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#114900 04-01-2010 07:33 PM
Joined: Sep 2006
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Hello all,
Seems Penny is in for a tough time again. Facing a tough choice and will have more information tomorrow. After path results from gloss and dissection- there was an additional spot in specimen we were unaware of and that spot had spindle-cell componants .2cm from margins. Dr's state she does not have the cancer anymore- there is (their term) "cancerous dust" too close. So offering either more Radiation/chemo (5 fu/carboplatin/Erbitux) or just the chemo/Erbitux and no radiation. So the scene is set for this dust to possibly develop. Recommending the above as to create a hostile environment-preventative if you will-so choice is chemo/ Erbitux or rad/chemo/Erbitux. Seems scary for radiation a 2nd time as preventative? Will keep you posted.. thanks for being here


Sarah

Sister is Stage 4 DIAG 9/06 Tongue/Tonsil /T4N1MO - BOT -right lateral/crossed midline-42 X IMRTS/ Carbo/Taxol for 7 weeks- finished treatment early 12/06-no trace to be found 1/24/07 Recurrence 12/09- rad neck and partial gloss 2/10
Sarah1997 #115305 04-10-2010 07:15 PM
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Well after meeting with Penny's old Radiologist- he does not like the idea of more radiation- while the other radiologist wouldn't hesitate about giving her another 6 weeks-Penny's radiologist is not of that thinking-The only form he would entertain at all was Brachy which he admits is nothing wildly new at all but is more focused and would not turn what's left to plywood- she is considering this- meanwhile her 2nd daughter just had a baby on the 7th- a little girl- some great news! Penny begins chemo on the 26th!


Sarah

Sister is Stage 4 DIAG 9/06 Tongue/Tonsil /T4N1MO - BOT -right lateral/crossed midline-42 X IMRTS/ Carbo/Taxol for 7 weeks- finished treatment early 12/06-no trace to be found 1/24/07 Recurrence 12/09- rad neck and partial gloss 2/10
Sarah1997 #115309 04-10-2010 08:03 PM
Joined: Mar 2008
Posts: 404
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Sarah

Sorry to hear that Penny is having to deal with this horrid disease again and go through more chemo treatments. I hope that everything goes according to plan and her treatments go as smooth as possible.

Wonderful news on the birth of another girl for her daughter.

Karen


46 yrs:
Apr 07-SCC 80% entire tongue removed,T4N1M0
Neck/D,Jaw Split, Trache 2 ops,PEG 3.5yrs
30 x rad,6 x Cisplatin,
30 x HBO
Apr'08- flap Recon + ORN Mandibulectomy
(hip bone to reconstruct jaw)
Oct'08 1 Plate out-jaw
Mar'09 Debulk flap
Sep'09/Jan&Nov'10/Feb&Jun'11/Jan&Jul'12/Oct'13/April'14-More surgery
Karen Rose #115434 04-14-2010 05:51 AM
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Posts: 51
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Thank you Karen...I see you have been through so much/too much as well... I appreciate your kind wishes---I will keep you all informed as things go forward.


Sarah

Sister is Stage 4 DIAG 9/06 Tongue/Tonsil /T4N1MO - BOT -right lateral/crossed midline-42 X IMRTS/ Carbo/Taxol for 7 weeks- finished treatment early 12/06-no trace to be found 1/24/07 Recurrence 12/09- rad neck and partial gloss 2/10

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