| | Joined: Feb 2007 Posts: 790 "Above & Beyond" Member (500+ posts) |  "Above & Beyond" Member (500+ posts)
Joined: Feb 2007 Posts: 790 | Paula- What a tough day. I can only imagine was you are going through and enduring. Stopping treatments doesn't mean that you are giving in or giving up.
It must be an incredibly difficult choice to make... I'm so sorry.. know that we are all thinking of you and sending you love. Try your very best to enjoy the time you have together. That is the most important thing.
hugs and hugs and hugs. I wish there were more owrds of comfort or a solution to this
Tongue Cancer T2 N0 M0 /
Total Glossectomy Due to Location of Tumor
Finished all treatments May 25 2007
Surviving!!!
| | | | | Joined: Jun 2009 Posts: 440 Platinum Member (300+ posts) | | Platinum Member (300+ posts)
Joined: Jun 2009 Posts: 440 | Paula,
I'm so sorry to be reading your post. I hate this disease! I'll be praying for you and Jim. Take care of yourself.
Dx 3/27/09 @ 28 years old with High Grade MEC T4N2M0
Elizabeth, 33, mother of 3 girls (4,7, &8yrs old)
3 rds of chemo(Carbo/Taxol)
Rt Mandibulectomy, rt fibular flap,& rt ND with trach, picc,& g-tube.
30 rds of rads with weekly cisplatin
SCANS ALL CLEAR!
OCF Regional Coordinator of San Antonio Walk
| | | | | Joined: May 2008 Posts: 357 Platinum Member (300+ posts) | | Platinum Member (300+ posts)
Joined: May 2008 Posts: 357 | You and your husband are in my prayers.
Marlene
Marginal mandibulectomy 6/17/08 resulted in DX of Stage I SCC - gingiva (3 mm) right mandible, buccal side. Clear margins. Occasional social drinker. Smoked last cigarette in 1979. Clear pet: 12/08; 7/20/09. Yay!
| | | | | Joined: Apr 2010 Posts: 201 Gold Member (200+ posts) | | Gold Member (200+ posts)
Joined: Apr 2010 Posts: 201 | Paula,
I am so sorry for the news. Any decision that your husband makes is the right decision to him. I hope you are able to spend every last minute together and come on her to vent at anytime. Hugs!!!!!
CG to Sister (42). Smoker quit @ diagnosis Dx 4/20/10 SCC T2N0M0, Rside of tongue Hemigloss R neck dis, all nodes removed 6/2/10, Trach and NG in, home 6/8/10,8/18/2010 start erbitux x6, 30 IMRT end 10/11/10 with only 3x erbitux due to reaction and one week off of rads
1/10/2011 Clear PET!!!
| | | | | Joined: Nov 2006 Posts: 2,671 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Nov 2006 Posts: 2,671 | So sorry to hear your sad news, Paula - My heart goes out to you and my tears are falling along with yours. Please call on the comfort and strength of friends and family, and know that we are all sending you hugs and wishing you and and your husband some peaceful moments to soothe the hurt.
Anne-Marie
CG to son, Paul (age 33, non-smoker) SCC Stage 2, Surgery 9/21/06, 1/6 tongue Rt.side removed, +48 lymph nodes neck. IMRTx28 completed 12/19/06. CT scan 7/8/10 Cancer-free! ("spot" on lung from scar tissue related to Pneumonia.)
| | | | | Joined: Feb 2007 Posts: 1,940 "OCF across the pond" Patient Advocate (1000+ posts) | | "OCF across the pond" Patient Advocate (1000+ posts)
Joined: Feb 2007 Posts: 1,940 | Hi Paula
sad news on today the third anniversary of robs death.You were fighting then,and here you are still going through it.I have said this too you before and it remains true,Robs illness was short lived and his death sudden and shocking,Jims illness has consumed you for every day that my loss has consumed me.I dont know how you have done it.
Thinking of you as always
liz xxxxxx
Liz in the UK
Husband Robin aged 44 years Dx 8th Dec 2006 poorly differentiated SCC tongue with met to neck T1N2cM0 Surgery and Radiation.Finished TX April 2007
Recurrence June/07 died July 29th/07.
Never take your eye off the ball, it may just smack you in the mouth.
| | | | | Joined: May 2009 Posts: 1,412 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: May 2009 Posts: 1,412 | Paula,
I have been keeping up with you and Jim on here, but never replied to any of the messages. I want to let you know I have beenpraying for you al and will continue to do so. I am sorry about the news you have received. Feel free to come here anytime and vent away, You can lean on us as much as you need to.
Angelia
31 at Dx.
DX: 4/30/09, 10/21/09 SCC on floor of mouth,
T1NOMO, T2N1M0
TX: 39 IMRT, 8 cisplatin 11/30/09
PET/CT: 11/03/09: Lymph node involvement
PEG/PORT: 11/09
TX end: 02/01/10
PET Scan: 04/05/10 clear
PEG Out: 06/21/10
Biopsy: 12/23/10: fibrosis
HBO: 01/04/11 - ORN
Baby girl born 11-30-12
| | | | | Joined: Jun 2010 Posts: 111 Senior Member (100+ posts) | | Senior Member (100+ posts)
Joined: Jun 2010 Posts: 111 | paula im extremely saddened for you to hear about his results. life is just totally unfair at times...i think to cancer patients and caregivers, it can feel like ALL of the time for us. its okay to cry and stay under the covers...you must be so exhausted mentally and physically.
you will both make the right decision together when the time comes. try to take care of yourself in the process
my mom, age 59.
12/08 surgery & 33x rad
4/09 recurrence
5/09 surgery & 35x rad
12/09 recurrence
1/10 surgery. peg tube, trach, fibula free flap
6/10 recurrence. double chemo treatments.
8/10/10 finally at peace in heaven
| | | | | Joined: May 2010 Posts: 135 Senior Member (100+ posts) | | Senior Member (100+ posts)
Joined: May 2010 Posts: 135 | Paula, I am so sorry for the news of Jim's results. I wish there were magic words but there are none to take away the heartache. You and Jim are in my thoughts and prayers.
HUGS
Dodie
Aunt diag. 2/4/10 with SCC Stage I/II on left side of tongue. Surgery 2/19/10 part. gloss./neck diss. on left side/free flap from chest muscle. TI/II,NO,MO. Clear margins with perineural invasion. Started rads 4/8/10 - 35 treatments, finished 5/26/10.
| | | | | Joined: Mar 2008 Posts: 3,082 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Mar 2008 Posts: 3,082 | Paula
Your post was so poignant, I could not bring myself to reply. But today is Jim's birthday and in the oft chance that you turned to the OCF board for some comfort, I wanted to say that we are all so sorry to hear the PET results. It is so hard to know when TX is not a good option and a very personal choice.
The American Cancer Society has a write up that says it better than I can
[quote]When a person has had many different treatments that did not help stop the cancer, it may mean that it has become resistant to all treatment. At this time it's important to weigh the possible limited benefit of a new treatment against the possible downsides, including the stress of getting treatment and the side effects that go with it. Everyone has a different way of looking at this.
This is likely to be the toughest time in your battle with cancer -- when you have tried everything available and it's just not working anymore. Your doctor may offer you a new treatment, but you need to consider that at some point, continuing treatment is not likely to improve your health or change your survival.
If you want to continue treatment to fight your cancer as long as you can, you still need to think about the chances that it will help. In many cases, your doctor can estimate the response rate for the treatment you are considering. Some people are tempted to try more chemo or radiation, for example, even when their doctors say that the odds of benefit are less than 1%. In this case, you need to think about and understand your reasons for wanting this kind of treatment.
No matter what you decide to do, it is important that you be as comfortable as possible. Make sure you are asking for and getting treatment for any symptoms you might have, such as pain. This type of treatment is called palliative treatment.[/quote]
I hope the birthday went better than you expected.
Charm
65 yr Old Frack
Stage IV BOT T3N2M0 HPV 16+
2007:72GY IMRT(40) 8 ERBITUX No PEG
2008:CANCER BACK Salvage Surgery
25GY-CyberKnife(5) 3 Carboplatin
Apaghia /G button
2012: CANCER BACK -left tonsilar fossa
40GY-CyberKnife(5) 3 Carboplatin
Passed away 4-29-13
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