| | Joined: Apr 2005 Posts: 2,219 Patient Advocate (old timer, 2000 posts) | OP  Patient Advocate (old timer, 2000 posts)
Joined: Apr 2005 Posts: 2,219 | The weather was fantastic and so was the company.
Present were:
Susan Lauria and her husband Harry
Anita Frances
ChuckF, his brother and his friend Michelle
Yours truly
Not having been there last year, I have no reference for comparison, but I think it was a great turnout. The students were very motivated and I could tell that they were very interested in oral cancer. I was pushing the idea that they try to get the students from Temple to work with them and have even a greater number of walkers next year. The screening looked busy all the time.
On a personal level, I was thrilled to be asked to address the dental students in May. I hope that this turns into a yearly appearance as it did when I spoke to the students at Temple Dental.
Jerry
Retired Dentist, 59 years old at diagnosis. SCC of the left lateral border of the tongue (Stage I). Partial glossectomy and 30 nodes removed, 4/6/05. Nodes all clear. No chemo no radiation 18 year survivor.
"Whatever doesn't kill me, makes me stronger"
| | | | | Joined: Mar 2002 Posts: 4,912 Likes: 52 OCF Founder Patient Advocate (old timer, 2000 posts) | | OCF Founder Patient Advocate (old timer, 2000 posts)
Joined: Mar 2002 Posts: 4,912 Likes: 52 | Jerry - thank you for continuing to be an inspiration, a motivator, an advocate, an educator, and an ambassador at large for the opportunistic early detection cause.
Brian, stage 4 oral cancer survivor. OCF Founder and Director. The first responsibility of a leader is to define reality. The last is to say thank you. In between, the leader is a servant.
| | | | | Joined: Apr 2005 Posts: 2,219 Patient Advocate (old timer, 2000 posts) | | OP Patient Advocate (old timer, 2000 posts)
Joined: Apr 2005 Posts: 2,219 | Thanks for your kind words...it's my pleasure.
I gave one of my cards to one of the dental students and she lives in Newport Beach and was so excited to see that it was the home of the OCF. She might stop by the enxt time she is at home. I told her you travel a lot and that Megan should be there.
Jerry
Retired Dentist, 59 years old at diagnosis. SCC of the left lateral border of the tongue (Stage I). Partial glossectomy and 30 nodes removed, 4/6/05. Nodes all clear. No chemo no radiation 18 year survivor.
"Whatever doesn't kill me, makes me stronger"
| | | | | Joined: Sep 2006 Posts: 8,311 Senior Patient Advocate Patient Advocate (old timer, 2000 posts) | | Senior Patient Advocate Patient Advocate (old timer, 2000 posts)
Joined: Sep 2006 Posts: 8,311 |
David
Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
| | | | | Joined: Sep 2009 Posts: 701 Likes: 1 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: Sep 2009 Posts: 701 Likes: 1 | What a great day it was! There was a high level of interest and enthusiasm from the dental school, and attendees. It was especially nice to meet OCF buddies in person. I sent some pix to Megan last night. And congrats to Jerry for his upcoming speaking opportunity at Penn Dental. Looking forward to the David Nasto Memorial Walk in September!
Anita (68)
CG to husband, Clark, 79,
DX SCC 11/07, T4N0Mx, PEG 1/08, RAD, post rad infection 3/08,
HBOT 40 dives, ORN, Surg 11/09 mandibulectomy w/fibular graft.
Plastic Surg 4/10, 12/10, 3/11, 10/11, 4/12, 10/12. All PETS clear,
PEG out 1/11. 6/11 non union jaw fracture
Fractured jaw w/surgery 7/14
Aspiration pneumonia 7/21, 10/22
PEG 7/21
Botox injections
| | | | | Joined: Mar 2002 Posts: 4,912 Likes: 52 OCF Founder Patient Advocate (old timer, 2000 posts) | | OCF Founder Patient Advocate (old timer, 2000 posts)
Joined: Mar 2002 Posts: 4,912 Likes: 52 | Megan will get the pics posted to the" pics from past events" page of the OCF website, and also put them on our facebook page. Anyone else that has some from this weekend's walks be sure to mail them in and we'll get them all up ASAP.
Brian, stage 4 oral cancer survivor. OCF Founder and Director. The first responsibility of a leader is to define reality. The last is to say thank you. In between, the leader is a servant.
| | | | | Joined: Jun 2008 Posts: 475 Platinum Member (300+ posts) | | Platinum Member (300+ posts)
Joined: Jun 2008 Posts: 475 | It was a great day for the PHilly Walk! It looked like the same turnout as last year, so all good!
Great to see you again Jerry, funny as usual!! So nice to meet Chuck and Anita!!! Loved talking to Anita, you are a wonderful woman!!! So looking forward to seeing you again in September!!
Chuck, so nice to finally meet you as well and your brother and your friend, wonderful people!!!
I have pics too, that I will send to Megan for posting. As Jerry said, lots of screenings done!
Baltimore had a great day as well. Looking forward to seeing pics from all the walks.
Susan
Susan Lauria - OCF Director of Events - Always looking for volunteers to help spread the word about early detection! Contact me if you can help!
*Brother passed away from tongue cancer in 2006 at age 47, was co-caregiver, he was non-smoker/casual drinker
LETS MAKE ORAL CANCER HISTORY!
| | |
| Forums23 Topics18,170 Posts196,933 Members13,105 | | Most Online458
Jan 16th, 2020 | | |
|
