| | Joined: Sep 2007 Posts: 60 Likes: 2 Supporting Member (50+ posts) | OP  Supporting Member (50+ posts)
Joined: Sep 2007 Posts: 60 Likes: 2 | I did not what area to post this in. As most of you know I had surgery to remove jaw and some tissue. They rebuilt my jaw with bone from leg. The tissue I do not know were that came from. I keep feeling like something in there and could something strange. Tonight I turn my phone flash light on. It has supper bright light. I look at the surgical area and was shocked what I seen. I had hair growing in my mouth. It freaked me out some, I went and found my twizzers and start pulling them out. I see my doctor next week and going to talk to him about it. Does any one know if this is normal or not? It was strange to see it there.
Round 1 5/2007 - 35 Rad treatments and 6 chemo of cisplatin
TPN feeding for 5 months during treatment and after.
Tumor was on the right side of the tongue.
Round 2. Tumor on the lower back right jaw area. Surgery on 3/12/2010 to remove the tumor, rebuild the jaw and some work on the back tongue.
| | | | | Joined: Feb 2009 Posts: 88 Supporting Member (50+ posts) | | Supporting Member (50+ posts)
Joined: Feb 2009 Posts: 88 | My daughter just went through the fibular flap surgery for her maxilla and she has the same thing. It is common as the tissue came from your leg from the area they removed the fibula, along with the blood supply and all. Your leg had hair on it and will grow hair, you can tweeze it or have it lazered later is what we were told. Kind of weird but normal.
Bonnie
CG to daughter Brandy age 31 initial dx 10/06
SCC T4N0M0 with bone invasion upper maxillary
Surgery 10/06
CT's clear for 2 years
2nd recurrence - Laser surgery 1/09 dx
Tumor board - No surgery to invasive for QOL
35 IMRT 3/30/09 Completed 5/15/09
8 tx Erbitux 3/24/09 Completed 5/6/09
| | | | | Joined: Sep 2006 Posts: 1,357 Likes: 5 "OCF Canuck" Patient Advocate (1000+ posts) | | "OCF Canuck" Patient Advocate (1000+ posts)
Joined: Sep 2006 Posts: 1,357 Likes: 5 | I had my free flap taken from my leg as well, and although I have not encountered it, I hear from others that the hair on the tongue thing does happen. Normal compared to the rest of the world?? perhaps not. Normal for us? Yup.
Get it removed - hopefully permanently.
Hugs
Donna,69, SCC L Tongue T2N1MO Stg IV 4/04 w/partial gloss;32 radtx; T2N2M0 Stg IV; R tongue-2nd partial gloss w/graft 10/07; 30 radtx/2 cispl 2/08. 3rd Oral Cancer surgery 1/22 - Stage 1. 2022 surgery eliminated swallowing and bottom left jaw. Now a “Tubie for Life”.no food envy - Thank God! Surviving isn't easy!!!! .Proudly Canadian - YES, UNIVERSAL HEALTH CARE IS WONDERFUL! (Not perfect but definitely WONDERFUL)
| | | | | Joined: Jun 2009 Posts: 440 Platinum Member (300+ posts) | | Platinum Member (300+ posts)
Joined: Jun 2009 Posts: 440 |
Dx 3/27/09 @ 28 years old with High Grade MEC T4N2M0
Elizabeth, 33, mother of 3 girls (4,7, &8yrs old)
3 rds of chemo(Carbo/Taxol)
Rt Mandibulectomy, rt fibular flap,& rt ND with trach, picc,& g-tube.
30 rds of rads with weekly cisplatin
SCANS ALL CLEAR!
OCF Regional Coordinator of San Antonio Walk
| | | | | Joined: Apr 2010 Posts: 201 Gold Member (200+ posts) | | Gold Member (200+ posts)
Joined: Apr 2010 Posts: 201 | My sister just had a forearm free flap to her tongue and sure enough hair is on it. I Don't think she is aware of it yet but her husband noticed it and freaked. Luckily I belong to this forum and found out from everyone that this is normal. Usually after radiation they are gone if not you can get them lasered.
CG to Sister (42). Smoker quit @ diagnosis Dx 4/20/10 SCC T2N0M0, Rside of tongue Hemigloss R neck dis, all nodes removed 6/2/10, Trach and NG in, home 6/8/10,8/18/2010 start erbitux x6, 30 IMRT end 10/11/10 with only 3x erbitux due to reaction and one week off of rads
1/10/2011 Clear PET!!!
| | | | | Joined: Jan 2009 Posts: 1,844 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: Jan 2009 Posts: 1,844 | Very normal. I have really hairy legs naturally so it's crazy to see all the hair that grows from the flap. Personally it doesn't bother me at all but I do warn people who look into my mouth so they are prepared for it.
Young Frack, SCC T4N2M0, Cisplatin,35+ rads,ND, RT Mandiblectomy w fibular free flap, facial paralysis, "He who has a "why" to live can bear with almost any "how"." -Nietzche "WARNING" PG-13 due to Sarcasm & WAY too much attitude, interact at your own risk.
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