| | Joined: Aug 2008 Posts: 38 Contributing Member (25+ posts) | OP  Contributing Member (25+ posts)
Joined: Aug 2008 Posts: 38 | Round three update. I am complete with 19 of 25 IMRT sessions and 4 of 5 chemos. Pain isn't as bad this time and my taste buds are more resilient this go around. (I am less than two years from my 33 IMRTs)
The spit and phlegm are as bad or worse than I remember. Nausea is a bit less but the heartburn is worse. I am just all over the map but I can see a light at the end of my tunnel.
I was starting to eat pretty well following the hemi-glossectomy but now that is history. Biggest challenge is to keep up with the physical therapy for the jaw.
Good news is that the lung mets are still gone or this entire round would be a no-go.
Thanks for all of the your posts, this site is so helpful.
Bill
Bill age 47 at Dx, non-smoker
1st DIAG: 8/06/2008 SCC BOT T4N1M0
2nd Diag 10/14/09 Mets in lungs
3rd diag 06/23/2010 Primary Site malignant
Hemi-glossectomy July 2
In surveillance post re-IMRT and Carbo. Lots of scar tissue, hi-FDG Uptake on PET, no lump. Feel Fine, CLEAR for now.
| | | | | Joined: Sep 2006 Posts: 8,311 Senior Patient Advocate Patient Advocate (old timer, 2000 posts) | | Senior Patient Advocate Patient Advocate (old timer, 2000 posts)
Joined: Sep 2006 Posts: 8,311 |
David
Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
| | | | | Joined: Jun 2007 Posts: 595 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: Jun 2007 Posts: 595 | Keep up the good fight1! Semper-Fi Bob
Bob age 57, non smoker,non drinker, ended treatment on 11 Nov 2007 and started back to work on 29 Nov 2007. Veterans Day 2012 the Battle was lowered, folded, Taps was played and the Flag buried as I am know a 5 year survivor. Semper-FI !!!
| | | | | Joined: Feb 2010 Posts: 235 Gold Member (200+ posts) | | Gold Member (200+ posts)
Joined: Feb 2010 Posts: 235 | Bill, talk about fighting the good fight. Keep it up!!!
CG to Spouse BOT, Chemo and radiation started on March 29,2010
Ended on May 14,2010. LET THE HEALING BEGIN!!!
| | | | | Joined: Jul 2008 Posts: 507 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: Jul 2008 Posts: 507 | Good luck in you final week!
Don
TXN2bM0 Stage IVa SCC-Occult Primary
FNA 6/6/08-SCC in node<2cm
PET/CT 6/19/08-SCC in 2nd node<1cm
HiRes CT 6/21/08
Exploratory,Tonsillectomy(benign),Right SND 6/23/08
PEG 7/3/08-11/6/08
35 TomoTherapy 7/16/08-9/04/08 No Chemo
Clear PET/CT 11/15/08, 5/15/09, 5/28/10, 7/8/11
| | | | | Joined: Jun 2007 Posts: 10,507 Likes: 7 Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) | | Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 10,507 Likes: 7 | Bill best of luck with your last few treatments. I have the most respect for the unlucky few like you and Charm who have had to go thru radiation a second time. Once was bad enough! Its great news to hear its working  Thanks for posting an update, I had been wondering how you were. We are all here cheering you on. Go Bill !!!!!
ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive | | | | | Joined: Sep 2009 Posts: 701 Likes: 1 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: Sep 2009 Posts: 701 Likes: 1 | Bill,
Thinking of you and wishing you all the best with your treatments.
Anita
Anita (68)
CG to husband, Clark, 79,
DX SCC 11/07, T4N0Mx, PEG 1/08, RAD, post rad infection 3/08,
HBOT 40 dives, ORN, Surg 11/09 mandibulectomy w/fibular graft.
Plastic Surg 4/10, 12/10, 3/11, 10/11, 4/12, 10/12. All PETS clear,
PEG out 1/11. 6/11 non union jaw fracture
Fractured jaw w/surgery 7/14
Aspiration pneumonia 7/21, 10/22
PEG 7/21
Botox injections
| | | | | Joined: Jul 2010 Posts: 27 Contributing Member (25+ posts) | | Contributing Member (25+ posts)
Joined: Jul 2010 Posts: 27 | Amazing story of strength. Thank you and best wishes.
Randy, Stage 3 tonsil SCC, node involvement, HPV-positive. 7 sessions of Taxol-Carboplatin, 35 rads finished 9/8/10. Post-TX PET and CT 12/1 showed "no metabolic evidence of residual or recurrent disease." Yay!
| | | | | Joined: Aug 2008 Posts: 38 Contributing Member (25+ posts) | | OP Contributing Member (25+ posts)
Joined: Aug 2008 Posts: 38 | Thanks for all of the words folks. God Bless the US Navy for letting me go outside for a second opinion and treatment at a place like Johns Hopkins.
I did some acupuncture this week to battle the nausea, has been effective, my second "stick session" is tomorrow. I'll take any kind of treatment I can get to improve quality of life.
Bill
Bill age 47 at Dx, non-smoker
1st DIAG: 8/06/2008 SCC BOT T4N1M0
2nd Diag 10/14/09 Mets in lungs
3rd diag 06/23/2010 Primary Site malignant
Hemi-glossectomy July 2
In surveillance post re-IMRT and Carbo. Lots of scar tissue, hi-FDG Uptake on PET, no lump. Feel Fine, CLEAR for now.
| | | | | Joined: Jun 2007 Posts: 10,507 Likes: 7 Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) | | Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 10,507 Likes: 7 | Bill, I was thinking of you and wondering how you were holding up. Hope all is alright, wishing you the best.
ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive | | |
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