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Jim finished his treatments two weeks ago. Yay! He has continued to swallow water and small pills thru the treatment, but all nutrition has been liquid through his g-tube. His MO said 4 weeks after treatment he may begin to eat soft foods such as pudding, yogurt, cream soups. Can he try sooner or is there a risk of getting choked before then?


Debbie, 53 wife and caregiver to Jim, 68, non-smoker, social drinks only. Stage IV SCC rt. tonsil. HPV+. Neck dissection 12/29/09. Peg inserted 2/2/10. Cisplatin and rad started 2/9/10. Carboplatin given 2nd round. 3rd round cancelled due to toxicity. Finished 30 rad treatments 3/23/10.
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It is not an issue of choking as much as an issue of pain. I went to a liquid diet for a while after radiation (no peg). The first thing semi-solid I went to after that was pudding. I started that about 2 weeks after treatment and that was always about how much pain I could tolerate and what I felt I could keep down as the no taste issue made me want to gag on all food at that point.

For me, eating got better fairly fast after that and I was back to solid foods in no time.


Kelly
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48, SCC (Soft Palet) Rt.,
Stage 1, T3n0m0,
Dx, 8-09, Start IMRT 35 9-2-09 end 10-21-09
04-20-10 NED
8-11 recurrence, node rt. neck N2b
10-11 33 IMRT w/chemo wkly
3-12-12 PET - residual cancer
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Congratulations to Jim on completing treatments. Everyone has different issues with eating. I wasn't able to eat "real" food for about 16 months, but had my peg out well before that as I was able to swallow Ensure, smoothies and milkshakes and such, just couldn't handle anything solid due to the combination of bad taste and no saliva. Others are on solids much sooner and some few take even longer. You just have to try whenever you feel up to it and hope it works.

Last edited by Deejer47; 04-06-2010 10:10 AM.

David R. 65 yr old male non-smoker, light drinker, stage 3 or 4, depending on which doc you ask, scc rt. tonsil, 2 nodes, 7 weeks radiation and chemo. No surgery. Teatment ended 3/20/08. PET scan 8/08 showed no cancer.
And now, as of oct, 2010, caregiver to wife, Linda, with breast cancer.
May, 2013, Linda diagnosed with stage 3 ovarian cancer. Enuf already.
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John started eating by mouth around 6 weeks out of treatments.


Wanda (47) caregiver to husband John (56) age at diag.(2009)
1-13-09 diagnosed Stage IV BOT SCC (HPV+)
2-12-09 PEG placed, 7-6-09 removed
Cisplatin 7 weeks, 7 weeks (35) IMRT
4-15-09 - treatment completed
8-09,12-09-CT Scans clear, 4-10,6-11-PET Scans clear
4-2013 - HBO (30 dives) tooth extraction
10-2019 - tooth extraction, HBO (10 dives)
11-2019 - Left lateral tongue SCC - Stage 2
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Three weeks post Tx and I started "eating" things like mashed potatoes, mac n cheese, fruit cocktail, cut up ham. Nothing tasted right but boy was I glad I was eating solid foods again.


David

Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
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Thanks for letting me know what to expect. It is so hard to eat in front of him because he wants real food so bad. I just keep telling him we're one day closer to it. Shhhhh...I haven't told him the food won't taste good at first. wink


Debbie, 53 wife and caregiver to Jim, 68, non-smoker, social drinks only. Stage IV SCC rt. tonsil. HPV+. Neck dissection 12/29/09. Peg inserted 2/2/10. Cisplatin and rad started 2/9/10. Carboplatin given 2nd round. 3rd round cancelled due to toxicity. Finished 30 rad treatments 3/23/10.
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For those of us that didn't have a peg, we started eating real food as soon as we could swallow it. I don't remember anyone setting any time limit on when I could start. I lived on Ensure Plus for a couple of weeks after treatment and then started on eggs, apple sauce, yogurt, soup, etc.

I'd ask the doc if there is any reason why he can't try now. The more he swallows, the less likely he is to lose the ability.

Take care,
Eileen


----------------------
Aug 1997 unknown primary, Stage III
mets to 1 lymph node in neck; rt ND, 36 XRT rad
Aug 2001 tiny tumor on larynx, Stage I total laryngectomy; left ND
June 5, 2010 dx early stage breast cancer
June 9, 2011 SCC 1.5 cm hypo pharynx, 70% P-16 positive, no mets, Stage I
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Agree with Eileen. The time I stared is when I walked out of my tunnel and I finally felt I could try something solid. I didn't have a PEG and my throat wasn't that sore but nausea was my problem so I started trying solid foods as soon as my nausea slacked off. Up until that point I was barely living on swallowing VHC.


David

Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
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David, when did your nausea slack off? Jim has had constant nausea from about day 4 of the treatment regimen. The cisplatin was the first culprit. Then carboplatin, even though MO said it rarely caused much nausea. Wrong! He threw up the first night! So he has pretty much stayed on his Zofran and Phenergan. It's been two weeks since he finished the treatments, the mucous has slacked off and he feels better but we're hesitant about putting the anti-nausea pills away. Do you remember when your nausea subsided?


Debbie, 53 wife and caregiver to Jim, 68, non-smoker, social drinks only. Stage IV SCC rt. tonsil. HPV+. Neck dissection 12/29/09. Peg inserted 2/2/10. Cisplatin and rad started 2/9/10. Carboplatin given 2nd round. 3rd round cancelled due to toxicity. Finished 30 rad treatments 3/23/10.
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[quote=Jim and Deb]David, when did your nausea slack off? Jim has had constant nausea from about day 4 of the treatment regimen. The cisplatin was the first culprit. Then carboplatin, even though MO said it rarely caused much nausea. Wrong! He threw up the first night! So he has pretty much stayed on his Zofran and Phenergan. It's been two weeks since he finished the treatments, the mucous has slacked off and he feels better but we're hesitant about putting the anti-nausea pills away. Do you remember when your nausea subsided? [/quote]

Hi Debbie. I hope you don't mind if I jump in here. My husband John was on both Zofran and Companize all through treatments because the nausea was so bad. He didn't talk for a month because every time he tried the mucus would make him gag and throw up. He was totally off all anti-nausea meds about 1 month after treatments ended.


Wanda (47) caregiver to husband John (56) age at diag.(2009)
1-13-09 diagnosed Stage IV BOT SCC (HPV+)
2-12-09 PEG placed, 7-6-09 removed
Cisplatin 7 weeks, 7 weeks (35) IMRT
4-15-09 - treatment completed
8-09,12-09-CT Scans clear, 4-10,6-11-PET Scans clear
4-2013 - HBO (30 dives) tooth extraction
10-2019 - tooth extraction, HBO (10 dives)
11-2019 - Left lateral tongue SCC - Stage 2
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