... etc.
I had taken an extra OCF bracelett to give Synyster. When the lesson was over and we were headed out I pulled out the bracelett and gave it to him explaining that I had battled cancer this year and beat it and that I wanted him to have the bracelett.
In the back of my mind I was thinking he would probably just throw it on the table and not think of it again. To my surprise as I looked up on the jumbo screen beside the stage he was wearing the bracelett onstage. I wish I could have gotten a picture but it is hard to take a picture with that kind of detail from a cell phone.
It really meant alot to me that this heavy metal rocker with Tattoo's and piercings everywhere would do something that meant so much to me. He probably doesnt even realize how good it made me feel to know he did this. Sometimes all it takes is a little gesture of kindness to brighten someones day.
Just wanted to share this positive experience with my friends who can relate to what Oral Cancer really means.
Tommy
Tommy
Initial Staging T1N0M0
Invasive SCC of the R Lateral tongue
Moderately Differentiated
Evidence of Perinureal Invasion
Depth > 3 cm
Diag on: 03/25/2010
Partial Glossectomy and Modified Neck Disscection on 04/21/2010
Clear Margins/No Radiation or Chemo
Age 40
Former Smoker Quit 1/03/2010
| | | | | Joined: Apr 2010 Posts: 201 Gold Member (200+ posts) | | Gold Member (200+ posts)
Joined: Apr 2010 Posts: 201 | Great news Tommy. We actually saw uproar here 2 Sundays ago. Great show. So glad he wore it.
CG to Sister (42). Smoker quit @ diagnosis Dx 4/20/10 SCC T2N0M0, Rside of tongue Hemigloss R neck dis, all nodes removed 6/2/10, Trach and NG in, home 6/8/10,8/18/2010 start erbitux x6, 30 IMRT end 10/11/10 with only 3x erbitux due to reaction and one week off of rads
1/10/2011 Clear PET!!!
| | | | | Joined: May 2009 Posts: 1,412 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: May 2009 Posts: 1,412 |
Angelia
31 at Dx.
DX: 4/30/09, 10/21/09 SCC on floor of mouth,
T1NOMO, T2N1M0
TX: 39 IMRT, 8 cisplatin 11/30/09
PET/CT: 11/03/09: Lymph node involvement
PEG/PORT: 11/09
TX end: 02/01/10
PET Scan: 04/05/10 clear
PEG Out: 06/21/10
Biopsy: 12/23/10: fibrosis
HBO: 01/04/11 - ORN
Baby girl born 11-30-12
| | | | | Joined: Jun 2008 Posts: 475 Platinum Member (300+ posts) | | Platinum Member (300+ posts)
Joined: Jun 2008 Posts: 475 | That is great Tommy!!! Good job!
Susan Lauria - OCF Director of Events - Always looking for volunteers to help spread the word about early detection! Contact me if you can help!
*Brother passed away from tongue cancer in 2006 at age 47, was co-caregiver, he was non-smoker/casual drinker
LETS MAKE ORAL CANCER HISTORY!
| | | | | Joined: Sep 2009 Posts: 229 Gold Member (200+ posts) | | Gold Member (200+ posts)
Joined: Sep 2009 Posts: 229 | That's really awesome that he actually wore it and you were able to see it!
Patty
08-10-09 Partial Glossectomy w/suprahyoid neck dissection
SCC T1NOMX Stage I | 46 years old
| | | | | Joined: May 2008 Posts: 357 Platinum Member (300+ posts) | | Platinum Member (300+ posts)
Joined: May 2008 Posts: 357 | Hey, Tommy,
Stars sometimes don't seem real, but his gesture brought him back to the human level. Great that he wore the bracelet.
Marlene
Marginal mandibulectomy 6/17/08 resulted in DX of Stage I SCC - gingiva (3 mm) right mandible, buccal side. Clear margins. Occasional social drinker. Smoked last cigarette in 1979. Clear pet: 12/08; 7/20/09. Yay!
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