| Joined: Aug 2008 Posts: 716 "Above & Beyond" Member (500+ posts) | "Above & Beyond" Member (500+ posts) Joined: Aug 2008 Posts: 716 | Read my signature and there are a few unlucky folks in my family tree...All on the same side of the tree too...
Oh..all 4 of us non-smokers.
Last edited by Ray1971; 07-30-2009 06:34 PM.
7-16-08 age 37@Dx, T3N0M0 SCC 4.778cm tumor, left side of oral tongue, non smoker, casual drinker, I am the 4th in my family to have H&N cancer 8-13-08 left neck dissection and 40% of tongue removed, submandibular salivary gland & 14 nodes clean, no chemo, IMRTx35 11-4-08 Recovering & feeling better | | | | Joined: Sep 2006 Posts: 8,311 Senior Patient Advocate Patient Advocate (old timer, 2000 posts) | Senior Patient Advocate Patient Advocate (old timer, 2000 posts) Joined: Sep 2006 Posts: 8,311 | Quitting only means one thing...that you will never use tobacco again.
David
Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
| | | | Joined: Nov 2002 Posts: 6 Member | Member Joined: Nov 2002 Posts: 6 | I am not familar with this gene and am happy to learn about it. My Oncoligist repeatedly told me that my oral cancer was not hereity and now is rethinking his position.
My Dad had all his teeth pulled when was in his thirties because of what they called Pyoria at that time, now it is called gingevitis. I had several sessions with a Perio and was told as a teen to watch this pocket I had.
Several weeks before I found a sore in my mouth, I found my grandfather had a brother, Albert, no-one ever mentioned. In Genelocical research I found Newspaper articles that he died of Oral Cancer as a result of an accident. A wrench fell from above and struck him in the face. He worked for Henry Ford and was in a pit under an Automobile. My Cornish rellies all worked in mines and that could be another precourser.
My grand-dad lived to be almost 100 and his brother, Albert, died in 1922 so my Dad never mentioned him. Who knows, when my Dad's dentist may have known about the Uncle's death. So the Cancer resurfaced afgter 80 years.
In my Dad's family which is Irish/Cornish, the girls all have small mouths and huge teeth. Our teeth were all crowded and we all needed braces which our family Dentists said we should pull on with popcicle sticks. Of course that never worked. I also have been told I have a strange PH and produce more plaque than usual.
Mary Jeanne Carsinoma, 8 years clear (hopefully) Wearing an Obdurator | | | | Joined: Dec 2009 Posts: 63 "OCF Down Under" Supporting Member (50+ posts) | "OCF Down Under" Supporting Member (50+ posts) Joined: Dec 2009 Posts: 63 | Lost my dad to NPC - but they said he picked it up from Vietnam. My surgeon didnt seem to think there was a link. cheers jon
stage 2 scc in left oral tongue. 32 at dx removed 21/12/09 plus left neck dissection and upper arm flap. clear pathology 24/12/09 non-smoker active footballer/surfer social drinker lives stress-free!
| | | | Joined: May 2010 Posts: 61 Supporting Member (50+ posts) | Supporting Member (50+ posts) Joined: May 2010 Posts: 61 | I waited for a cancer diagnosis most of my life. My Mother died of cancer when I was 25. Both grandparents and one aunt on my Mother's side of the family died of cancer. My sister is a breast cancer survivor.
Bad genes...
Survivor. 55yr male. Dx 07/09 SqCCa Stage IV, Rt Tonsil, Lt&Rt Lymph Nodes. Aborted tonsilectomy 07/09. Chemo port 07/09. PEG 09/09. Chemo - 3xCisplatin 6xErbitux. RTx35. Tx ended 11/09. CAT scan (clean) 01/10. PET scan (clean) 02/10. Port & PEG removed 04/10.
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