| | Joined: Jun 2009 Posts: 440 Platinum Member (300+ posts) | OP  Platinum Member (300+ posts)
Joined: Jun 2009 Posts: 440 | Hello all!
I'm here at MD Anderson for the rest of this week and Monday too for my 3 month check up.
Had my CT scan today, if you all could say a quick prayer for me, I would appreciate it. I'll let you know when I get the results.
Oh yes and Jaime, I'm passing out the bundles of pamphlets and cards you mailed me. The doctors really appreciate it!
Dx 3/27/09 @ 28 years old with High Grade MEC T4N2M0
Elizabeth, 33, mother of 3 girls (4,7, &8yrs old)
3 rds of chemo(Carbo/Taxol)
Rt Mandibulectomy, rt fibular flap,& rt ND with trach, picc,& g-tube.
30 rds of rads with weekly cisplatin
SCANS ALL CLEAR!
OCF Regional Coordinator of San Antonio Walk
| | | | | Joined: Jun 2009 Posts: 875 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: Jun 2009 Posts: 875 | Hello Elizabeth: You got your prayer request from me answered, and I will continue to keep you in my prayers until you tell us the results of your scans. Are you having a PET scan too or just your CT scan? Either way, let us know the results - I'm betting everything will be GOOD!  julieann
Julieann Nov 2007 SCC on right tonsil following tonsillectomy. Was smoker, QUIT. (Stage IV T2 N2b) 7 weeks radiation one day/wk chemo (carboplatin and 5-FU). Allergic to Taxol; PEG in, lost 30 lbs. TX completed January 2008. PEG out mid- 2008. PET/CT 1/17/2011;2/3/12 NEGATIVE for cancer  | | | | | Joined: Jan 2010 Posts: 31 Contributing Member (25+ posts) | | Contributing Member (25+ posts)
Joined: Jan 2010 Posts: 31 | I will add you to my list when I pray to St. Peregrine, the patron saint for cancer. I hope you get an A+.
Debbie
Debbie, 53 wife and caregiver to Jim, 68, non-smoker, social drinks only. Stage IV SCC rt. tonsil. HPV+. Neck dissection 12/29/09. Peg inserted 2/2/10. Cisplatin and rad started 2/9/10. Carboplatin given 2nd round. 3rd round cancelled due to toxicity. Finished 30 rad treatments 3/23/10.
| | | | | Joined: Nov 2007 Posts: 681 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: Nov 2007 Posts: 681 | Prsying that you get the results you want
SCC stage II Partial mandibulectomy w. neck dissection- July 2005. Renal cancer w. partial nephrectomy-Jan 2004. Breast cancer discovered in routine mammogram. Successful lumpectomy, sentinal nodes clear, RT only-2008 Reconstruction of mandible w fibula free flap-Jan 09. TORS removal of begnin pappiloma from esophagus-2010. Masectomy,rt breast 2013.
Support OCF
| | | | | Joined: Sep 2009 Posts: 229 Gold Member (200+ posts) | | Gold Member (200+ posts)
Joined: Sep 2009 Posts: 229 | My thoughts and prayers on the way as well.
Patty
08-10-09 Partial Glossectomy w/suprahyoid neck dissection
SCC T1NOMX Stage I | 46 years old
| | | | | Joined: Aug 2007 Posts: 1,301 "OCF Down Under" Patient Advocate (1000+ posts) | | "OCF Down Under" Patient Advocate (1000+ posts)
Joined: Aug 2007 Posts: 1,301 | Best wishes for the check up and hope that you do not have to wait too long for the results. Hope that healing rain is still with you!
Gabriele
History Leukoplakia bx 8/2006 SCC floor mouth T3N0M0- Verrucous Carcinoma.
14 hour 0p SCC-Right ND/excision/marginal mandibulectomy 9/2006, 4 teeth removed, flap from wrist, trach-ng 6 days- no chemo/rad.
6 ops and debulking (flap/tongue join) + bx's 2006-2012.
bx Jan 2012 Hyperkeratosis-Epithelial Dysplasia
24cm GIST tumour removed 8/2013. Indefinite Oral Chemo.
1/31/16 passed away peacefully surrounded by family
| | | | | Joined: Jun 2009 Posts: 440 Platinum Member (300+ posts) | | OP Platinum Member (300+ posts)
Joined: Jun 2009 Posts: 440 | Thanks for the prayers!
I was so busy enjoying my time in Houston, I forgot to post my results. The CT scan came back clear!
I meet with the speech and nutritionist as well, now that I am swallowing better, I have to try to take away one can at a time and supplement with real food of the same calories if not more.
They wouldn't take out the feeding tube until I can do this without losing more weight. My goal is to get it out at my next 3 month check up.
Some of the doctors that I am see are starting to release me to my main doctor so I will just check in with them in a year! Yippee!!!!
I think this is the first appt where I felt well enough to actually observe my surroundings and it was heart breaking to see some of the patients, one woman had radiation burns on her neck, a raspy voice and coughing up mucus until she nearly puked....I felt for her, turned to my husband and said "do you remember those days?" I went up to her and told her to hang in there, she will get over this soon.
I loved stocking them up on the OCF brochures, handed a few out to patients too. The doctors appreciated them as well. So anytime you need me to bring some more I will!!
Dx 3/27/09 @ 28 years old with High Grade MEC T4N2M0
Elizabeth, 33, mother of 3 girls (4,7, &8yrs old)
3 rds of chemo(Carbo/Taxol)
Rt Mandibulectomy, rt fibular flap,& rt ND with trach, picc,& g-tube.
30 rds of rads with weekly cisplatin
SCANS ALL CLEAR!
OCF Regional Coordinator of San Antonio Walk
| | | | | Joined: Jul 2009 Posts: 1,406 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: Jul 2009 Posts: 1,406 |
David 2
SCC of occult origin 1/09 (age 55)| Stage III TXN1M0 | HPV 16+, non-smoker, moderate drinker | Modified radical neck dissection 3/09 | 31 days IMRT finished 6/09 | Hit 14 years all clear in 6/23 | Radiation Fibrosis Syndrome kicked in a few years after treatment and has been progressing since | Prostate cancer diagnosis 10/18
| | | | | Joined: Apr 2010 Posts: 45 Contributing Member (25+ posts) | | Contributing Member (25+ posts)
Joined: Apr 2010 Posts: 45 | Elizabeth - that is so great!! Congratulations!!
2002 - SCC - T1N0M0 - ever vigilant
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