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Brian Hill #100501 07-30-2009 06:33 PM
Joined: Aug 2008
Posts: 716
"Above & Beyond" Member (500+ posts)
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"Above & Beyond" Member (500+ posts)

Joined: Aug 2008
Posts: 716
Read my signature and there are a few unlucky folks in my family tree...All on the same side of the tree too...

Oh..all 4 of us non-smokers.

Last edited by Ray1971; 07-30-2009 06:34 PM.

7-16-08 age 37@Dx, T3N0M0 SCC 4.778cm tumor, left side of oral tongue, non smoker, casual drinker, I am the 4th in my family to have H&N cancer
8-13-08 left neck dissection and 40% of tongue removed, submandibular salivary gland & 14 nodes clean, no chemo, IMRTx35
11-4-08 Recovering & feeling better
Brian Hill #100532 07-31-2009 06:27 AM
Joined: Sep 2006
Posts: 8,311
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Patient Advocate (old timer, 2000 posts)
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Joined: Sep 2006
Posts: 8,311
Quitting only means one thing...that you will never use tobacco again.


David

Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
Brian Hill #117727 06-10-2010 07:42 AM
Joined: Nov 2002
Posts: 6
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Posts: 6
I am not familar with this gene and am happy to learn about it.
My Oncoligist repeatedly told me that my oral cancer was not hereity and now is rethinking his position.

My Dad had all his teeth pulled when was in his thirties because of what they called Pyoria at that time, now it is called gingevitis. I had several sessions with a Perio and was told as a teen to watch this pocket I had.

Several weeks before I found a sore in my mouth, I found my grandfather had a brother, Albert, no-one ever mentioned. In Genelocical research I found Newspaper articles that he died of Oral Cancer as a result of an accident. A wrench fell from above and struck him in the face. He worked for Henry Ford and was in a pit under an Automobile. My Cornish rellies all worked in mines and that could be another precourser.

My grand-dad lived to be almost 100 and his brother, Albert, died in 1922 so my Dad never mentioned him. Who knows, when my Dad's dentist may have known about the Uncle's death. So the Cancer resurfaced afgter 80 years.

In my Dad's family which is Irish/Cornish, the girls all have small mouths and huge teeth. Our teeth were all crowded and we all needed braces which our family Dentists said we should pull on with popcicle sticks. Of course that never worked. I also have been told I have a strange PH and produce more plaque than usual.

Mary Jeanne
Carsinoma, 8 years clear (hopefully)
Wearing an Obdurator

Mary Jeanne #118086 06-16-2010 05:24 PM
Joined: Dec 2009
Posts: 63
"OCF Down Under"
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"OCF Down Under"
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Joined: Dec 2009
Posts: 63
Lost my dad to NPC - but they said he picked it up from Vietnam. My surgeon didnt seem to think there was a link.
cheers
jon


stage 2 scc in left oral tongue. 32 at dx
removed 21/12/09 plus left neck dissection and upper arm flap.
clear pathology 24/12/09
non-smoker
active footballer/surfer
social drinker
lives stress-free!
boston #118106 06-17-2010 09:00 AM
Joined: May 2010
Posts: 61
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Joined: May 2010
Posts: 61
I waited for a cancer diagnosis most of my life. My Mother died of cancer when I was 25. Both grandparents and one aunt on my Mother's side of the family died of cancer. My sister is a breast cancer survivor.

Bad genes...


Survivor. 55yr male. Dx 07/09 SqCCa Stage IV, Rt Tonsil, Lt&Rt Lymph Nodes. Aborted tonsilectomy 07/09. Chemo port 07/09. PEG 09/09. Chemo - 3xCisplatin 6xErbitux. RTx35. Tx ended 11/09. CAT scan (clean) 01/10. PET scan (clean) 02/10. Port & PEG removed 04/10.
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