| Joined: Feb 2007 Posts: 790 "Above & Beyond" Member (500+ posts) | OP "Above & Beyond" Member (500+ posts) Joined: Feb 2007 Posts: 790 | So this woman contacted me and asked me for my resume and portfolio samples etc. At what point do I have to disclose that I have a major speech disability. If only I could talk... Then I could look for other opportunities. I just feel liek I'm gonna get in there and they'll hear me talk and be liek.. oh no no no no. This would be completley soulcrushing for me. I guess I could just buck up and try it and see what happens.
Tongue Cancer T2 N0 M0 / Total Glossectomy Due to Location of Tumor
Finished all treatments May 25 2007 Surviving!!!
| | | | Joined: Aug 2005 Posts: 307 Platinum Member (300+ posts) | Platinum Member (300+ posts) Joined: Aug 2005 Posts: 307 | Hi Kate,
It's in the recruiters best interest to find you a job so I would be honest with her up front. Maybe let her know via email and then talk to her? It seems like you are very self conscious about this and it may not be as bad as you're thinking it is. I wish you all the best! You are a very special woman...I'll be rooting for you!!
Love,
Shelley
Caregiver to husband Ron. Throat Cancer. Finished 35 radiation treatments on 11/21/04. 8/2/11 small lesion on lower gum, laser Procedure to remove. 3/6/12 Doc. removed another lesion on outside of his neck. Did a skin graft from his chest to replace the skin on his neck. Went to Heaven on 6/24/12.
| | | | Joined: Jun 2007 Posts: 5,260 Patient Advocate (old timer, 2000 posts) | Patient Advocate (old timer, 2000 posts) Joined: Jun 2007 Posts: 5,260 | Go for the interview. You might just be surprised and it will go OK. Never say never. I wouldn't talk on the phone to her but would do it in person. You have a much better chance of impressing her that way. Peple aren't as mean as we think aometime. good luck.
Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April. --- Passed away 5/14/14, will be greatly missed by everyone here
| | | | Joined: Jan 2009 Posts: 1,844 Patient Advocate (1000+ posts) | Patient Advocate (1000+ posts) Joined: Jan 2009 Posts: 1,844 | Kate,
I can say that I really do understand your trepidation about the speech issue...but there has to come a point where you have to let your work and abilities speak for themselves. Allow your talent and abilities to outshine whatever physical limitations you have and believe in that.
I continue to apologize to people on the phone or in person about my speech issues and ask for tolerance when doing business...and often am told that it is no problem. I continue to do it for my own peace of mind though and I have found that it softens people up a bit. I feel less judged and people more impressed with me because of the hurdles I face. Now I could let that bug the shit out of me...but I figure it's not my issue so why let it concern me.
Go get'em girl!
Eric
Young Frack, SCC T4N2M0, Cisplatin,35+ rads,ND, RT Mandiblectomy w fibular free flap, facial paralysis, "He who has a "why" to live can bear with almost any "how"." -Nietzche "WARNING" PG-13 due to Sarcasm & WAY too much attitude, interact at your own risk.
| | | | Joined: Mar 2002 Posts: 4,918 Likes: 64 OCF Founder Patient Advocate (old timer, 2000 posts) | OCF Founder Patient Advocate (old timer, 2000 posts) Joined: Mar 2002 Posts: 4,918 Likes: 64 | Eric hasn't mentioned it here, but he is working with OCF to develop relationships for the foundation with large corporate entities. These contacts are heavily by email, but they are also developing personal relationships with important people with these big companies. Obviously these take great communication skills both written and verbal. Today Eric sealed a deal with GSK's Biotene brand to be a sponsor of all of our 2010 walk events. This involved using his pre-cancer skills, and working out an arrangement where they felt that a relationship with OCF was worthy of them being financial sponsors of these events. None of us have perfect speech after treatment, and when he and I discussed these outreach efforts I expected him to voice some concerns. He didn't. I think that may times we think more about our own issues than others do. No part of who "Eric after cancer", is, impacted his ability to create a very important relationship for the foundation.
Brian, stage 4 oral cancer survivor. OCF Founder and Director. The first responsibility of a leader is to define reality. The last is to say thank you. In between, the leader is a servant. | | | | Joined: Aug 2007 Posts: 1,301 "OCF Down Under" Patient Advocate (1000+ posts) | "OCF Down Under" Patient Advocate (1000+ posts) Joined: Aug 2007 Posts: 1,301 | My speech is not the best however I get by. At the moment it seems to be a little worse. I think it is due to not trying as hard as I used to. I think I may be getting a little lazy about it but also I don't seem to care so much at the moment. Best of luck Kate and great job Eric.
History Leukoplakia bx 8/2006 SCC floor mouth T3N0M0- Verrucous Carcinoma. 14 hour 0p SCC-Right ND/excision/marginal mandibulectomy 9/2006, 4 teeth removed, flap from wrist, trach-ng 6 days- no chemo/rad. 6 ops and debulking (flap/tongue join) + bx's 2006-2012. bx Jan 2012 Hyperkeratosis-Epithelial Dysplasia 24cm GIST tumour removed 8/2013. Indefinite Oral Chemo.
1/31/16 passed away peacefully surrounded by family
| | | | Joined: Sep 2006 Posts: 8,311 Senior Patient Advocate Patient Advocate (old timer, 2000 posts) | Senior Patient Advocate Patient Advocate (old timer, 2000 posts) Joined: Sep 2006 Posts: 8,311 | As long as you have been on this site I have never known you to back away from anything so what's the difference here? If you place limits on yourself you can't fault others for doing the same so it's up to you to make sure no one doubts your determination.
David
Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
| | | | Joined: Feb 2007 Posts: 790 "Above & Beyond" Member (500+ posts) | OP "Above & Beyond" Member (500+ posts) Joined: Feb 2007 Posts: 790 | Thanks for the advice. You know what? I really don't feel sorry for myself ever actually. I come here all the time and support people and give them advice and I was just having a tough moment and was looking for some moral support.
Speaking without a tongue at all is just really hard though and I have a tough time giving even a cabbie directions without struggling. So I do think my situation is a bit different. My speech isn't slurred its very altered and it is very hard to understand me sometimes plus I am in a kind of superficial industry too so that adds another wrinkle. Will try and get more confident to get out there and see what happenens. I'm just scared sometimes is all.
K
Tongue Cancer T2 N0 M0 / Total Glossectomy Due to Location of Tumor
Finished all treatments May 25 2007 Surviving!!!
| | | | Joined: Aug 2006 Posts: 199 Senior Member (100+ posts) | Senior Member (100+ posts) Joined: Aug 2006 Posts: 199 | Kate - I understand why you are frustrated and scared. I know you'd like to be the person you were before all of this happened, and have the abilty to speak freely and distinctly. We can all tell you that it doesn't really matter, you're a wonderful person, etc - which is all true! But, it doesn't change your struggles with this. I think the advice that Eric gave was good - be upfront with people, let them know that you are still the same person as before your surgery but have a more difficult time with speech because of it. I did this the first time I had to give a public presentation, and was very upfront and open, and I think it made a big difference. I realize my issues are no where near yours... but you are such a strong young woman, with so much to give - I think most people will see that light shining through....
Ginny M. SCC of Left lateral tongue Dx 04/06,Surgery MDACC 05/11/06: Partial glossectomy with selective neck dissection. T1N0M0 - no radiation. Phase III clinical trial ("EPOC" trial)04/07 thru 04/08 because tests showed a 65% chance of recurrence. 10 Year Survivor!
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