| | Joined: Jan 2008 Posts: 706 "Above & Beyond" Member (500+ posts) |  "Above & Beyond" Member (500+ posts)
Joined: Jan 2008 Posts: 706 | Christine- the tone of your posts shows me that you are almost back to your old self. I have never and will never meet anyone like you, of that i am sure. You are an inpiration, not only to cancer patients, but to anyone that is going through a rough time.
cg to husband, 48 Stage 1V head and neck SCC. First surgery 9/07. Radiation and several rounds of chemo followed. Mets to chest and lungs. "Life isn't about waiting for the storm to pass, it's about learning to dance in the rain." Went home to God on February 22, 2009.
| | | | | Joined: Jun 2007 Posts: 5,260 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 5,260 | Now that is one true statement suemarie. Christine is one to be admired and looked up to.
Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April.
--- Passed away 5/14/14, will be greatly missed by everyone here
| | | | | Joined: Aug 2007 Posts: 1,301 "OCF Down Under" Patient Advocate (1000+ posts) | | "OCF Down Under" Patient Advocate (1000+ posts)
Joined: Aug 2007 Posts: 1,301 | Ditto to Jim's comment.
Gabriele
History Leukoplakia bx 8/2006 SCC floor mouth T3N0M0- Verrucous Carcinoma.
14 hour 0p SCC-Right ND/excision/marginal mandibulectomy 9/2006, 4 teeth removed, flap from wrist, trach-ng 6 days- no chemo/rad.
6 ops and debulking (flap/tongue join) + bx's 2006-2012.
bx Jan 2012 Hyperkeratosis-Epithelial Dysplasia
24cm GIST tumour removed 8/2013. Indefinite Oral Chemo.
1/31/16 passed away peacefully surrounded by family
| | | | | Joined: Dec 2008 Posts: 1,004 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: Dec 2008 Posts: 1,004 | I'm glad your daughter is with you but I'm sorry you are missing Travis. You know he is doing something wonderful and I'm sure he misses you just as much. Kids always miss their moms...especially ones as awesome as you!!!
It's always good to start new traditions...even if they start from something we may not love. When Travis is back you can do both trees:)
My sister asks me about you often. She keeps asking me what she can send you and I couldn't come up with any ideas...so if you need anything, let me know:) She is having her second baby on Janiary 4. She is having a scheduled c-section so this the date....she thinks the baby will come early. I'll keep you posted.
You are always in my thoughts Christine.
xoxo
Suzanne
***********
T1 SCC on right side of tongue
Age 31...27 when diagnosed
4 partial glossectomies
No chemo or radiation
Biopsy on 2/2/10-Clear
Surgery needed again...no later than April 2011
Loving life and just became a mother on 11/25/10
It's not what we CAN'T do..it's what we CAN do:)
| | | | | Joined: Jun 2007 Posts: 10,507 Likes: 7 Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) | | Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 10,507 Likes: 7 | Suzanne, you and your sister are so sweet!!!! Wishing her the best with her new baby. Hope all goes well with the c-section and that both baby and momma are healthy.
I spent some time reading over this long long post. I wanted to say thank you again to everyone who cared enough to send me their prayers. The flowers and cards were a lovely bonus.
My son took very good care of me. Travis is doing great in boot camp. It seems to be easy for him, he is actually enjoying it. Besides the lousy food. Weather he is running 3 miles, hiking w/ an 80 pound pack, or doing the obstacle course, he is one of the first ones done. He spent alot of time in the gym and running before he left. Its paying off. I think he is also being rewarded now for all the good deeds he has done with taking care of me. Most 19 year old boys would not have stood up to the task like he did. Another thanks goes out to all the OCF posters who were so kind to my son. Travis appreciated it as did I.
Happy Holidays to all, and a moment of silence to remember the wonderful people who cant be with us this year. May they all rest peacefully.
ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive  | | | | | Joined: Jan 2009 Posts: 1,844 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: Jan 2009 Posts: 1,844 | Christine,
Your son and yourself are truly of the same stock. I expect no less from the son of a true warrior. You inspire me my dear and I continue to be amazed by your strength and attitude, which clearly has been passed down to your fine young man.
Keep us updated and it's great to see your posts on these boards again.
Eric
Young Frack, SCC T4N2M0, Cisplatin,35+ rads,ND, RT Mandiblectomy w fibular free flap, facial paralysis, "He who has a "why" to live can bear with almost any "how"." -Nietzche "WARNING" PG-13 due to Sarcasm & WAY too much attitude, interact at your own risk.
| | | | | Joined: Jun 2007 Posts: 10,507 Likes: 7 Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) | | Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 10,507 Likes: 7 | Every time I read these posts I cry. So many people were praying for me. I received so many nice cards which I still have. The flowers were beautiful. Today is my one year anniversary from this ordeal. So many times I thought I wasnt going to make it thru this. While my surgery didnt go as planned and I am now disfigured, I am still here. I hate looking like this but at the same time I am grateful for every single day. This post is an example of the kindness and caring within every OCF member. Thanks guys for helping me thru the worst time of my life!!!
ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive | | | | | Joined: Aug 2007 Posts: 1,301 "OCF Down Under" Patient Advocate (1000+ posts) | | "OCF Down Under" Patient Advocate (1000+ posts)
Joined: Aug 2007 Posts: 1,301 | Hi Christine,
As you know I have already posted my congratulations on FB but somehow I think it is more official doing it here on OCF.
You are an inspiration to so many and are always one of the first to offer encouragement and advice to new members.
It�s already been said here that you are a very special lady and I strongly agree with that sentiment.
Love
Gabriele
History Leukoplakia bx 8/2006 SCC floor mouth T3N0M0- Verrucous Carcinoma.
14 hour 0p SCC-Right ND/excision/marginal mandibulectomy 9/2006, 4 teeth removed, flap from wrist, trach-ng 6 days- no chemo/rad.
6 ops and debulking (flap/tongue join) + bx's 2006-2012.
bx Jan 2012 Hyperkeratosis-Epithelial Dysplasia
24cm GIST tumour removed 8/2013. Indefinite Oral Chemo.
1/31/16 passed away peacefully surrounded by family
| | | | | Joined: Nov 2009 Posts: 76 Supporting Member (50+ posts) | | Supporting Member (50+ posts)
Joined: Nov 2009 Posts: 76 | christine! here i am sending you PMs about my own problems and did not realize this was your 1 yr mark... Congratulations, you are a hero to us all! i hope you celebrated in some way today. XOXO!
*KATIE*
future FIL dx with s4 SCC in jaw11/09 15 hour surg/trach/PEG in. 7 weeks of cisplatin/rads. 6/10- cancerous lung nodule- 1 wk of radiation. 8/13 pneumonia. 8/24 pulmonary embolism, on ventillator. 9/3/10 died peacefully w/o pain with family. 9/17/10 my wedding
| | | | | Joined: Jan 2006 Posts: 756 Likes: 1 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: Jan 2006 Posts: 756 Likes: 1 | Christine,
Congratulations on reaching the one year mark!
You've went thru hell and back this past year, but will all the love and support of your family, your OCF family, and your inner strength I knew you would be fine. And we can't forget your doctors.
You are still the beautiful Christine I meet before and after the operation. I proud to have you as a friend.
We will have to do something special to celebrate. See you soon!
Susan
SCC R-Lateral tongue, T1N0M0
Age 47 at Dx, non-smoker, casual drinker, HPV-
Surgery: June 2005
RT: Feb-Apr 2006
HBOT: 45 in 2008; 30 in 2013; 30 in 2022 -> Total 105!
Recurrence/Surgeries: Jan & Apr 2010
Biopsy 2/2011: Moderate dysplasia
Surgery 4/2011: Mild dysplasia
Dental issues: 2013-2022 (ORN)
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