#11793 08-19-2007 01:51 PM | Joined: Aug 2007 Posts: 1,301 "OCF Down Under" Patient Advocate (1000+ posts) | OP "OCF Down Under" Patient Advocate (1000+ posts) Joined: Aug 2007 Posts: 1,301 | Hi All, Wanted to send an email about the fundraiser for Cancer held every year and though it was only here in Australia. On checking the site this morning found it was a national event. Purchased my yellow plastic bracelet on the weekend and will by an extra bunch of daffodils for Monica's (survial in MI) father who passed away on Wenesday 15th. http://www.daffodilday.com.au http://www.cancercouncil.com.au What is Daffodil Day? The Cancer Council's Daffodil Day is the largest merchandise based national fundraising event of its kind for cancer research, education, and patient support in the Southern Hemisphere. The event had its beginnings in Canada around 30 years ago and is now held in eight countries including the UK, Ireland, USA, Canada, New Zealand, Denmark and Australia. It is a day to remember people touched by cancer, a day to celebrate survivorship and to hope for a brighter future. The daffodil is the international symbol of hope for all those affected by cancer. Cheers Gabriele
History Leukoplakia bx 8/2006 SCC floor mouth T3N0M0- Verrucous Carcinoma. 14 hour 0p SCC-Right ND/excision/marginal mandibulectomy 9/2006, 4 teeth removed, flap from wrist, trach-ng 6 days- no chemo/rad. 6 ops and debulking (flap/tongue join) + bx's 2006-2012. bx Jan 2012 Hyperkeratosis-Epithelial Dysplasia 24cm GIST tumour removed 8/2013. Indefinite Oral Chemo.
1/31/16 passed away peacefully surrounded by family
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#11794 08-19-2007 04:09 PM | Joined: Mar 2002 Posts: 1,140 Likes: 1 Patient Advocate (1000+ posts) | Patient Advocate (1000+ posts) Joined: Mar 2002 Posts: 1,140 Likes: 1 | Strangely, the daffoills sold every spring in my town are for the fight against Diabetes. | | |
#11795 08-19-2007 05:33 PM | Joined: Aug 2007 Posts: 1,301 "OCF Down Under" Patient Advocate (1000+ posts) | OP "OCF Down Under" Patient Advocate (1000+ posts) Joined: Aug 2007 Posts: 1,301 | Hi Joanna I got the information from the Australian site. It will be Spring here in September . Did a quick google search as I am at work (2.30 pm 20/8) but this one came up. The Daffodil is the first flower of spring, a symbol of hope, renewal, and for the American Cancer Society, the promise that one day the world will be free of cancer. Your participation in Daffodil Days will support the American Cancer Society's lifesaving research, prevention, early detection, and support programs. http://www.cancer.org/docroot/PAR/PAR_4_Daffodil_Days.asp Gabriele
History Leukoplakia bx 8/2006 SCC floor mouth T3N0M0- Verrucous Carcinoma. 14 hour 0p SCC-Right ND/excision/marginal mandibulectomy 9/2006, 4 teeth removed, flap from wrist, trach-ng 6 days- no chemo/rad. 6 ops and debulking (flap/tongue join) + bx's 2006-2012. bx Jan 2012 Hyperkeratosis-Epithelial Dysplasia 24cm GIST tumour removed 8/2013. Indefinite Oral Chemo.
1/31/16 passed away peacefully surrounded by family
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#11796 08-19-2007 06:16 PM | Joined: Mar 2002 Posts: 4,918 Likes: 64 OCF Founder Patient Advocate (old timer, 2000 posts) | OCF Founder Patient Advocate (old timer, 2000 posts) Joined: Mar 2002 Posts: 4,918 Likes: 64 | Wouldn't it be nice if ACS did anything at all for oral cancer? Perhaps in Australia they do. Here in the US, they are great at many things, but oral cancer? Not so much. You know early detecton programs, free public screenings, funding research related to it specifically, spending money on raising public awareness, something more than refer 25+ people a week to OCF for things. I think everyone that has an opportunity to support organizations that are trying to bring down cancer should do so. If ony OCF were as good at fundrasing as ACS..... I mean they really have this down to a science, and the staff to do it. For a disease that isn't waiting on new science to bring it down from the high list of killers, what we could do with a fraction of ACS's one month's take. We are a thIrd of the way through this month and donations to OCF are at about $192.00. At this rate we'll be lucky to have the message board up in three months. Sorry for sounding bitter. All organizations are trying to do good in the world, big or small. But too many of the small ones survive less than 5 years. Not because they do not do good in the world, but because they represent a small disease, with fewer survivors than say breast cancer. Fewer people getting it and fewer survivors = fewer donors and fewer volunteers helping you to bring in the needed funding. Then they are gone.
Brian, stage 4 oral cancer survivor. OCF Founder and Director. The first responsibility of a leader is to define reality. The last is to say thank you. In between, the leader is a servant. | | |
#11797 08-20-2007 02:13 AM | Joined: May 2007 Posts: 666 "Above & Beyond" Member (500+ posts) | "Above & Beyond" Member (500+ posts) Joined: May 2007 Posts: 666 | Brian, OCF does a world of good for those who are touched by this disease. Clearly, there are other expenses than just for the board, but lets start there, how much does it cost per year.... ? Perhaps it is more attrctive fot the "consumer" to think that: I made the board possible for xyz months/years? Also, considering the consequences why not bring this to the attention of all registered users.... perhaps at the login?
Just some thoughts.
Markus
Partial glossectomy (25%) anterior tongue. 4/6/07/. IMRT start @5/24/07 (3x) Erbitux start/end@ 5/24/07. IMRT wider field (30x) start 6/5/07. Weekly cisplatin (2x30mg/m2), then weekly carbo- (5x180mg/m2). End of Tx 19 July 07.
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#11798 08-20-2007 05:30 AM | Joined: Mar 2002 Posts: 4,918 Likes: 64 OCF Founder Patient Advocate (old timer, 2000 posts) | OCF Founder Patient Advocate (old timer, 2000 posts) Joined: Mar 2002 Posts: 4,918 Likes: 64 | Some good ideas, and on the sign in besides this, I think I will also add that there are hundreds of pages of content on the main web site to search for things as well. You wouldn't believe how many times a week I get a call looking for the foundation's address, which if anyone looked at the web site, is in the about us link. The board is the smallest part of OCF operating costs, which I have to tell you is in the lowest 5% of ALL charities in the US. 94 cents of EVERY dollar that comes to OCF goes towards the cause services, and that does not included any G&A overhead expenses or fundraising efforts. Anyone can check the IRS 990 forms that we all have to fill out every year and see where the money goes and how much there is. In order to be a 501c3 charity you have to be completely transparent and the IRS sees to that if you are going to keep your charter.
We will be doing a major fundraising outreach in November. Every email address that we have, every previous donor, every mailing address will get a piece from us on what we do, what it costs, and how we cannot do it without their support. The purpose of my post was just to remind people that while it may feel good to go to a Relay for Life, it doesn
Brian, stage 4 oral cancer survivor. OCF Founder and Director. The first responsibility of a leader is to define reality. The last is to say thank you. In between, the leader is a servant. | | |
#11799 08-20-2007 07:17 AM | Joined: Sep 2006 Posts: 1,357 Likes: 5 "OCF Canuck" Patient Advocate (1000+ posts) | "OCF Canuck" Patient Advocate (1000+ posts) Joined: Sep 2006 Posts: 1,357 Likes: 5 | In Canada, daffodils are sold each April as a cancer fundraising project. I believe it has been quite successful. The purchaser has the option of receiving the flowers themselves, or having them sent to a hospitalized cancer patient. Daffodils are the logo/symbol of the Canadian Cancer Society. FYI
Donna,69, SCC L Tongue T2N1MO Stg IV 4/04 w/partial gloss;32 radtx; T2N2M0 Stg IV; R tongue-2nd partial gloss w/graft 10/07; 30 radtx/2 cispl 2/08. 3rd Oral Cancer surgery 1/22 - Stage 1. 2022 surgery eliminated swallowing and bottom left jaw. Now a “Tubie for Life”.no food envy - Thank God! Surviving isn't easy!!!! .Proudly Canadian - YES, UNIVERSAL HEALTH CARE IS WONDERFUL! (Not perfect but definitely WONDERFUL)
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#11800 08-20-2007 12:45 PM | Joined: Jan 2004 Posts: 316 Platinum Member (300+ posts) | Platinum Member (300+ posts) Joined: Jan 2004 Posts: 316 | I went on a steam train trip last Saturday (75th anniversary of the mountain railway) and alighted at Robertson. There were gorgeous daffodils blooming everywhere, in the pavement, in the park. I would have loved to picked them and brought them home. Robertson is a lovely town where the movie "Babe" was filmed (an aside, I Mastered the soundtrack CD, so it was a personal day!) Still do the crosswords with my daffodil pen Cheers! Tizz
End of Radiation - the "Ides of March" 2004 :-)
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#11801 08-20-2007 03:35 PM | Joined: Jun 2007 Posts: 510 "Above & Beyond" Member (300+ posts) | "Above & Beyond" Member (300+ posts) Joined: Jun 2007 Posts: 510 | okay fellow members, as we Southern rednecks say: Let's "git 'er done!"
I realize that the majority of us may not be in a position financially to cure all of OCF's debts, but I firmly believe that if EACH of us would make a contribution, no matter how small, that it could certainly make a difference in the bottom line!
Let's inundate OCF with our donations! Just think where we might be today, if NOT for OCF!
CG to 77 y/o hubby;SCC Alveolar Ridge; Wake Forest Baptist Hosp surgery: 07/19/07; bi mod radical resection/jaw replacement; T2 N2-B M0 Stage IV-A 28 IMRT + 6 Paclitaxel/Carboplatin Getting stronger every day!
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