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Joined: Aug 2008
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I lost Ron less than a year ago and this past Saturday was diagnosed myself with Colon Cancer (moderately differentiated adenocarcinoma). I'm still having trouble wrapping my mind around this. Everyone, PLEASE get your colonoscopies! I am scheduled for surgery (Right Hemicolectomy) on May 7.

We do not know the extent of the cancer at this time. I just had my CT today, but we won't truly know until after the surgery. The surgeon is hopeful that it has been caught early though.

If you are a praying person, please pray for my 3 kids, who really did not need this again, especially so soon. You have all been my friends through the last 4+ years, so I just thought I would let you know. I guess I should check out a colon cancer forum. I pray for good health for all!

Love,
Lori


Lori, cg to H Ron, age 56.
Stage IV Oral SCC-T1N2. Tongue resected and right ND 8/05. Teeth removed, PORT, PEG, IMRT x33, Cisplatin x3. Tx ended 10/05.
Recurrence 7/08 Stage IV. Surgery 8/30/08.
2nd recur. 11/08. 2nd surgery 2/2/09.
3rd recur. 4/9/09. Erbitux wkly. 5/09-?
Ron died 6/6/09.
Lori also passed away 8/20/11, colon cancer
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Oh Lori!!!! I am so sorry to hear of your illness. You are such a sweet person, Ive missed you here. Please look after yourself. Your children are stronger than you think, they will be ok. You know to take someone with you to appointments. Best wishes with everything.


Christine
SCC 6/15/07 L chk & by L molar both Stag I, age44
2x cispltn-35 IMRT end 9/27/07
-65 lbs in 2 mo, no caregvr
Clear PET 1/08
4/4/08 recur L chk Stag I
surg 4/16/08 clr marg
215 HBO dives
3/09 teeth out, trismus
7/2/09 recur, Stg IV
8/24/09 trach, ND, mandiblctmy
3wks medicly inducd coma
2 mo xtended hospital stay, ICU & burn unit
PICC line IV antibx 8 mo
10/4/10, 2/14/11 reconst surg
OC 3x in 3 years
very happy to be alive smile
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Posts: 126
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Joined: Dec 2008
Posts: 126
Lori,
This diagnosis must be such a shock for you. After all you and Ron went through, it's so difficult to comprehend that you would get this news. As long as we are on this earth, I don't think we will ever understand the "Whys." Please know that everyone that followed Ron's journey through your postings will think of you with prayers and kind thoughts. Please continue to update all of us on how you are doing. Geri


Geri-CG to husband Richard, 62 yrs old. Former smoker, quit 30yrs ago, light drinker. Dx after tests with BOT T1N1M0. Tx to start by end of Dec. Seven wks IMRT with 2x Cisplatin-2x Erbitux. Peg in 12/08- removed 4/21/09. Looking good so far. Clear Pet &MRI 8/2/09
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Lori, I just said a prayer for you....God be with you and bring you encouraging news following your surgery. Even tho your bout is not with OC, please keep us informed anyway? Thanks.


Husband: 3 SCC gum and cheek cancers 2002, 2005, 2006: surgery only. Scans clear after removal of small, well differentiated, non-invasive cancers. No radiation. 4th SCC lip diagnosed 4/13/07 - in situ, removed in biopsy. More lip removed 2/8/08 - dysplasia. 2 Biopsies 3/17/09 no cancer (lichenoids)
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Posts: 1,940
"OCF across the pond"
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Dearest Lori
i once heard that god doesn't give us more than we can handle.When i heard it i thought "what a crock".
This proves my point!!!This is cruel and unfair and you are right,that ball sure has hit you square on.It has knocked the wind right out of you and your'e on the floor.It is so much easier to pick ourselves up dust ourselves down and come out fighting for those we love .The fear of loss is so huge that no matter what we just have to keep on going day after day.

You lost Ron.I lost Robin,and it made my hatred of the disease all consuming.Lori please please please use that hatred now.Use it to pick yourself up and come out fighting.Use the pain of your children to give you the strength and the courage to fight it again,and don't leave this forum.You need us and we will be here.Your kids need support .Let them join and use us ..your friends to help them through this dreadful time.Colon cancer is not like oral cancer sweetie,all the money and research thrown at it has made the outcome so good in such a huge percentage of cases.You can do it honey.don't ever doubt that.

love and hugs liz


Liz in the UK

Husband Robin aged 44 years Dx 8th Dec 2006 poorly differentiated SCC tongue with met to neck T1N2cM0 Surgery and Radiation.Finished TX April 2007
Recurrence June/07 died July 29th/07.

Never take your eye off the ball, it may just smack you in the mouth.
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Oh Lori. I second or third what everyone else said - this totally sucks, but you WILL be fine and you do not need to find a new online community. While we may not be able to be that much assistance re treatment and side effects, we ARE here for you for everything else. We have been with you in the past and continue to be here for you.

Keep your chin up. I know many people who have had colon cancer and are just fine today, many years later. You WILL be one of them!

Hugs and keep us posted.

Donna


Donna,68, SCC L Tongue T2N1MO Stg IV 4/04 w/partial gloss;32 radtx; T2N2M0 Stg IV; R tongue-2nd partial gloss w/graft 10/07; 30 radtx/2 cispl 2/08. 3rd Oral Cancer surgery 1/22 - Stage 1. 2022 surgery eliminated swallowing mechanisms so am now a “for life” tube feeder. I am working hard to get used to that while fulfilling my dreams. Surviving isn't easy,but grateful for EVERY day.Proudly Canadian - YES, UNIVERSAL HEALTH CARE IS WONDERFUL! (Not perfect but definitely WONDERFUL)
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We are all in your corner. Let's pray that this is quickly knocked out.


David

Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
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Posts: 24
Lori,

I am new here myself but you and your kids will definetly be in my thoughts and prayers..

Tommy


Tommy

Initial Staging T1N0M0
Invasive SCC of the R Lateral tongue
Moderately Differentiated
Evidence of Perinureal Invasion
Depth > 3 cm
Diag on: 03/25/2010
Partial Glossectomy and Modified Neck Disscection on 04/21/2010
Clear Margins/No Radiation or Chemo
Age 40
Former Smoker Quit 1/03/2010
Joined: Jun 2009
Posts: 875
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Lori:

I just said a prayer for you and will keep you in my prayers and thoughts. Please let us know how you do - I believe once you are a member of "our" family, you are always a member. Everyone wants to hear from you. I'm fairly new, and I certainly do.

julieann


Julieann
Nov 2007 SCC on right tonsil following tonsillectomy. Was smoker, QUIT. (Stage IV T2 N2b) 7 weeks radiation one day/wk chemo (carboplatin and 5-FU). Allergic to Taxol; PEG in, lost 30 lbs. TX completed January 2008. PEG out mid- 2008. PET/CT 1/17/2011;2/3/12 NEGATIVE for cancer smile
Joined: Aug 2008
Posts: 96
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Joined: Aug 2008
Posts: 96
Dear friends,
I am humbled and so thankful for all of you. You have lifted my spirits and my resolve to kick this cancer in the ***. Liz, I will use my anger in a positive way--I have so much of it, as you know! And you are right that colon cancer is nothing like oral cancer. I do realize that my chances are much better than Ron's ended up being (and why does that make me feel guilty??). Thank you Christine, Geri, Lostpassword, Liz, Donna, David, Tommy and Julieann, and I will let you know how I'm doing.
Lori


Lori, cg to H Ron, age 56.
Stage IV Oral SCC-T1N2. Tongue resected and right ND 8/05. Teeth removed, PORT, PEG, IMRT x33, Cisplatin x3. Tx ended 10/05.
Recurrence 7/08 Stage IV. Surgery 8/30/08.
2nd recur. 11/08. 2nd surgery 2/2/09.
3rd recur. 4/9/09. Erbitux wkly. 5/09-?
Ron died 6/6/09.
Lori also passed away 8/20/11, colon cancer
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