| | Joined: May 2007 Posts: 41 Contributing Member (25+ posts) | OP  Contributing Member (25+ posts)
Joined: May 2007 Posts: 41 | Hello everyone. I haven't been here in a long time, but knew I could come here....As some of you that remember me, my husband has stage 4 mouth cancer, went through rad/chemo and then surgery..last year has seemed to slowly get better..until. He went to dr yesterday and they found a spot on the bottom of his tongue in the center...when he got me to look..it looks just like when it showed on his gums!! Please, it can't be starting all over again!! Now need to find cancer center, where we were going is just too far from us. I WILL be here alot more..should never have strayed from here, you all were wonderful!!
Husband age 48, diagnosed 5/10/07 with stage 4 mouth cancer, surgury not an option, teeth removed 6/21/07, 5x wks of rad with Cisplatin 1x week for 7-8 week course starting 7/10/07. Update 02/25/08 right maxillectomy and right infratemporal fossa resection
| | | | | Joined: Mar 2002 Posts: 4,918 Likes: 64 OCF Founder Patient Advocate (old timer, 2000 posts) | | OCF Founder Patient Advocate (old timer, 2000 posts)
Joined: Mar 2002 Posts: 4,918 Likes: 64 | The best list of institutions, listed by survival rates and lots of other qualifiers, is put out by US News and updated on their web site every 6 months. Please do not pick an institution based on geography. The list is at this link, then under medical databases, then the link that says best hospitals. Please read the note below it, as their site has a bad link in it that they have not fixed in 60 days since I first noticed it and notified them. http://oralcancerfoundation.org/resources/index.htm
Brian, stage 4 oral cancer survivor. OCF Founder and Director. The first responsibility of a leader is to define reality. The last is to say thank you. In between, the leader is a servant.
| | | | | Joined: May 2007 Posts: 622 Likes: 1 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: May 2007 Posts: 622 Likes: 1 | Hi Kay, sorry you're back so soon.
I had my treatments/surgery done here at UT Cancer in Memphis. It is sometimes still referred to as the Boston-Baskin Clinic. Also, in the national databases the CCC is listed under St. Jude, but the doctors are doing much more than treating kids. My ENT/Surgeon was Sandeep Samant (easily Googlable).
As Brian suggests, do your own research and do not pick simply due to location alone.
Kevin
18 YEAR SURVIVOR
SCC Tongue (T3N0M0) diag 06/2006.
No evidence of disease 2010
Another PET 12-2014 pre-HBO, still N.E.D.
�Remember to look up at the stars and not down at your feet. It matters that you don't just give up.�
Stephen Hawking | | | | | Joined: Aug 2008 Posts: 716 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: Aug 2008 Posts: 716 | Remember, sometimes a spot is just a spot but do be diligent. You know the routine...I pray for the best outcome.
7-16-08 age 37@Dx, T3N0M0 SCC 4.778cm tumor, left side of oral tongue, non smoker, casual drinker, I am the 4th in my family to have H&N cancer
8-13-08 left neck dissection and 40% of tongue removed, submandibular salivary gland & 14 nodes clean, no chemo, IMRTx35
11-4-08 Recovering & feeling better
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